I Hate Dialysis Message Board
Dialysis Discussion => Dialysis: F.A.Q. (Frequently Asked Questions) => Topic started by: twirl on March 11, 2008, 02:51:36 PM
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please help
HOW DO YOU STAY ON YOUR CORRECT AMOUNT OF FLUIDS
IT IS USUALLY SO HOT HERE IN TEXAS
I CAN HAVE 50 OUNCES/ DAY :-\
TOPIC MOVED to correct section "Frequently Asked Questions" - Bajanne, Moderator
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This is a perennial problem for lots of us. But I find that your 50 oz allowance is not bad at all. I have been having problems restricting my fluids for my 2 ˝ years on haemodialysis. But I do know that it is very necessary to continue to try to restrict them. The end result of too much overload is not pleasant!!
One of the things that is good for me is chewing gum. It keeps me from drinking and recyles the fluid in my body.
You can also try freezing grapes. They can quench your thirst.
Ice chips work fine as well.
I hope others will join this thread and give you some advice.
[Please don't use capital letters. In forums and chats, capital letters are used for shouting]
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Self denial? That seems to be what the docs expect. Gum, hard candy, eat fruit instead of drinking water when you are thirsty. Watch the salt. Measure how much fluid all your glasses hold, and get rid of the big ones. Only pour yourself drinks in tiny glasses. Don't pour yourself a glass with the meal - try eating the whole meal without a glass in front of you. Don't order anything to drink when you go out to eat - the glasses are always too large in a restaurant, and it's too hard to keep from drinking it all. Run a humidifier if the air in your house is dry. I do pretty well most days - sometimes not so much!
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Dad sucks ice cubes, I know it's stilfluid but ithey keep your mouth moist much longer than a drink of the same amount.
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Ice chips -- this is what has worked to quench (somewhat) Marvin's thirst all these years now. Before ESRD, he always had a soft drink or a glass of tea in his hand. It was a difficult adjustment for him to make, but he's so good at watching the fluids now.
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I have a big glass of ice and I like my jelly beans and lemon candies.
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I think she was shouting! :lol; I would be if I could only have 50 oz.
I haven't been placed on fluid restriction, but when I do it's going to be painful! Good Luck!!!
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i basically live on ice blocks but some how still manage to put on at 3 litres between treatments.
try as hard as you can to minimise your fluid intake,if you continually overload, after time you'll notice that you will contract cardiovasascular issues.
it ain't easy but try :thumbup;
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Very tough issue, this is one reason I like home dialysis since I do it more often, there is less of a restriction. Ice is my fav too, and I haven't finished a whole glass of anything in a long time. Worry once I get a transplant I will forget to drink!!
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Very tough issue, this is one reason I like home dialysis since I do it more often, there is less of a restriction. Ice is my fav too, and I haven't finished a whole glass of anything in a long time. Worry once I get a transplant I will forget to drink!!
When Marvin had his transplant, it was drink, drink, drink all the time. They told him to push the fluids then. He would say, "I can't drink that much!"
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50 ounces? What's that around 1500ml a day? I WANT YOUR LIFE!! lol
I make do with about 800-1000ml a day. I think that's 30-35 ounces. I try to keep under 2kg change between sessions (weekends are horrid sometimes!)
I measure very carefully what I take in (or at least keep a rough guestimate) as well as obsess over the home scales to make sure I'm doing OK. I also hang out in the sauna once or twice a week which helps to sweat out another 500-600ml if I feel that need.
I think of it ias "no pain, no gain" sort of thing. When I see guys come in 7kg over (!) between sessions they may have enjoyed their drinkies, but they're screwing with their LIVES (heart/lungs) doing that...
I know WHEN my transplant time arrives I will drink back everything I'm missing out on now.. and then some...
but right now I'd love a nice hot cup of tea.... alas... no can do!
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I know WHEN my transplant time arrives I will drink back everything I'm missing out on now.. and then some...
but right now I'd love a nice hot cup of tea.... alas... no can do!
Hang in there, RichardMel! Your time is coming -- I just know it!
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please help
HOW DO YOU STAY ON YOUR CORRECT AMOUNT OF FLUIDS
We find that awareness is very important. We have a one liter bottle that we fill after dialysis. Each time Rolando gets a drink, the same amount comes out of the bottle. (2 bottles/interval weekdays, 3 bottles/interval weekends, averaging 1 liter a day). Without this, we find that we underestimate (sometimes by quite a bit) his fluid intake. This, coupled with a couple of breathless nights after a hard drinking weekend helps keep us on track.
