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Author Topic: looking for a LIST of side of effects of being on dialysis  (Read 27516 times)
circleNthedrain
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« Reply #25 on: November 14, 2008, 11:55:11 PM »
Other than that Mrs. Lincoln, how did you like the play?
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1979 Diagnosed with kidney failure
1979 Right arm fistula
1979 Start hemodialysis
1980 CAPD catheter
1980 Start CAPD
1989 Cadaveric kidney transplant
1995 2nd cadaveric  kidney transplant
2007 Start hemodialysis
2010 Still drawin' wind
Wattle
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« Reply #26 on: November 15, 2008, 01:05:50 AM »
Quote from: circleNthedrain on November 14, 2008, 11:55:11 PM
Other than that Mrs. Lincoln, how did you like the play?

It was dreadful.
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PKD
June 2005 Commenced PD Dialysis
July 13th 2009 Cadaveric 5/6 Antigen Match Transplant from my Special Angel
karen547
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« Reply #27 on: November 15, 2008, 05:03:38 AM »
how about being PI$$SED OFF! LOL
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TynyWonder
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Calvin
« Reply #28 on: November 16, 2008, 01:03:14 PM »
Yeah, I hear all of yall about the depression AND being pissed off!!!!  I am sooooo that today!!! 
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Diagnosed with ESRD-November 2006
I have had 2 fistuals-neither one worked
I have had 2 grafts the last one finally "took"
I had 3 different catheters from Nov. 06 - Dec. 08
Got on the transplant list - Halloween Day 2008

You can easily judge the character of others by how they treat those who they think can do nothing for them.    I BELIEVE THIS TO BE SOOOOO TRUE!
G-Ma
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« Reply #29 on: November 16, 2008, 01:58:13 PM »
What's wrong tyny???
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Lost vision due to retinopathy 12/2005, 30 Laser Surg 2006
ESRD diagnosed 12/2006
03/2007 Fantastic Eye Surgeon in ND got my sight back and implanted lenses in both eyes, great distance & low reading.
Gortex 4/07.  Started dialysis in ND 5/4/2007
Gortex clotted off Thanksgiving Week of 2007, was unclotted and promptly clotted off 1/2 hour later so Permacath Rt chest.
3/2008 move to NC to be close to children.
2 Step fistula, 05/08-elevated 06/08, using mid August.
Aug 5, 08, trained NxStage and Home on 9/3/2008.
Fistulagram 09/2008. In hospital 10/30/08, Bowel Obstruction.
Back to RAI-Latrobe In Center. No home hemo at this time.
GOD IS GOOD
paris
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« Reply #30 on: November 16, 2008, 04:08:11 PM »
Tyny---that was me Friday.  I was mad and depressed and didn't know why.  Had to call the neph's nurse for another reason, left her a message.  She called an hour later and said I sounded a little tense!   She told me to come on over and just "talk" for a minute!! The office is 5 minutes away,  so I went over and basically just visited with her for 45 minutes.   Other office staff popped in her office to say hi and chat.   I felt so much better when I left-----just like I do when I can unload here.   Sometimes we are just mad and there is no clear reason (other than the elephant in the room).    Hope today is better for you. :cuddle;
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It's not what you gather, but what you scatter that tells what kind of life you have lived.
TynyWonder
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Calvin
« Reply #31 on: November 18, 2008, 10:23:14 PM »
Thanks Paris!   G-ma,  I guess I was mad the other day because I was being "stuck" for the first time.  My graft was going to be used for the first time and I was just angry, nervous and scared all in one, but............I used that lidocaine cream and for me, that stuff really does work!   I am so glad it does work for me because I had heard from a couple of other people that it did not work.  The only thing is, I guess since the numbing has worn off, it hurts worse when the needles are coming out but oh well, such is life I guess but the other day before they stuck me, they took my BP and it was 201/97............I was still soooooo nervous!!!   However, a little while after they got the needles in and I sat back and started talking with others, it went down, THANK GOD!  Thanks again Paris & G-ma for your concern!    :cuddle;
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Diagnosed with ESRD-November 2006
I have had 2 fistuals-neither one worked
I have had 2 grafts the last one finally "took"
I had 3 different catheters from Nov. 06 - Dec. 08
Got on the transplant list - Halloween Day 2008

