I had a really shit day last tuesday , so much so ,i was considering stopping hemo ! I've been having real problems with my neck and nothing was helping. So i went to dialysis on tues in real pain and said i probably couldnt do 4 hours but i would stick it out for as long as i could. Anyway about half hour after they hooked me up my neck went into spasm, i cant describe the pain , which also went into my head , it was so bad , i was throwing up with the pain. Do you know what they did ? handed me a sick bowl and stayed out the way , no one came near me for over an hour. Then one of the nurses decided to kick me while i was down. I was crying in agony and she came over to do war ! My bp for a while on hemo has been going up and ive been coming off with a really high bp 215/120 or more. Well because i was so stressed on tues and in so much agony my diastolic was 140 !!
and what did she do ? told me there was no way i could be taking my bp meds (i take them every day) but she said no way . I said i wasnt a liar , but she didnt believe me and insisted that i brought them in so she could see me take them ! WTF ? (sorry) I told her she had better go away ,as i wasnt even going to get into this right now. So they left me another 2 hours in agony , with no one coming near me , till i shouted out for the Sister and insisted that she take me off , despite her giving me every excuse under the sun not to. So finally she said she would just finish some paper work then take me off (her paperwork was a Secret Santa list , i know because she was asking all the staff if they wanted to be in on it !) Anyway i got home , in agony , drained and very very upset. I called my GP and got an emergency appt , she said my neck was very restricted and gave me a muscle relaxant and has made a request for me to see a specialist. The tablets are helping a bit , till i can get to see the specialist but that can take up to 6 weeks !
Anyway i went back in to hemo on thursday , with much debate, and the other Sister was on duty. I told her briefly about being called a liar over my bp meds and her solution was to put my on a profile as opposed to the Loop. It seems i am very quick to refill. Anyway the profile was brilliant , my bp was way down and i feel fantastic . Just one thing now ...wait till i see the other sister and nurse, i am not going to be rude , but i am going to make sure that the whole unit hears i am not a liar as proved by putting me on a profile and im going to insist i stay on it !!! Anyway im back , fighting fit , and ready to take em all on !!!