Alene
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it has been suggested to me to eat popsicles but I find that I am thirstier after eating one
I wish they had a plain water popsicle on a stick that was the same consistency as a popsicle and just as easy to eat
it is not ice because it could be eaten like a popsicle and no after taste
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Try freezing grapes. That will help with thirst!! They are really good.
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They have popsicle molds with the sticks , than you can just do the water.
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and dont forget-really cutting your salt intake makes it easier too
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I drink iced tea and it works as kind of a natural diuretic or me. I seldom gain between treatments and, when I do, it's usually less than 0.5 kilo.
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Sugar, salt and caffeine can trigger thirst.
Best thing to do is start exercising IMO.
It helps eliminate excess fluid and salt through sweating and also helps eliminate some toxins. Side benefit it helps with the washed out feeling and gives one more energy.
IMO it is this excess of toxins that also contributes to excessive thirst in the dialysis population.
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Sugar, salt and caffeine can trigger thirst.
Best thing to do is start exercising IMO.
It helps eliminate excess fluid and salt through sweating and also helps eliminate some toxins. Side benefit it helps with the washed out feeling and gives one more energy.
IMO it is this excess of toxins that also contributes to excessive thirst in the dialysis population.
[/IMOSugar, salt and caffeine can trigger thirst.
Best thing to do is start exercising IMO.
It helps eliminate excess fluid and salt through sweating and also helps eliminate some toxins. Side benefit it helps with the washed out feeling and gives one more energy.
IMO it is this excess of toxins that also contributes to excessive thirst in the dialysis population.
IMO, this is the best advice. Salt, sugar makes you thirsty along with high creatine and urea levels and exercise is always a good thing.
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I drink iced tea and it works as kind of a natural diuretic or me. I seldom gain between treatments and, when I do, it's usually less than 0.5 kilo.
I love ice cold unsweeten tea how much do you drink per day
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I drink iced tea and it works as kind of a natural diuretic or me. I seldom gain between treatments and, when I do, it's usually less than 0.5 kilo
WOW that's a very low gain, I consider a gain of 2.5kilo good
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I try to stick to my 40 oz. limit but sometimes exceed it. It's not unusual or me to actually gain a little bit while I'm dialyzing. My session starts about 11:30 so I usually take lunch in with me so that's probably the reason.
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I drink hot tea but I don't think that helps with anything except gaining fluid weight :(
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If you are doing 5 hr. sessions, you probably have little or no urine output. I feel very fortunate to still be peeing. I feel so much better when no weight comes off.
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Hi, I'm still having pronlems coming in 5-6 kilos over my dry wieght. I have come in 10 over before. Those are the days I pay for it with cramps. I try to tell them as soon as I begin to feel the cramps coming. Some days I dont feel the cramp until its time to get off the machine. As soon as I sit up my stomach cramps.
All your suggestions sound good. I've tried drinking a measured amount all day and end up drinking it all that morning. I think I'm goiung to try the pop ciclce and see if that will help. If I had been a exercise type of person, I wouldn't be in the condition I'm in now. :rofl;.
Later BD
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BigDadii,
Do you have any kidney function left? In other words, do you still pee?
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I still pee... maybe 100ml a day.. 200ml on a good day (actually the last few days a little more has been coming out.. be still my beating heart lol). I have a eGFR of 6 (bleah). I might try some iced tea on the way home and see if it helps any..... if I could drink something like that that would help that would be awesome :)
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Make sure you put lemon juice in your iced tea. I think that is the critical ingredient. I even add it to my water bottles now.
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i have found i drink more if i have juice or soda, therefore unless i eat out i only have water. if i find myself extra thirsty i have ice water. i've tried frozen grapes, but don't like them. sour candies work well. something high in sugar or salt will make you thirsty.
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Well, I am SO PROUD of myself. I went to dialysis yesterday with .8 kg on!!! :yahoo; :yahoo; :yahoo; :yahoo; I notice that I drink much less when my day is full of activity.
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.8 wow did you drink anything and what did you eat during the day
I'd like to challenge myself and follow what you did
I know I'll fail but I'd like to try
do you know how to make font bigger that A is not working for me
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Well, I am SO PROUD of myself. I went to dialysis yesterday with .8 kg on!!! :yahoo; :yahoo; :yahoo; :yahoo; I notice that I drink much less when my day is full of activity.
When you have a day such as this do you still have to stay on the machine for 3+ hrs or do they regulate your time depending on your gain? :thx;
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One time I went in 0.6kg over which freaked me out because I had about half a bottle of wine the night before!! LOL. That was sweet!! Usually I am about 2kg over...
Definitely when you work hard and have things to distract you the thought to drink is less.. Sometimes I work all afternoon and am so busy I forget to be thirsty and realise in the evening that I haven;t had anything to drink...