You can easily judge the character of others by how they treat those who they think can do nothing for them.    I BELIEVE THIS TO BE SOOOOO TRUE!
G-Ma
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« Reply #32 on: November 19, 2008, 01:52:30 PM »
Oh tyny...hopefully now that you know what to expect from the needles your bp won't be so high, that is not good.  You might try a deep breath when they pull the needles.  I wish they would let me pull my own but the techs here are very good with sticking and pulling and I've had no trouble, very little pain or pinch when sticking and nothing when pulling.  Good luck.
Ann
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Lost vision due to retinopathy 12/2005, 30 Laser Surg 2006
ESRD diagnosed 12/2006
03/2007 Fantastic Eye Surgeon in ND got my sight back and implanted lenses in both eyes, great distance & low reading.
Gortex 4/07.  Started dialysis in ND 5/4/2007
Gortex clotted off Thanksgiving Week of 2007, was unclotted and promptly clotted off 1/2 hour later so Permacath Rt chest.
3/2008 move to NC to be close to children.
2 Step fistula, 05/08-elevated 06/08, using mid August.
Aug 5, 08, trained NxStage and Home on 9/3/2008.
Fistulagram 09/2008. In hospital 10/30/08, Bowel Obstruction.
Back to RAI-Latrobe In Center. No home hemo at this time.
GOD IS GOOD
Stacy Without An E
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God's Action Figure

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« Reply #33 on: November 19, 2008, 02:59:58 PM »
The Official List of Stacy Side Effects:

1) Fighting pain every treatment has left me unable to feel anything anymore.

2) Women find me extra repulsive.

3) All my boxers & socks are stretched out because of the fluid boomerang.

4) My entire essence is darker.

5) Career has ground to a halt because treatment saps ambition.

6) Turning into the youngest curmudgeon in the history of mankind.

7) Endure panic attacks around continual loud noises because patients are rude with their TV's.

8) Eyes look hollow and lifeless.

9) Blackout at the most inopportune moments.

10) Have created enough vomit in my lifetime to fill the Superdome.

These are just my experiences over the last four and a half years.  Your side effects may vary.
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Stacy Without An E

1st Kidney Transplant: May 1983
2nd Kidney Transplant: January 1996
3rd Kidney Transplant: Any day now.

The Adventures of Stacy Without An E
stacywithoutane.blogspot.com

Dialysis.  Two needles.  One machine.  No compassion.
G-Ma
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« Reply #34 on: November 19, 2008, 04:26:23 PM »
Stacy...me thinks you are not looking in the right place for women......my best friend in my 30's was 4 years younger than me, a CPA, had lost both legs due to diabetes, was slowly going blind, had 3 failed transplants, scars worse than any I've ever seen and a sense of humor that was beyond belief..he had more women after him, and these were also professional women...he actually married one a few months before he passed away and I thank God for allowing me to know him.  My husband and I and others had him with us as much as possible.  God bless Ken.
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Lost vision due to retinopathy 12/2005, 30 Laser Surg 2006
ESRD diagnosed 12/2006
03/2007 Fantastic Eye Surgeon in ND got my sight back and implanted lenses in both eyes, great distance & low reading.
Gortex 4/07.  Started dialysis in ND 5/4/2007
Gortex clotted off Thanksgiving Week of 2007, was unclotted and promptly clotted off 1/2 hour later so Permacath Rt chest.
3/2008 move to NC to be close to children.
2 Step fistula, 05/08-elevated 06/08, using mid August.
Aug 5, 08, trained NxStage and Home on 9/3/2008.
Fistulagram 09/2008. In hospital 10/30/08, Bowel Obstruction.
Back to RAI-Latrobe In Center. No home hemo at this time.
GOD IS GOOD
karen547
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« Reply #35 on: November 20, 2008, 05:15:28 AM »
Well, a side effect for me is having seizures! I had another last night :thumbdown;
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TynyWonder
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Calvin
« Reply #36 on: November 20, 2008, 11:29:19 AM »
Quote from: karen547 on November 20, 2008, 05:15:28 AM
Well, a side effect for me is having seizures! I had another last night :thumbdown;

aaaawww Karen, I am so sorry to hear that!   :cuddle;  I have those too but I have had them off and on since I was about 5. (as far as I can remember)   I did not realize or think it could possibly be related to the failing kidneys?????   hhhhmmmm
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Diagnosed with ESRD-November 2006
I have had 2 fistuals-neither one worked
I have had 2 grafts the last one finally "took"
I had 3 different catheters from Nov. 06 - Dec. 08
Got on the transplant list - Halloween Day 2008

You can easily judge the character of others by how they treat those who they think can do nothing for them.    I BELIEVE THIS TO BE SOOOOO TRUE!
karen547
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« Reply #37 on: November 20, 2008, 01:11:38 PM »
Thanks! Well as far as I know it is due to dialysis, it has only ever happened on the machine at treatment! I have seen a neurologist, and hes ruled out epilepsy, plus, all of my blood and urine tests came back negative last night, plus i had a ct scan last night too which is negative  :bow;
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TynyWonder
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Calvin
« Reply #38 on: November 20, 2008, 02:42:40 PM »
Wow!  How long do they tell you that your seizures last?   Do you feel one coming on?   
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Diagnosed with ESRD-November 2006
I have had 2 fistuals-neither one worked
I have had 2 grafts the last one finally "took"
I had 3 different catheters from Nov. 06 - Dec. 08
Got on the transplant list - Halloween Day 2008

