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Author Topic: Looks like relapse...  (Read 3499 times)
christined
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« on: August 05, 2015, 10:16:36 AM »
I have Chronic MGN and FSGS.  My heart was pounding and palpitating on Monday so I went to the ER.  They ran blood tests.  Now going back to January 2015 my CR was 0.89, BUN 15, ALB 3.5, GFR 82.9.  So back to Monday... my CR 1.15, BUN 18, ALB 3.6, K 3.4, Carbon Dioxide 29, and protein in urine 2+, GFR 62.8

I have feeling of tightening or pressure in both flanks with some pain. 

I was diagnosed via Biopsy in 1/2008.

I just moved to the Oregon area so I have an appointment with a new neprologist on 8/26/2015 and new primary care physcian 08/24/2015.

Any words of wisdom?
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1/8/2008 Biopsy - Chronic MGN and FSGS Perihilar variant
10/2010 Clinical Remission
Deanne
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« Reply #1 on: August 05, 2015, 10:56:35 AM »
Don't panic yet! It's been very hot here (I'm in Oregon, too), and renal tests can vary quite a bit based on hydration levels. Have you been spending much time outside or in a home / other places that don't have AC without compensating with extra fluids? That might explain the differences. Was your blood pressure OK? Mine drops in hot temperatures and causes similar symptoms, especially if I don't drink enough.

Hang in there!
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Deanne

1972: Diagnosed with "chronic kidney disease" (no specific diagnosis)
1994: Diagnosed with FSGS
September 2011: On transplant list with 15 - 20% function
September 2013: ~7% function. Started PD dialysis
February 11, 2014: Transplant from deceased donor. Creatinine 0.57 on 2/13/2014
christined
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« Reply #2 on: August 05, 2015, 11:08:13 AM »
Quote from: Deanne on August 05, 2015, 10:56:35 AM
Don't panic yet! It's been very hot here (I'm in Oregon, too), and renal tests can vary quite a bit based on hydration levels. Have you been spending much time outside or in a home / other places that don't have AC without compensating with extra fluids? That might explain the differences. Was your blood pressure OK? Mine drops in hot temperatures and causes similar symptoms, especially if I don't drink enough.

Hang in there!

No I spend most of the day indoors in air conditioning M-F.  But I don't have AC at home.  So I have been miserable.  I went to the ER because my heart was pounding and palpitating.  My blood pressure was 177/110 but by the time I left it was 131/89.
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1/8/2008 Biopsy - Chronic MGN and FSGS Perihilar variant
10/2010 Clinical Remission
cassandra
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When all else fails run in circles, shout loudly
« Reply #3 on: August 08, 2015, 01:06:48 PM »
How are you now?

Love, Cas
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I started out with nothing and I still have most of it left

1983 high proteinloss in urine, chemo, stroke,coma, dialysis
1984 double nephrectomy
1985 transplant from dad
1998 lost dads kidney, start PD
2003 peritineum burst, back to hemo
2012 start Nxstage home hemo
2020 start Gambro AK96

       still on waitinglist, still ok I think
Katherine
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« Reply #4 on: August 10, 2015, 11:23:24 PM »
I'm in Oregon, too!
The heat really messes with my blood pressure, too, and the hot days typically cause it to drop significantly.
I'm in the Portland area. There's a good kidney support group here, but it meets infrequently.
I'd love to meet other folks in town walking this path.

Welcome to Oregon! I hope you are thrilled with your new care team here!
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~ Katherine

"Reality is merely an illusion, albeit a very persistent one."  Albert Einstein
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