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Author Topic: Just a rant for the day!!!  (Read 2081 times)
caringpct
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« on: February 01, 2010, 11:05:47 AM »

So I was telling a co-worker about this site and saying I think it would be great if our patients knew about it. We agreed it would help some of them to talk to others and share stories. Well, my FA and her boss walked into the break room listened to our conversation and told us that it is not an appropriate web site to tell the patients about! I tried to describe the site as a place that dialysis patients and caregivers can talk and I was forbidden to tell my patients about it!!
 
This makes me soooo mad because as a tech I am finding this site beneficial to help me take better care of my patients and try to understand more. I don't know how yet but I will let the patients at my unit know about this site.
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fc2821
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Just another hamster on the dialysis W.O.F.

« Reply #1 on: February 01, 2010, 11:17:33 AM »

       Don't get yourself into trouble.  But, that said  I am sure some of your patients would like to know about this place.  It IS a great place for knowledge, humor, and just plain venting.  Also, your FA is one of Dan's donkeys.    :rofl; :rofl;
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In center hemo dialysis since Feb 14, 2007. 

If I could type properly, I'd be dangerous!

You may be only one person in the universe but you may mean the the universe to someone else.
monrein
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Might as well smile

« Reply #2 on: February 01, 2010, 11:55:08 AM »

Could you invite your FA to come here and check it out for herself?  You could tell her that we have an FA from Texas who contributes in valuable ways and we even have had a couple of doctors on here too.  I bet she'd learn tons about transplant too.  Could you print out some threads you've found useful and give them to her?  She sounds a tad controlling and "parental" of people, most of whom haven't been kids in a while, but hey we're a bit used to that too.  It's one more thing we just need to ignore.

fc2821 is right however.  Don't get yourself in trouble.

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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
nursewratchet
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"Either do it, or don't do it, don't try"

« Reply #3 on: February 01, 2010, 01:10:40 PM »

I'm the FA from Texas that Monrein refers to...  I must say, when I found this site, I printed the page and passed it to ALL patients and staff.  It went into every new patinet bag, with info from me to find the site.  Valualbe info and support.  For both patients and myself...
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RN, Facility Administrator 2002 to present
RN, Staff Nurse 1996-2002
Vicki
RichardMEL
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« Reply #4 on: February 01, 2010, 04:40:44 PM »

Maybe the FA was just relating to the name and thinking it sounded too negative? Or maybe reacting to the whole "it's on the internet" thing that a lot of people can have issues with - perhaps due to the kinds of misinformation that can spread on some internet sites (not here!!) and the like. Maybe a general fear that recommending a specific site to the clients might be seen as some kind of bias or something, and if it backfired in some way that they could be held responsible in some way (I don't know how, just trying to think the way some people might).

Sad really but it's not worth getting in trouble over.

Of course you could also go to work in an IHD top, or wear a badge when the FA isn't around.. if someone asks about it... voila!!!  >:D
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3/1993: Diagnosed with Kidney Failure (FSGS)
25/7/2006: Started hemo 3x/week 5 hour sessions :(
27/11/2010: Cadaveric kidney transplant from my wonderful donor!!! "Danny" currently settling in and working better every day!!! :)

BE POSITIVE * BE INFORMED * BE PROACTIVE * BE IN CONTROL * LIVE LIFE!
caringpct
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« Reply #5 on: February 01, 2010, 06:52:51 PM »

I like that idea of wearing a top from ihd! I will have to try that
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Zog
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« Reply #6 on: February 02, 2010, 12:15:29 PM »

I could see why the corporate types might not like a website like this.  They probably don't understand the name.  They love dialysis it is how they make their money.

That and we circumvent their supposed authority on all matters dialysis.  There are some posts on here that probably aren't worth reading and might do someone harm, but overall I think this place is a great way to find out what others are doing and get encouragement.
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My wife is JDHartzog. In 1994 she lost her kidneys to complications from congenital VUR.
1994 Hydronephrosis, Double Nephrectomy, PD
1994 1st Transplant
1996 PD
1997 2nd Transplant
1999 In Center Hemo
2004 3rd Transplant
2007 Home Hemo with NxStage
2008 Gave birth to our daughter (the first NxStage baby?)
fc2821
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Just another hamster on the dialysis W.O.F.

« Reply #7 on: February 02, 2010, 12:39:30 PM »

I could see why the corporate types might not like a website like this.  They probably don't understand the name.  They love dialysis it is how they make their money.

That and we circumvent their supposed authority on all matters dialysis.  There are some posts on here that probably aren't worth reading and might do someone harm, but overall I think this place is a great way to find out what others are doing and get encouragement.

     Well said.  Have to agree 100%.   
     
     By the way, nice looking family Zog.   :2thumbsup; :2thumbsup;
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In center hemo dialysis since Feb 14, 2007. 

If I could type properly, I'd be dangerous!

You may be only one person in the universe but you may mean the the universe to someone else.
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