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Author Topic: hello everyone!!  (Read 3569 times)
zona
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« on: October 08, 2009, 02:33:41 PM »
Hello everyone, I am new here and thought I would share a little about me.I have stage 4 Igan kidney failure. I am pre dialysis with a GFR of 15. I am married to Kevin my husband of 25 years. He is a great support to me and honestly I dont know how I would cope without him. I had a fistula put in my arm last week and wow is it sore! I am also having uremic symptoms,anemia.fluid buildup,extreme fatiuge. I am so glad I found this site and looking forward to making friends who understand what its like to have this dreadful disease.Sometimes it gets lonely. :waving;
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zona  diagnosed with Igan 1993
         pre-dialysis gfr13% listed for transplant March 2010 Received transplant from deceased son August 2013. My son my hero.
KICKSTART
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In da House.
« Reply #1 on: October 08, 2009, 02:51:13 PM »
Welcome , pull a chair up and grab a drink (but be sure its only 50mls)  :rofl; Ask away and some one , somewhere will help you !  :thumbup;
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OH NO!!! I have Furniture Disease as well ! My chest has dropped into my drawers !
Hanify
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Hadija, Athol, Me and Molly at Havelock North 09
« Reply #2 on: October 08, 2009, 02:51:26 PM »
Yes it does, and this is a great place to say the things you might not say anywhere else.  Welcome.
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Diagnosed Nov 2007 with Multiple Myeloma.
By Jan 2008 was in end stage renal failure and on haemodialysis.
Changed to CAPD in April 2008.  Now on PD with a cycler.  Working very part time - teaching music.  Love it.  Husband is Paul (we're both 46), daughter Molly is 13.
Romona
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« Reply #3 on: October 08, 2009, 03:12:48 PM »
 :welcomesign;
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monrein
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Might as well smile
« Reply #4 on: October 08, 2009, 03:16:52 PM »
 :welcomesign; to IHD.  Always happy to meet new people here.
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
lizabee
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« Reply #5 on: October 08, 2009, 03:53:13 PM »
Hi, I am new too...welcome!
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zona
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« Reply #6 on: October 08, 2009, 05:47:31 PM »
KICKSTART, I love your sense of humor! I do have a question,has anyone experienced numbness and tingling in arms and legs.I get this everyday and it starts out as feeling like I have a fever,chills,then the tingling,then numbness and weakness.Could it be part of uremia? It is a very scary feeling!
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zona  diagnosed with Igan 1993
         pre-dialysis gfr13% listed for transplant March 2010 Received transplant from deceased son August 2013. My son my hero.
RightSide
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« Reply #7 on: October 08, 2009, 08:29:09 PM »
Quote from: zona on October 08, 2009, 05:47:31 PM
KICKSTART, I love your sense of humor! I do have a question,has anyone experienced numbness and tingling in arms and legs.I get this everyday and it starts out as feeling like I have a fever,chills,then the tingling,then numbness and weakness.Could it be part of uremia? It is a very scary feeling!
If I can jump in here:

Yes, the tingling could indicate uremic neuropathy.  Or neuropathy from some other cause, like diabetes.

You should tell your neph about it, and ask your neph if you're getting adequate dialysis.  There are also meds that can help.  I take 300 mg Neurontin (gabapentin) every evening at bedtime, and it has totally relieved those tingling and pins-and-needles feelings I had before.
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zona
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« Reply #8 on: October 08, 2009, 08:43:37 PM »
Thanks RightSide, that makes sense to me. I am pre dialysis but am having a lot of uremic symptoms. I will ask my neph. That pins and needles feeling is horrible!
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zona  diagnosed with Igan 1993
         pre-dialysis gfr13% listed for transplant March 2010 Received transplant from deceased son August 2013. My son my hero.
Mimi
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For any who do not like me I use - prayer.
« Reply #9 on: October 08, 2009, 09:59:08 PM »
 :welcomesign; Zona.  Come right in and make yourself at home.
« Last Edit: October 08, 2009, 10:00:19 PM by Mimi » Logged
Death is not extinguishing the light;
it is putting out the lamp because the dawn has come.
Wallyz
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« Reply #10 on: October 08, 2009, 10:16:30 PM »
Quote from: zona on October 08, 2009, 08:43:37 PM
Thanks RightSide, that makes sense to me. I am pre dialysis but am having a lot of uremic symptoms. I will ask my neph. That pins and needles feeling is horrible!

It is horrible.  The best thing to do is start dialysis sooner rather than later, and see if you can get some of those symptoms to subside.

Welcome.
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zona
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« Reply #11 on: October 09, 2009, 11:29:16 AM »
Just got an email from my neph. I do have uremic neuropathy and they want to start me on medication for it. I find it odd it didnt start until I had my fistula built last week.
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zona  diagnosed with Igan 1993
         pre-dialysis gfr13% listed for transplant March 2010 Received transplant from deceased son August 2013. My son my hero.
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