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Author Topic: looking for a LIST of side of effects of being on dialysis  (Read 27512 times)
TynyWonder
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Calvin
« on: November 11, 2008, 11:12:16 PM »
I know this may sound awful but I don't like to read paragraphs after paragraphs of stuff and I did do a search for very the above topic and did not really find what I was looking for that is why I am hoping someone can send me a LIST of side effects of being on dialysis.  For instance, I have read about skin peeling, insomnia, can't think straight, things like that but I would like to see ALL of them in a list rather than in several paragraphs.   Oh, one more thing, the reason I am wanting this is, to show my family because I think they would come closer to reading a LIST versus a long, lengthy thing of 3 or so paragraphs!   Thanks in advance!     :bandance;
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Diagnosed with ESRD-November 2006
I have had 2 fistuals-neither one worked
I have had 2 grafts the last one finally "took"
I had 3 different catheters from Nov. 06 - Dec. 08
Got on the transplant list - Halloween Day 2008

You can easily judge the character of others by how they treat those who they think can do nothing for them.    I BELIEVE THIS TO BE SOOOOO TRUE!
RichardMEL
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« Reply #1 on: November 11, 2008, 11:55:17 PM »
Gee don't think you can have a catch-all list because everyone's situation and complications can be different. I mean some people have no side effects and others suffer a lot - and of course "side effects" could be caused by related conditions to the kidney failure/dialysis condition.

However here are some that I can think of that might fall under the category:

- itching
- cramp/BP crash
- skin peeling
- feeling the cold

I'm sure others can add to this list.
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3/1993: Diagnosed with Kidney Failure (FSGS)
25/7/2006: Started hemo 3x/week 5 hour sessions :(
27/11/2010: Cadaveric kidney transplant from my wonderful donor!!! "Danny" currently settling in and working better every day!!! :)

BE POSITIVE * BE INFORMED * BE PROACTIVE * BE IN CONTROL * LIVE LIFE!
cherpep
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« Reply #2 on: November 12, 2008, 08:19:05 AM »
- fatigue
- dizziness
- low blood pressure
- nausea
- double vision
- cramps, cramps, and more cramps
- loss of time (not a physical effect, but a huge downside)

These can be caused by the kidney disease and/or the dialysis.  The line between the two become blurry.  Also, I agree with Richard, you almost have to give the disclaimer that 'it affects everyone differently, but here are some common side effects'....
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Rerun
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Going through life tied to a chair!
« Reply #3 on: November 12, 2008, 08:57:04 AM »
A huge side effect is being LAZY and not wanting to read, do research or learn anything.

                                                    :waving;
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monrein
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Might as well smile
« Reply #4 on: November 12, 2008, 08:59:53 AM »
I'd add headache, possible malnutrition, and there other long term effects on the body....muscle wasting, loss of bone density, infection leading to sepsis, heart problems.
« Last Edit: November 12, 2008, 08:47:39 PM by monrein » Logged
Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
Rerun
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Going through life tied to a chair!
« Reply #5 on: November 12, 2008, 09:01:54 AM »
And... death.
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Run8
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« Reply #6 on: November 12, 2008, 09:18:24 AM »
your weight go up then down.
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okarol
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« Reply #7 on: November 12, 2008, 09:53:45 AM »

Some foods taste different.

Sex drive may reduce.
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
Zach
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« Reply #8 on: November 12, 2008, 09:56:04 AM »
You don't pee.

8)
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Uninterrupted in-center (self-care) hemodialysis since 1982 -- 34 YEARS on March 3, 2016 !!
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
No transplant.  Not yet, anyway.  Only decided to be listed on 11/9/06. Inactive at the moment.  ;)
I make films.

