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KICKSTART
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« on: August 17, 2009, 05:15:10 AM »
everyone for all your strength /good wishes and support. If you can give me a week or so to get back on my feet a bit i will do a full post on what went on. Im still very sore and cant sleep for the pain and also still quite toxic and fluid overloaded. I have been told it will take a few sessions to get me right again !
However i do have some GOOD news !!!! I got a call from another hospital this morning asking if i would mind going there at least for this week for hemo  :bow; THIS is the hospital i want to end up going too full time !!! It has an excellent reputation , unlike the one im at now. So im going to try and fight to stay there now ive got my foot in the door. Just one minor glitch tho' the time ..errrrr 7 am !!! yup have to be there for then ! Up at 5 then , nevermind not sleeping anyway , so might as well do something with the time , but whats the betting im fast asleep in the morning when the alarm goes off !!  :2thumbsup;
Best wishes to everyone  KS  :grouphug;
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OH NO!!! I have Furniture Disease as well ! My chest has dropped into my drawers !
monrein
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Might as well smile
« Reply #1 on: August 17, 2009, 05:36:40 AM »
Rest, regain your strength then come back and fill us in.   :cuddle;
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
Darthvadar
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« Reply #2 on: August 17, 2009, 06:17:16 AM »
KS,

That's a great piece of news... Getting the foot in the door of the hospital you want to be treated at!... Mum was hoping to get to the local hospital, but it never happened...

She used to have the 7am slot too, and she much preferred it (When they tried to change her to 3pm we both nearly hit the roof!)... Mum liked 7am for three reasons... 1. Like yourself, she didn't sleep that well at nights, and was awake early anyway...  2. By being on the first shift, there wasn't the opportunity for delays to happen... People being late arriving, and extra time needed to get people on and off the machines creating hold ups for the following shifts... And 3, she was home by midday... Traffic wasn't as bad at 6am when the taxi picked up, and at about midday when she was dropped home again...

Yes, I'd be prepared to bet that you'll be sleeping like a baby when the alarm goes off in the morning!!!... Shall I send you my spare Rooster Alarm clock???... It crows like a rooster... LOUDLY!... It would wake the flipping dead!...  :rofl;

Keep up the good fight, and don't worry about us... Keep feet as well as chin up in the meamwhile!...

Love and  :grouphug; :grouphug; :grouphug;....

Darth....
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Cared for my late mum, Elsie who had Kidney Failure... Darling mum died on July 15th 2014... May her gentle soul rest in peace....
willowtreewren
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My two beautifull granddaughters

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« Reply #3 on: August 17, 2009, 07:03:29 AM »
This is good news, KS!

Let us know how things continue to improve.

Aleta
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Wife to Carl, who has PKD.
Mother to Meagan, who has PKD.
Partner for NxStage HD August 2008 - February 2011.
Carl transplanted with cadaveric kidney, February 3, 2011. :)
Goofy
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« Reply #4 on: August 17, 2009, 06:14:57 PM »
You're sounding much better.  I hope you get to stay at the place you'd like!
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jessup
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« Reply #5 on: August 17, 2009, 06:28:30 PM »
 :flower;
thinking of you and hope things are getting better for ya mate
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twirl
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« Reply #6 on: August 17, 2009, 07:09:17 PM »
you are  :welcomesign;
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rose1999
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« Reply #7 on: August 17, 2009, 07:37:45 PM »
That's great, you sound more positive.  Yes get your foot in the door and worry about getting the time changed once you can get established there.  Good luck.
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Jean
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« Reply #8 on: August 18, 2009, 12:10:46 AM »
At last, good news for Kickstart. About time too. Rest and get well.
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One day at a time, thats all I can do.
KICKSTART
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« Reply #9 on: August 18, 2009, 10:30:36 AM »
Hi guys , still floored today but guess its going to take a while ! Well the new place was totally different , i was treated so differently , the wait time was so different, just everything about it ! I have begged them today to let me stay there and not send me back to the other hell hole , but they wont tell me yet if i can . They said i was only there for this week up to now as i was being moved around because i was one of the fittest !!
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OH NO!!! I have Furniture Disease as well ! My chest has dropped into my drawers !
okarol
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« Reply #10 on: August 18, 2009, 10:35:17 AM »
 :cuddle; I hope you can continue with the good care.
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
willieandwinnie
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« Reply #11 on: August 18, 2009, 10:36:46 AM »
 :yahoo; Oh KS, I hope things continue to look up for you.  :cuddle;
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"I know there's nothing to it, but I want to know what it is there's nothing to"
Pam
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« Reply #12 on: August 18, 2009, 11:20:18 AM »
K S I'm so glad things are finally looking up for you! I've only been doing this for 4 mos. When they told me to be there at 6:45 am I said No Way!! I have a very hard time going to bed before 1am then get up at 5. But it is working. The best thing with that time frame is I always get in on tine and it doesn't waste the entire day. The worst thing is having to eat that early in the day. But you will adjust and the good days will finally start! 
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cherpep
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« Reply #13 on: August 18, 2009, 12:17:24 PM »
I hope you are feeling better each day and back to yourself real soon.  Keep on kicking! 
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Hanify
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Hadija, Athol, Me and Molly at Havelock North 09
« Reply #14 on: August 18, 2009, 09:10:25 PM »
I think of you every day Kickstart.  I had to do haemo for 4 months when I started dialysis, and felt just like you do.  So I'm sending you every positive thought and prayer and whatever I think will work to help you get through this first awful bit.  Good luck with the hospital change!
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Diagnosed Nov 2007 with Multiple Myeloma.
By Jan 2008 was in end stage renal failure and on haemodialysis.
Changed to CAPD in April 2008.  Now on PD with a cycler.  Working very part time - teaching music.  Love it.  Husband is Paul (we're both 46), daughter Molly is 13.
Wayne
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Martin (the snorer) & Mack (cat w/renal failure)
« Reply #15 on: August 18, 2009, 09:34:32 PM »
Hope it all works out Kickstart!
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Happily Married for 11 Wonderful Years!!! :-)
3/01 diagnosed with fsgs
7/07 listed
4/08 fistula surgery
10/08 pd catheter placed
12/08 started pd
2/09 started hemo
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