You can easily judge the character of others by how they treat those who they think can do nothing for them.    I BELIEVE THIS TO BE SOOOOO TRUE!
karen547
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« Reply #39 on: November 20, 2008, 07:29:49 PM »
No not usually :'(. I woke up last night with pee all over me and was really confused as to why everyone was crowding around me and asking me questions. I wish they would stop already :Kit n Stik;
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jbeany
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Cattitude
« Reply #40 on: November 20, 2008, 07:42:21 PM »
Aww, karen, that sucks!   :grouphug;

Can I at least say I'm jealous that you still pee?  (I know, I know, warped sense of humor in overdrive. . .)

Hey, Stac - the women here think you're adorable!  Are any of us here "neckish" enough?
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"Asbestos Gelos"  (As-bes-tos yay-lohs) Greek. Literally, "fireproof laughter".  A term used by Homer for invincible laughter in the face of death and mortality.
TynyWonder
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Calvin
« Reply #41 on: November 21, 2008, 09:06:13 PM »
Quote from: karen547 on November 20, 2008, 07:29:49 PM
No not usually :'(. I woke up last night with pee all over me and was really confused as to why everyone was crowding around me and asking me questions. I wish they would stop already :Kit n Stik;

Yeah, the loss of your bowels AND the embarrassment is absolutely horrible!!!!    I know how it feels Karen & I am so sorry!   :cuddle;
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Diagnosed with ESRD-November 2006
I have had 2 fistuals-neither one worked
I have had 2 grafts the last one finally "took"
I had 3 different catheters from Nov. 06 - Dec. 08
Got on the transplant list - Halloween Day 2008

You can easily judge the character of others by how they treat those who they think can do nothing for them.    I BELIEVE THIS TO BE SOOOOO TRUE!
dwcrawford
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Getting the heck out of town.
« Reply #42 on: May 08, 2009, 12:14:06 PM »
Is it normal for this (dialysis) to dry your skin out?  After two week, I'm starting to look like a fish with all the scales.
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Come to think of it, nothing is funny anymore.

Nothing that I post here is intended for fact but rather for exploration into my personal thought processes.  Any slight, use of words with multiple connotations or other percieved insults are totally unintended.  I reserve my insults for private.
jbeany
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Cattitude
« Reply #43 on: May 08, 2009, 06:01:01 PM »
Yes, being on hemo will strip you dry.  I need to slather on moisturizer when I get home.  My hands are always the worst.  My fingers seem to hold more fluid than any other part of my body, and when I get done with dialysis, my hands are all wrinkly.  Until my skin recovers it shape, it looks like I'm wearing gloves two sizes to big.  All that stretching and shrinking makes my skin dry out and peel like crazy.  Get a good loofah to scrub off the flaky stuff in the shower, and find a thick moisturizer that you like.
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"Asbestos Gelos"  (As-bes-tos yay-lohs) Greek. Literally, "fireproof laughter".  A term used by Homer for invincible laughter in the face of death and mortality.
ladyhawk526
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« Reply #44 on: June 16, 2009, 08:45:42 PM »
Glitter for side effects you said that Star Fruit can kill you??? Is this for real?  I dont eat it very often but I do like and would like more information
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greco02
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« Reply #45 on: June 18, 2009, 04:59:23 PM »
 :puke;
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greco02
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« Reply #46 on: June 18, 2009, 05:01:55 PM »
Some how when I added the sweet art work my message disappeared.  I just saw this topic on the San Diego Channel 10 news, yes, Star Fruit has a neurotoxin that can make Kidney Disease patients very very sick.
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Stoday
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« Reply #47 on: June 19, 2009, 04:44:17 PM »
One person died from eating just one star fruit.

Some people who had poor kidney function but were not yet on dialysis had problems.
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Diagnosed stage 3 CKD May 2003
AV fistula placed June 2009
Started hemo July 2010
Heart Attacks June 2005; October 2010; July 2011
pamster42000
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« Reply #48 on: July 10, 2009, 10:27:08 AM »
My daughter had three episodes of seizures in 2006. At the time Dr. thought it may be caused the the increased Epogen she was receiving. Never did get find out the reason though .... but we got that alot with Sarah's disease. Medication finally kept them under control.
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The Wife
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« Reply #49 on: July 14, 2009, 10:37:20 AM »
And Neropathy...and not just for those that are diabetic.

I also appreciate the list.  Thanks.
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