Just the facts: 70.0 kgs. (about 154 lbs.)
Treatment: Tue-Thur-Sat   5.5 hours, 2x/wk, 6 hours, 1x/wk
Dialysate flow (Qd)=600;  Blood pump speed(Qb)=315
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glitter
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« Reply #9 on: November 12, 2008, 09:58:04 AM »
people are always sticking BIG needles in you
the diet is so hard
you can't drink very much, so your always thirsty
starfuit can kill you
loss of memory
its frightening to be sick
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Jack A Adams July 2, 1957--Feb. 28, 2009
I will miss him- FOREVER

caregiver to Jack (he was on dialysis)
RCC
nephrectomy april13,2006
dialysis april 14,2006
cherpep
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« Reply #10 on: November 12, 2008, 10:05:28 AM »
- higher risk of serious infection
- scarring from surgeries
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kitkatz
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« Reply #11 on: November 12, 2008, 01:26:06 PM »
Paperwork to sign that says dialysis can kill you
Insurance worries
prescription worries
Lots of meds
blood pressure problems
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lifenotonthelist.com

Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5

Remember your present situation is not your final destination.

Take it one day, one hour, one minute, one second at a time.

"If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1
boxman55
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« Reply #12 on: November 12, 2008, 04:09:44 PM »
Baldness oh wait that was another topic  ;D ...Boxman
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"Be the change you wished to be"
Started Hemodialysis 8/14/06
Lost lower right leg 5/16/08 due to Diabetes
Sister was denied donation to me for medical reasons 1/2008
jbeany
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Cattitude
« Reply #13 on: November 12, 2008, 08:29:23 PM »
I skimmed - didn't see these -

anemia
bone pain
calcification - calcium deposits in joints and under the skin
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"Asbestos Gelos"  (As-bes-tos yay-lohs) Greek. Literally, "fireproof laughter".  A term used by Homer for invincible laughter in the face of death and mortality.
TynyWonder
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Calvin
« Reply #14 on: November 12, 2008, 08:35:51 PM »
Quote from: Rerun on November 12, 2008, 08:57:04 AM
A huge side effect is being LAZY and not wanting to read, do research or learn anything.

                                                    :waving;

aaaawww how nice of you to say such things     :clap;
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Diagnosed with ESRD-November 2006
I have had 2 fistuals-neither one worked
I have had 2 grafts the last one finally "took"
I had 3 different catheters from Nov. 06 - Dec. 08
Got on the transplant list - Halloween Day 2008

You can easily judge the character of others by how they treat those who they think can do nothing for them.    I BELIEVE THIS TO BE SOOOOO TRUE!
TynyWonder
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Calvin
« Reply #15 on: November 12, 2008, 08:37:20 PM »
Thanks to everyone who has posted their side effects on this topic for me.   I did think last night AFTER I posted this that I should have put kidney failure AND dialysis because I do understand that they pretty much go hand in hand.   Thanks again! 
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Diagnosed with ESRD-November 2006
I have had 2 fistuals-neither one worked
I have had 2 grafts the last one finally "took"
I had 3 different catheters from Nov. 06 - Dec. 08
Got on the transplant list - Halloween Day 2008

You can easily judge the character of others by how they treat those who they think can do nothing for them.    I BELIEVE THIS TO BE SOOOOO TRUE!
kitkatz
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« Reply #16 on: November 13, 2008, 04:24:52 PM »
Here is the list compiles to include everyone's input.
itching
cramp/BP crash
skin peeling
-feeling the cold
headache
possible malnutrition
there other long term effects on the body:
muscle wasting,
loss of bone density
infection leading to sepsis
heart problems
death
your weight go up then down
Some foods taste different
Sex drive may reduce
You don't pee
people are always sticking BIG needles in you
the diet is so hard
you can't drink very much, so your always thirsty
starfuit can kill you
loss of memory
its frightening to be sick
higher risk of serious infection
scarring from surgeries
Paperwork to sign that says dialysis can kill you
Insurance worries
prescription worries
Lots of meds
blood pressure problems
Baldness
anemia
bone pain
calcification - calcium deposits in joints and under the skin
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lifenotonthelist.com

Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5

Remember your present situation is not your final destination.

