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Author Topic: A Sinsepar question  (Read 2703 times)
pdpatty
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« on: July 27, 2010, 11:50:24 AM »
Does any here take this med. Do you get sick (nausea) about 2 hours after taking it?

But the most important, has you `bad' colesterol risen when taking it?
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RenalSurvivorDotCA
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« Reply #1 on: July 27, 2010, 03:05:33 PM »
i take 60 mg of Sensipar and I don't notice any side effects. It does really control my PTH well, but also lowers my calcium. I was on 90mg but they dropped that because my calcium dropped way too low. I asked them if I increased my consumption of milk, cheese and yogurt would that increase my calcium and they told me no yet put me back on Tums. *grrrr*

I haven't had my lipid profile checked recently since mine were perfect before. I should ask for it.
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Your life IS worth living. Fight for it!
Stoday
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« Reply #2 on: July 27, 2010, 03:44:55 PM »
I've developed an allergy to Sensipar (known as Cinacalcet here in the UK). Sickness was the least of the problems it caused; no, I can't take it anymore.
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Diagnosed stage 3 CKD May 2003
AV fistula placed June 2009
Started hemo July 2010
Heart Attacks June 2005; October 2010; July 2011
RainingRoses
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« Reply #3 on: July 27, 2010, 05:03:45 PM »
Yes to the nausea.  I take it at bedtime so I sleep through it.  My bad cholestrerol (and all the others) have gone up.  Hmmm.
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Finally Diagnosed 6/2001 Alport's Syndrome
CAPD 10/ 2006
Listed on UNOS 7/2007
CCPD  10/2007
Peritonitis & Hemo 10/2009
CCPD 2/2010
RichardMEL
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« Reply #4 on: July 27, 2010, 08:03:28 PM »
I'm on 30mg (the lowest dose) and have no issues with taking it - I feel nothing.

It is so good at reducing my PTH it actually got too LOW at one point and we had to lower the frequency of taking it!

Interestingly my cholestorol has gone DOWN since I've been on S. I hadn't noticed the correlation until thinking about it in conjunction with this post - a nice side effect if the two are related :)
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3/1993: Diagnosed with Kidney Failure (FSGS)
25/7/2006: Started hemo 3x/week 5 hour sessions :(
27/11/2010: Cadaveric kidney transplant from my wonderful donor!!! "Danny" currently settling in and working better every day!!! :)

BE POSITIVE * BE INFORMED * BE PROACTIVE * BE IN CONTROL * LIVE LIFE!
Zach
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"Still crazy after all these years."
« Reply #5 on: July 27, 2010, 09:14:18 PM »
RichardMel, Renvela (Renagel) is known to lower some cholestorol (as well as testosterone).

8)

Here are some other past IHD threads about Sensipar:
http://ihatedialysis.com/forum/index.php?topic=2949.msg93621#msg93621
http://ihatedialysis.com/forum/index.php?topic=12188.msg249412#msg249412
http://ihatedialysis.com/forum/index.php?topic=13476.msg232721#msg232721
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Uninterrupted in-center (self-care) hemodialysis since 1982 -- 34 YEARS on March 3, 2016 !!
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
No transplant.  Not yet, anyway.  Only decided to be listed on 11/9/06. Inactive at the moment.  ;)
I make films.

Just the facts: 70.0 kgs. (about 154 lbs.)
Treatment: Tue-Thur-Sat   5.5 hours, 2x/wk, 6 hours, 1x/wk
Dialysate flow (Qd)=600;  Blood pump speed(Qb)=315
Fresenius Optiflux-180 filter--without reuse
Fresenius 2008T dialysis machine
My KDOQI Nutrition (+/ -):  2,450 Calories, 84 grams Protein/day.

"Living a life, not an apology."
RichardMEL
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« Reply #6 on: July 27, 2010, 09:35:56 PM »
Testosterone huh? So when I get told I'm being like a girl I can blame Sensipar?!! Awesome!  :rofl; :rofl; :rofl; :rofl; :rofl;

Thanks Zach, you are the fountain of knowledge!
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3/1993: Diagnosed with Kidney Failure (FSGS)
25/7/2006: Started hemo 3x/week 5 hour sessions :(
27/11/2010: Cadaveric kidney transplant from my wonderful donor!!! "Danny" currently settling in and working better every day!!! :)

BE POSITIVE * BE INFORMED * BE PROACTIVE * BE IN CONTROL * LIVE LIFE!
Zach
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"Still crazy after all these years."
« Reply #7 on: July 28, 2010, 07:33:42 AM »
Always glad to help, mate!
 :beer1;
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Uninterrupted in-center (self-care) hemodialysis since 1982 -- 34 YEARS on March 3, 2016 !!
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
No transplant.  Not yet, anyway.  Only decided to be listed on 11/9/06. Inactive at the moment.  ;)
I make films.

Just the facts: 70.0 kgs. (about 154 lbs.)
Treatment: Tue-Thur-Sat   5.5 hours, 2x/wk, 6 hours, 1x/wk
Dialysate flow (Qd)=600;  Blood pump speed(Qb)=315
Fresenius Optiflux-180 filter--without reuse
Fresenius 2008T dialysis machine
My KDOQI Nutrition (+/ -):  2,450 Calories, 84 grams Protein/day.

"Living a life, not an apology."
Zog
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« Reply #8 on: August 06, 2010, 07:25:03 AM »
Jenn used to take Sensipar before her parathyroidectomy.  The only way she could take it was with Phenergan at night before she went to bed.  Phenergan is an antihistamine that keeps your body from reacting to the Sensipar.  It also makes you VERY sleepy.

She no longer takes Sensipar but she still has high triglycerides.  The doctor recently told her to take fish oil caplets.  We'll see how that works.  She used to take tricor when she had a transplant with no problems.
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My wife is JDHartzog. In 1994 she lost her kidneys to complications from congenital VUR.
1994 Hydronephrosis, Double Nephrectomy, PD
1994 1st Transplant
1996 PD
1997 2nd Transplant
1999 In Center Hemo
2004 3rd Transplant
2007 Home Hemo with NxStage
2008 Gave birth to our daughter (the first NxStage baby?)
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