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Author Topic: Recuperating from transplant....  (Read 2619 times)
CHeatherS
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« on: September 07, 2011, 05:14:53 PM »

Hey guys, I am in Seattle recuperating from a transplant from Aug 23rd.  Here is my story and my donor's:  http://sidney.papashome.com/

Also here's a link from CBS news that may be encouraging for those of you waiting.  Blessings!
http://www.cbsnews.com/stories/2011/09/07/earlyshow/health/main20102520.shtml?tag=mncol;lst;2
Heather (Alaska)
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kellyt
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« Reply #1 on: September 07, 2011, 06:26:31 PM »

Congratulations!  I hope you got the UTI taken care of.  That must have been horrible.    :beer1;
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1993 diagnosed with glomerulonephritis.
Oct 41, 2007 - Got fistula placed.
Feb 13, 2008 - Activated on "the list".
Nov 5, 2008 - Received living donor transplant from my sister-in-law, Etta.
Nov 5, 2011 - THREE YEARS POST TRANSPLANT!  :D
CHeatherS
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« Reply #2 on: September 07, 2011, 06:38:27 PM »

That was my donor who ended up with the UTI.  She spent some time with hives and that UTI, and had to be put on two different antibiotics, which of course doesn't help the nausea at all.  I got my staples out yesterday, and went and bought some "granny" underwear so that it doesn't bind on the incision.   I didn't realize I would gain 26 pounds, but that is mostly gone.  Although still quite swollen in the tummy. 
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willowtreewren
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My two beautifull granddaughters

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« Reply #3 on: September 07, 2011, 06:46:35 PM »

Congratulations!!!!

 :yahoo; :yahoo; :yahoo;
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Wife to Carl, who has PKD.
Mother to Meagan, who has PKD.
Partner for NxStage HD August 2008 - February 2011.
Carl transplanted with cadaveric kidney, February 3, 2011. :)
monrein
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Might as well smile

« Reply #4 on: September 08, 2011, 04:39:43 AM »

 :flower; :flower; :flower;
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
jeannea
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« Reply #5 on: September 08, 2011, 04:54:19 PM »

I could have told you about the weight gain but I hate to tell horror stories before a transplant.

Sounds like you're doing great! I'm happy for you. (And when I got mine I couldn't even do the granny panties. Had to go commando for about 2 weeks til I healed.)
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tyefly
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This will be me...... Next spring.... I earned it.

« Reply #6 on: September 08, 2011, 04:58:36 PM »

Great news....  transplants are happening....  I too just got a transplant 6 days ago..... I have been worried about the weight gain.....  I am fat now... I worked hard at loosing weight ...seem like after transplant I gain 11 lbs..... hope that goes away.....

get strong and out and moving soon......  its going to be a great new year for us
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IgA Nephropathy   April 2009
CKD    May 2009
AV Fistula  June 2009
In-Center Dialysis   Sept 2009
Nxstage    Feb 2010
Extended Nxstage March 2011

Transplant Sept 2, 2011

  Hello from the Oregon Coast.....

I am learning to live close to the lives of my friends without ever seeing them. No miles of any measurement can separate your soul from mine.
- John Muir

The clearest way into the Universe is through a forest wilderness.
- John Muir
RightSide
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« Reply #7 on: September 08, 2011, 05:08:52 PM »

Congrats and best wishes.

And don't worry so much about the weight gain. 

If your experience will be like mine, you'll find that the healthy kidney will give you so much more energy and stamina that you'll become more active--and burn lots more calories, thus losing weight eventually.
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CHeatherS
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« Reply #8 on: September 08, 2011, 07:29:08 PM »

AH, thanks all, as it turns out, today I went in and had lost not only all that weight, but another 5 pounds as well.  Probably because I have had a lot of diarrhea (seems to finally be settling down through) and of course, no more PD which means that sugar water isn't going through me. 

I am going to save these giant pants and granny underwear in case I have to have another surgery to remove these huge PKD kidneys, or at least one.... but I am not going to think about that, at this point.  I am just anxious to get back home to Alaska.
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natnnnat
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WWW
« Reply #9 on: September 09, 2011, 03:18:52 AM »

And another transplant! (I just found Tyefly's thread)  So nice to come back to IHD and find all this good news.  Last time I looked, you were having a really cr**py time with your PD machine.  Very happy to read this good news.  Hopefully the diarrhea has settled down for awhile, its hard on your system all these medications and changes.  Go gently dear CHeatherS.   :cheer: :cheer: :cheer:
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Natalya – Sydney, Australia
wife of Gregory, who is the kidney patient: 
1986: kidney failure at 19 years old, cause unknown
PD for a year, in-centre haemo for 4 years
Transplant 1 lasted 21 years (Lucy: 1991 - 2012), failed due to Transplant glomerulopathy
5 weeks Haemo 2012
Transplant 2 (Maggie) installed Feb 13, 2013, returned to work June 17, 2013 average crea was 130, now is 140.
Infections in June / July, hospital 1-4 Aug for infections.

Over the years:  skin cancer; thyroidectomy, pneumonia; CMV; BK; 14 surgeries
Generally glossy and happy.

2009 - 2013 PhD research student : How people make sense of renal failure in online discussion boards
Submitted February 2013 :: Graduated Sep 2013.   http://godbold.name/experiencingdialysis/
Heartfelt thanks to IHD, KK and ADB for your generosity and support.
boswife
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us and fam easter 2013

« Reply #10 on: September 10, 2011, 07:39:07 AM »

ohhhh Heather, i have been so excited for you and just now getting to write to tell you so.  Even had to look back up your post do do so..  I am behond thrilled that this happend for you and so hope that this will stay with you for a long long time and bring you health.  Please write to us (or me  ;D ) and keep in touch as to how your doing...  Im so glad you came back to share, and God bless and keep you healthy..   :cuddle;
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im a california wife and cargiver to my hubby
He started dialysis April 09
We thank God for every day we are blessed to have together.
november 2010, patiently (ha!) waiting our turn for NxStage training
January 14,2011 home with NxStage
CHeatherS
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« Reply #11 on: September 10, 2011, 11:18:07 AM »

Thanks so much friends, you are such an encouragement.  Yes, I have lost a lot of weight, even started on the dialysis weight from PD that I had put on.  It could be the diarrhea from this myfortic drug, and I am hoping that it settles down soon. 

Meanwhile I went to the Saturday Market today with my friend down here just outside of Seattle and there wasn't any pain!!!!  So, 2 and 1/2 weeks out, doing well.  There was a little rise in creatinine this week, from 1.9 up to 2.11, but then yesterday back down to 2.0.... so, drinking water, being very thankful, and missing Alaska.
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