Take it one day, one hour, one minute, one second at a time.

"If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1
TynyWonder
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Calvin
« Reply #17 on: November 13, 2008, 05:10:35 PM »
KitKatz!!!!  Thank you sooooo much!   I just forwarded this list to my Aunt & Uncle, thank you so much for taking the time out to compile this list!    Thanks again!!!   :bow; :bow; :bow;
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Diagnosed with ESRD-November 2006
I have had 2 fistuals-neither one worked
I have had 2 grafts the last one finally "took"
I had 3 different catheters from Nov. 06 - Dec. 08
Got on the transplant list - Halloween Day 2008

You can easily judge the character of others by how they treat those who they think can do nothing for them.    I BELIEVE THIS TO BE SOOOOO TRUE!
jbeany
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Cattitude
« Reply #18 on: November 13, 2008, 07:29:32 PM »
Yikes - that's quite a list when you see it all together like that!
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"Asbestos Gelos"  (As-bes-tos yay-lohs) Greek. Literally, "fireproof laughter".  A term used by Homer for invincible laughter in the face of death and mortality.
Wattle
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« Reply #19 on: November 14, 2008, 04:21:55 PM »
Depression needs to be added.
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PKD
June 2005 Commenced PD Dialysis
July 13th 2009 Cadaveric 5/6 Antigen Match Transplant from my Special Angel
boxman55
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« Reply #20 on: November 14, 2008, 04:50:30 PM »
what do you mean added, I already am depressed reading this.  :P Boxman
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"Be the change you wished to be"
Started Hemodialysis 8/14/06
Lost lower right leg 5/16/08 due to Diabetes
Sister was denied donation to me for medical reasons 1/2008
Wattle
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« Reply #21 on: November 14, 2008, 05:28:15 PM »
Quote from: boxman55 on November 14, 2008, 04:50:30 PM
what do you mean added, I already am depressed reading this.  :P Boxman

me too  :cuddle;   :waving; 
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PKD
June 2005 Commenced PD Dialysis
July 13th 2009 Cadaveric 5/6 Antigen Match Transplant from my Special Angel
kitkatz
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« Reply #22 on: November 14, 2008, 06:26:08 PM »
mood swings
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lifenotonthelist.com

Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5

Remember your present situation is not your final destination.

Take it one day, one hour, one minute, one second at a time.

"If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1
Wattle
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« Reply #23 on: November 14, 2008, 10:37:42 PM »
Quote from: kitkatz on November 14, 2008, 06:26:08 PM
mood swings

Who says I have mood swings?    :Kit n Stik;     lol    :bow;
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PKD
June 2005 Commenced PD Dialysis
July 13th 2009 Cadaveric 5/6 Antigen Match Transplant from my Special Angel
G-Ma
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« Reply #24 on: November 14, 2008, 11:41:34 PM »
I sent the list to some people who are important to me and I am hearing ohhh...now I know...guesss they thought I was just being whiny.... :Kit n Stik;
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Lost vision due to retinopathy 12/2005, 30 Laser Surg 2006
ESRD diagnosed 12/2006
03/2007 Fantastic Eye Surgeon in ND got my sight back and implanted lenses in both eyes, great distance & low reading.
Gortex 4/07.  Started dialysis in ND 5/4/2007
Gortex clotted off Thanksgiving Week of 2007, was unclotted and promptly clotted off 1/2 hour later so Permacath Rt chest.
3/2008 move to NC to be close to children.
2 Step fistula, 05/08-elevated 06/08, using mid August.
Aug 5, 08, trained NxStage and Home on 9/3/2008.
Fistulagram 09/2008. In hospital 10/30/08, Bowel Obstruction.
Back to RAI-Latrobe In Center. No home hemo at this time.
GOD IS GOOD
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