I Hate Dialysis Message Board
Welcome, Guest. Please login or register.
November 22, 2024, 04:08:36 PM

Login with username, password and session length
Search:     Advanced search
532606 Posts in 33561 Topics by 12678 Members
Latest Member: astrobridge
* Home Help Search Login Register
+  I Hate Dialysis Message Board
|-+  Dialysis Discussion
| |-+  Dialysis: General Discussion
| | |-+  Frustrated
0 Members and 2 Guests are viewing this topic. « previous next »
Pages: [1] Go Down Print
Author Topic: Frustrated  (Read 2510 times)
JW77
Full Member
***
Offline Offline

Posts: 208

WWW
« on: April 14, 2015, 02:16:54 PM »

Dialysis is going OK,  and ongoing.Ongoing for home heamo for the past 10 years.  I haven't had the need to see a doc for over the year, pretty stable, not infection, just the usual aches and pains in wrist, feet, back, neck, legs (are they they usual??).

I have a girlfriend,  4 years together, we both have disabilities, we both have needs, (she wheelchair access, and a walk in shower, and we're both up against the UK's idiotic system of persicution via bedroom tax

I NEED to stay on home heamo for the best treatment for my life, and lifestyle.  She NEEDS somewhere accessible, and we both ideally need a little bit of green to enjoy our future lives together..

We've seen properties, many estate agents still list NO DSS (old term for no one on benefits)

My family will help a bit, but those that can don't want to invest in us as much as it would help, which I understand but its frustrating... :)

The saga continues..    I'm feeling the pressue as she wants to move soon, even considering a supported housing until I 'catch up'.  That I feel might mean then end of our relationship... 
There's a few hundred miles (about 3 hours travel) and &&&&** rules and regulations against us and I hate it!..
End of this rather ranty post..

Logged

Creator of London Kidney Social: https://www.facebook.com/groups/LondonKidneySocial/

Medical stuff, includes 3 kidneys, cancer, meningitis, 1 heart attack and its long and not that interesting! Maybe one day I'll write a book.! `

I have an eclectic taste in music, I fly kites, I read, write, tog, blog and have a bit of a passion for multicellular eukaryotes, and kites.

Founder of Kites4Kidneys - Start making your kites for WKD 2015..
https://www.facebook.com/kites4kidneys
jeannea
Elite Member
*****
Offline Offline

Gender: Female
Posts: 1955

« Reply #1 on: April 15, 2015, 11:49:40 AM »

While I know nothing about the UK system, I think the whole thing sounds sucky. You two should be able to stay together and have a decent place to live. I don't suppose a lawyer could help? I hope you get lucky and find a place.
Logged
kristina
Member for Life
******
Offline Offline

Posts: 5530


« Reply #2 on: April 15, 2015, 01:33:39 PM »

Sorry about your current situation JW77 and I am aware,
that finding affordable/suitable accomodation can be a bit tricky at the moment...
... and that is perhaps the reason why "our" political parties make "Housing" such a big issue,
especially right now before the next election ...
... Have you asked your local MP for help? Have you thought of trying Housing Assiociations?
There are quite a few of them in London like the "Sutton", the "Lewis" and the "Peabody Housing Trust"  ... 
... If I am not mistaken, an application should first be made to your local Council,
accompanied by a letter from your doctor/specialist/GP outlining the situation...
... I have heard that the "Peabody" near Westminster/Victoria creates wheelchair-access etc.
(Not sure how true it is, please check-up)...
... I wish you both the best of luck and hopefully I have sparked an idea...
Best wishes from Kristina.  :grouphug;
Logged

Bach was no pioneer; his style was not influenced by any past or contemporary century.
  He was completion and fulfillment in itself, like a meteor which follows its own path.
                                        -   Robert Schumann  -

                                          ...  Oportet Vivere ...
Sugarlump
Elite Member
*****
Offline Offline

Gender: Female
Posts: 2160


10 years on and off dialysis

« Reply #3 on: April 23, 2015, 12:11:08 AM »

Housing is a tricky thing in the UK normally (unless you are rich enough to buy a house)
And even trickier if you are disabled and have special requirements like walk in shower/ doors wide enough for wheelchair etc
I got helped by a Housing Association who were building new homes locally.

Local councils DO have funds for disabled adaptions though they seem to guard the money very well! I would enlist the help of your MP (after the election)
as they can be very useful.

I can empathize with your frustration, housing worries are like a constant black cloud over your head.

Have you tried appealing against bedroom tax decision? I did and won.
Though depending who gets in power next month, strong likelihood of it being scrapped...
Logged

10 years of half a life
3 years HD 1st transplant Feb 08 failed after 3 months
Back to HD 2nd transplant Dec 10 failed after 11 months
Difficult times with a femoral line and catching MSSA (Thank you Plymouth Hospital)
Back on HD (not easy to do that third time around)
Fighting hard (two years on) to do home HD ... watch this space!
Oh and I am am getting married 1/08/15 to my wonderful partner Drew!!!
The power of optimism over common sense :)
kristina
Member for Life
******
Offline Offline

Posts: 5530


« Reply #4 on: April 23, 2015, 01:12:23 AM »

I would enlist the help of your MP (after the election)
as they can be very useful.

...

I would rather enlist the help of your MP before the election ...
... It has been claimed that MP's are at their most helpful before an election
when they try (again) to convince the electorate how very useful they can be ...
Good luck from Kristina.  :grouphug;
Logged

Bach was no pioneer; his style was not influenced by any past or contemporary century.
  He was completion and fulfillment in itself, like a meteor which follows its own path.
                                        -   Robert Schumann  -

                                          ...  Oportet Vivere ...
noahvale
Guest
« Reply #5 on: April 23, 2015, 04:49:04 AM »

*
 

« Last Edit: September 23, 2015, 02:05:44 AM by noahvale » Logged
Pages: [1] Go Up Print 
« previous next »
 

Powered by MySQL Powered by PHP SMF 2.0.17 | SMF © 2019, Simple Machines | Terms and Policies Valid XHTML 1.0! Valid CSS!