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I have found that dinking alcohol does reduce the fluid buildup.
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Well, I am SO PROUD of myself. I went to dialysis yesterday with .8 kg on!!! :yahoo; :yahoo; :yahoo; :yahoo; I notice that I drink much less when my day is full of activity.
When you have a day such as this do you still have to stay on the machine for 3+ hrs or do they regulate your time depending on your gain? :thx;
The standard in-clinic machines run the same length of time regardless of how much or little fluid you have on. The time is your prescription. (If you have a huge gain, they will make you run extra sessions to get it off, though. Most clinics have a set maximum amount they will take off in one session. My clinic won't take off more than 6 liters a session.)
NxStage calculates their runs differently - you have to process a certain amount of dialysate fluid - my prescription is 20 L. The less fluid you have on, the shorter the run time. If I gain less than .6, then my run is about 2 hours, 10 minutes. Over 2 - it's about 2 hrs, 30 minutes. It varies depending on my fluid gain.
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I have found that dinking alcohol does reduce the fluid buildup.
oooh a reason to drink MORE wine!!!! :)
(just kidding!)
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If it reduces your fluid buildup, why not? Dialysis feels good when you don't have any fluid to pull off.
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If it reduces your fluid buildup, why not? Dialysis feels good when you don't have any fluid to pull off.
really, what part of the body does it feel good in, certainly not the arm
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:oops; I forgot to add that someone told me to get a spray bottle and keep in by my bed at night and when I wake up with dry mouth, spray
my mouth....trying it tonight..... I am placing little ice pieces from Sonic and letting it melt....got a little spray bottle
I might spray my cat... :rofl; or my husband--- he only sleeps in socks :urcrazy;
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Sorry, but when you don't have excess fluid to pull off, you feel much better after dialysis. No cramps, no nausea, no low bp. It works for me.
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I just bought this gum called Quench from Dick's Sporting Goods. Baseball season and it helps keep your mind on the game and not how hot and thirsty you are.
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I have found that 1 bottled water (.5L, .9 FL oz) adds about a half a kilo of weight.
So i try to limit myself to 6 waters bottle a day. I do fine with 2-3 though.
In a hot place you should sweat out about 2 cups a day (approx .2L) more if your active.
Maybe if you look at the numbers and do some math you can control your thirst level
a bit more?
But Im aware sometimes nothing helps when your just hot and thirsty.
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I have found that 1 bottled water (.5L, .9 FL oz) adds about a half a kilo of weight.
So i try to limit myself to 6 waters bottle a day. I do fine with 2-3 though.
Hold on am I reading this right? You drink 3L (6x500ml) of water a day and still are OK with the fluids in terms of dialysis? wow!!
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I drink quite a bit myself but I still have good urine output. I guess as long as I don't have any fluid gain, I won't worry about it.
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sorry, i forgot to mention im on the NxStage 6 short treatments a week.
but while i was in center i could have 3x500ml a day and be fine.
no urine output either.
Maye cuz i try to stay active and burn it off?????
I walk and do chores as much as i can.
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Maye cuz i try to stay active and burn it off?????
I walk and do chores as much as i can.
A good workout you can lose almost a litre of fluid.
8)
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Don't know if this helps but my son fixes himself a snowcone. Mainly fine ice. Seems to keep him from going over 48 ounces.
Lori/Indiana
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:yahoo; :2thumbsup; :rofl; :clap; :beer1; :thx; :bandance;
Really?! Is it alright to drink alcohol while on Dialysis? If alcohol leaves you with less fluid, I'm willing to try it. Which does better...beer or wine.
Flip...I still pee but its not a lot.
I've tried popcycles and they seem to help but sometime I still lose control. Don't like exercise...I agree activity and or sleep helps.
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I still drink alcohol with no problems and no objections from the staff. It does reduce fluid gain because it tends to dehydrate. I'm not diabetic nor do I take any meds that might interact. Beer is fairly high in potassium. I usually stick with red wine or vodka and cranberry juice. Most people think I'm crazy (maybe I am) but it works for me.
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Sounds good to me as long as we don't overdue it. :wine;
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I'll take Jack on the rocks.
8)
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My last two sessions I arrived with only .9kg on. These days are very hot and I perspire a lot. I am also losing weight because I have changed my diet and only use fish as meat (and a cow heel soup on Fridays after dialysis).
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:sluff; O0
Popsicles are working when I eat them instead of drinking 4 Oz's each time I go in the kitchen. 1 to 2 oz vs 4oz is better. I still didn't get a go on beer. I think I'll try it any way. :shy;
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Bajanne....what in the hell is cow heel soup?
