I Hate Dialysis Message Board
Off-Topic => Site Requests, Comments, Technical Help. => Topic started by: Sara on July 17, 2006, 07:11:13 PM
-
Have I suggested this before? Maybe have a caretaker/spouses forum?
Oh, and the FAQ forum confuses the heck out of me. Just about every post I see there could/should be in the General Discussion forum, at least in my opinion. Maybe it would be simpler/easier to have a FAQ link with the questions and answers spelled out. For example, What is the difference between hemo and peritoneal dialysis? Answer - blah blah blah. See what I'm saying? I never know whether to post questions in the FAQ forum or the General forum.
Just my 2 cents anyway.
-
Have I suggested this before? Maybe have a caretaker/spouses forum?
Oh, and the FAQ forum confuses the heck out of me. Just about every post I see there could/should be in the General Discussion forum, at least in my opinion. Maybe it would be simpler/easier to have a FAQ link with the questions and answers spelled out. For example, What is the difference between hemo and peritoneal dialysis? Answer - blah blah blah. See what I'm saying? I never know whether to post questions in the FAQ forum or the General forum.
Just my 2 cents anyway.
Yeah to be honest the FAQ section is not really being used how I intended, I will look at some options. When it doubt either section is fine, for now.
Now about the Caretaker/Spouses forum, you know that is not a bad idea. If you could get a few more caretakers/spouses to request it here in this thread and agree it is a good idea. I will see what I can do. :)
-
I am the caretaker of the hubby and he is my caretaker. We are just stuck with each other! it would be a good forum to have.
-
I think it would be an excellent forum to have. Please Epoman, Please :D I'm even doing my best smile!
-
I think the caretaker/spouse section is a really good idea. 8)
willieandwinnie
-
One thing you guys need to be aware of, is that Epoman does not want to start sections that turn into ghosttowns. So if he does start, on your requests, please keep it humming!
We have lots of caregivers and concerned persons on this site, and this could be a very valuable section.
-
One thing you guys need to be aware of, is that Epoman does not want to start sections that turn into ghosttowns. So if he does start, on your requests, please keep it humming!
We have lots of caregivers and concerned persons on this site, and this could be a very valuable section.
I understand that Epoman would have concerns but can we at least try it -- and if it doesn't stay busy just delet it or fold it into the general discussion later? Is that possible?
There are times I consider posting something as a spouse but hesitate because I can't decide how to title it so other spouse/caretakers could identify it as spouse related, and so that others wouldn't waste their time on a spouse related comment/question -- especially when it actually isn't actually anything medical/kidney/dialysis related but does relate to the problems or solutions we now have in our lives because of them.
This site is mushrooming and it is going to become overwhelming for the Newbies if it isn't finely categorized. BUT, at the same time I want to make it as easy as possible on Epoman. I'm not web savvy, but can't too much detail get unwieldy!?!
Anyway, if we get a special place for spouse posts, can there be a sticky w/ general info and tips for getting started as a spouse coping w/ their special circumstances? Something sorta' like:
1) educate yourself about ESRD, but remember to take care of yourself too.
2) acceptance of a chronic disease often goes through stages similar to the grieving process after a death -- be prepared to deal w/ those emotions if they arise.
3) remember the anger may at times be directed at you but they are really angry at the disease/situation
4) remember that you can support, educate, sympathize, and empathize but they are the one going through it and you can't do it for them, and never forget that they are the one who in the end has to make the actual decisions.
5) be sure you have the paperwork necessary to have access to their medical records and understand that you do have the right to advocate for them when they are too ill/tired to do so for themselves
6) be sure you set up a means of keeping track of all appointment/tests/labs
Well, you get the idea. Can we all add to it w/ someone doing edits and rewrites through e-mail, chats, and/or here, until we get a good introduction for spouses dealing w/ these problems??
Wouldn't it be helpful to have a link to the spouse section in the introduction?
Just my thoughts -- feel free to edit, modify, delete. ;D
Lorelle
-
http://ihatedialysis.com/forum/index.php?board=33.0
New section added. :)
-
Thanks!