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:yahoo; :2thumbsup; :rofl; :clap; :beer1; :thx; :bandance;
Really?! Is it alright to drink alcohol while on Dialysis? If alcohol leaves you with less fluid, I'm willing to try it. Which does better...beer or wine.
Flip...I still pee but its not a lot.
Like Flip says, alcohol tends to dehydrate, but only if you pee! Any diminishing of output due to loss of kidney function messes with the equation. Someone with normal function will become dehydrated by drinking. Someone with no function will become overloaded, just like with any other beverage. Those with diminished function will be somewhere in between. Please take care when making these decisions.
Alene
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Bajanne....what in the hell is cow heel soup?
me too
what the hey?
can I use long horn heel
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:yahoo; :2thumbsup; :rofl; :clap; :beer1; :thx; :bandance;
Really?! Is it alright to drink alcohol while on Dialysis? If alcohol leaves you with less fluid, I'm willing to try it. Which does better...beer or wine.
Flip...I still pee but its not a lot.
Like Flip says, alcohol tends to dehydrate, but only if you pee! Any diminishing of output due to loss of kidney function messes with the equation. Someone with normal function will become dehydrated by drinking. Someone with no function will become overloaded, just like with any other beverage. Those with diminished function will be somewhere in between. Please take care when making these decisions.
Alene
Thank you, Alene, for bringing that important point out.
8)
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Personally I've found wine is a little better in terms of the dehydration over beer... plus I find drinking beer adds to my weight :( I think the wine issue is due to the higher alc %/vol. I don't recommend overdoing any sort of booze though as that's bad for you in other ways - not even thinking about ESRD.
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:clap; :grouphug; :bestwishes; :yahoo; :2thumbsup; ::) :big hug: :usaflag; :wine; :wine; :wine; O0 :wine; :wine; :sluff; :sluff; :sluff; :big hug: :angel; ;musicalnote;
Thank you Alene for that reminder. I will take that into advisement. I agree that beer will add to my weight. I tend to pee more once I've gone over my limit. I don't plan to drink till I'm drunk. :( I'm over doing that for fun. One more question though. Are you drinking wine as your only fluid intake or are you drinking wine along with other fluids.
Thanx
BigDadii
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:o ::) >:D
50 Oz's a day...wow. I can drink 40 Oz's/day. Yes it is very hard. All the suggestions above are good. But I have had some success with popcycles. You can find a variety at Walgreens and you can get non-name brands at Wal-Mart. Keep trying until you get it right.
BD
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BigDadii I find that flavored popcycles leave me with a thirsty taste
8) :pics;
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But I have had some success with popcycles. You can find a variety at Walgreens and you can get non-name brands at Wal-Mart. Keep trying until you get it right.
I love the original "popsicles."
http://www.popsicle.com/history/
They really help on those hot days to cool my insides quickly.
I also use seltzer to help keep me from drinking too much.
8)
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I find the diet soda Popsicles by Popsicle brand to be thirst quenching.
http://www.popsicle.com/products/individual/index.cfm?upc=02224
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I find the diet soda Popsicles by Popsicle brand to be thirst quenching.
http://www.popsicle.com/products/individual/index.cfm?upc=02224
YUM and cool.
:)
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I find the diet soda Popsicles by Popsicle brand to be thirst quenching.
http://www.popsicle.com/products/individual/index.cfm?upc=02224
YUM and cool.
:)
Zach!!!! 26 yrs?!?!?!? :2thumbsup; :yahoo; :thumbup; :clap; :bandance; ;D :bow;
Wow... you have given me new hope. :thx;
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Zach!!!! 26 yrs?!?!?!? :2thumbsup; :yahoo; :thumbup; :clap; :bandance; ;D :bow;
Wow... you have given me new hope. :thx;
BigDadii, to life!
:beer1;
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All jokes aside, one thing that helps me is sparkling water. I buy it at Kroger in 12 oz cans. It's nothing but carbonated water. I mix in a teaspoon of frozen fruit juice concentrate (cranberry is my favorite)along with crushed ice. It's like a sparkling fruit juice at a fraction of the cost and it really quenches the thirst.
Also, a friend of mine bought a snow cone maker on Ebay for a cheap price. It works great and keeps fluid gain to a minimum.
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In a similar vein, I like low-sodium or no-sodium soda water with fresh lime. No sugar. It makes me drink slowly because of the tartness and really quenches my thirst. :beer1;
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You also forget , that if you are on the treadmill for 30 minutes , you will lose fluid . Usually I lose .5-.6 , and on top of that , when your sleeping , you also lose fluid through the mouth because your breathing it off. If I weigh myself before bed time and I weigh 48.5 , the next day I'll weigh 48 , and sometimes I'll go as far as to lose 1.3 pounds