BigDadii
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« Reply #25 on: April 13, 2008, 09:18:22 PM » |
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Hi, I'm still having pronlems coming in 5-6 kilos over my dry wieght. I have come in 10 over before. Those are the days I pay for it with cramps. I try to tell them as soon as I begin to feel the cramps coming. Some days I dont feel the cramp until its time to get off the machine. As soon as I sit up my stomach cramps. All your suggestions sound good. I've tried drinking a measured amount all day and end up drinking it all that morning. I think I'm goiung to try the pop ciclce and see if that will help. If I had been a exercise type of person, I wouldn't be in the condition I'm in now.  . Later BD |
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I can do anything through Christ Jesus
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« Reply #26 on: April 13, 2008, 11:29:05 PM » |
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BigDadii,
Do you have any kidney function left? In other words, do you still pee?
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That which does not kill me only makes me stronger - Neitzsche
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RichardMEL
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« Reply #27 on: April 16, 2008, 12:46:14 AM » |
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I still pee... maybe 100ml a day.. 200ml on a good day (actually the last few days a little more has been coming out.. be still my beating heart lol). I have a eGFR of 6 (bleah). I might try some iced tea on the way home and see if it helps any..... if I could drink something like that that would help that would be awesome  |
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 3/1993: Diagnosed with Kidney Failure (FSGS) 25/7/2006: Started hemo 3x/week 5 hour sessions  27/11/2010: Cadaveric kidney transplant from my wonderful donor!!! "Danny" currently settling in and working better every day!!! BE POSITIVE * BE INFORMED * BE PROACTIVE * BE IN CONTROL * LIVE LIFE! |
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« Reply #28 on: April 16, 2008, 08:50:16 AM » |
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Make sure you put lemon juice in your iced tea. I think that is the critical ingredient. I even add it to my water bottles now.
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That which does not kill me only makes me stronger - Neitzsche
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thegrammalady
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« Reply #29 on: April 16, 2008, 10:53:29 AM » |
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i have found i drink more if i have juice or soda, therefore unless i eat out i only have water. if i find myself extra thirsty i have ice water. i've tried frozen grapes, but don't like them. sour candies work well. something high in sugar or salt will make you thirsty.
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s
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If you can smile when things go wrong, you have someone in mind to blame.
Lead me not into temptation, I can find it myself.
Life isn't about waiting for the storm to pass, it's about learning how to dance in the rain.
Some mistakes are too much fun to only make once.
Meddle Not In The Affairs Of Dragons
For You Are Crunchy And Taste Good With Ketchup
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Bajanne
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« Reply #30 on: April 17, 2008, 07:04:48 AM » |
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"To be found in Him, not having a righteousness of my own ...but that which is based on faith" I LOVE my IHD family!  |
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« Reply #31 on: April 17, 2008, 07:19:35 AM » |
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.8 wow did you drink anything and what did you eat during the day
I'd like to challenge myself and follow what you did
I know I'll fail but I'd like to try
do you know how to make font bigger that A is not working for me
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kellyt
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« Reply #32 on: April 17, 2008, 12:00:48 PM » |
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1993 diagnosed with glomerulonephritis. Oct 41, 2007 - Got fistula placed. Feb 13, 2008 - Activated on "the list". Nov 5, 2008 - Received living donor transplant from my sister-in-law, Etta. Nov 5, 2011 - THREE YEARS POST TRANSPLANT!  |
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RichardMEL
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« Reply #33 on: April 18, 2008, 02:37:12 AM » |
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One time I went in 0.6kg over which freaked me out because I had about half a bottle of wine the night before!! LOL. That was sweet!! Usually I am about 2kg over...
Definitely when you work hard and have things to distract you the thought to drink is less.. Sometimes I work all afternoon and am so busy I forget to be thirsty and realise in the evening that I haven;t had anything to drink...
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3/1993: Diagnosed with Kidney Failure (FSGS) 25/7/2006: Started hemo 3x/week 5 hour sessions 27/11/2010: Cadaveric kidney transplant from my wonderful donor!!! "Danny" currently settling in and working better every day!!! BE POSITIVE * BE INFORMED * BE PROACTIVE * BE IN CONTROL * LIVE LIFE!
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« Reply #34 on: April 18, 2008, 10:31:49 AM » |
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I have found that dinking alcohol does reduce the fluid buildup.
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That which does not kill me only makes me stronger - Neitzsche
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jbeany
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« Reply #35 on: April 18, 2008, 01:08:46 PM » |
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"Asbestos Gelos" (As-bes-tos yay-lohs) Greek. Literally, "fireproof laughter". A term used by Homer for invincible laughter in the face of death and mortality. |
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RichardMEL
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« Reply #36 on: April 18, 2008, 05:57:21 PM » |
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I have found that dinking alcohol does reduce the fluid buildup.
oooh a reason to drink MORE wine!!!! (just kidding!) |
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3/1993: Diagnosed with Kidney Failure (FSGS) 25/7/2006: Started hemo 3x/week 5 hour sessions 27/11/2010: Cadaveric kidney transplant from my wonderful donor!!! "Danny" currently settling in and working better every day!!! BE POSITIVE * BE INFORMED * BE PROACTIVE * BE IN CONTROL * LIVE LIFE!
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flip
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« Reply #37 on: April 18, 2008, 06:58:51 PM » |
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If it reduces your fluid buildup, why not? Dialysis feels good when you don't have any fluid to pull off.
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That which does not kill me only makes me stronger - Neitzsche
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twirl
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« Reply #38 on: April 19, 2008, 03:19:32 PM » |
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If it reduces your fluid buildup, why not? Dialysis feels good when you don't have any fluid to pull off.
really, what part of the body does it feel good in, certainly not the arm |
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twirl
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« Reply #39 on: April 19, 2008, 03:24:21 PM » |
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 I forgot to add that someone told me to get a spray bottle and keep in by my bed at night and when I wake up with dry mouth, spray my mouth....trying it tonight..... I am placing little ice pieces from Sonic and letting it melt....got a little spray bottle I might spray my cat... or my husband--- he only sleeps in socks  |
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« Reply #40 on: April 19, 2008, 08:32:16 PM » |
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Sorry, but when you don't have excess fluid to pull off, you feel much better after dialysis. No cramps, no nausea, no low bp. It works for me.
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That which does not kill me only makes me stronger - Neitzsche
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ODAT
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Nala - Mom's Cat
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« Reply #41 on: May 14, 2008, 11:25:41 AM » |
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I just bought this gum called Quench from Dick's Sporting Goods. Baseball season and it helps keep your mind on the game and not how hot and thirsty you are.
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As is your sort of mind, so is your sort of search: you will find what you desire.
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migaguiar
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Step back. Im full of toxins.
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« Reply #42 on: May 14, 2008, 03:47:36 PM » |
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I have found that 1 bottled water (.5L, .9 FL oz) adds about a half a kilo of weight.
So i try to limit myself to 6 waters bottle a day. I do fine with 2-3 though.
In a hot place you should sweat out about 2 cups a day (approx .2L) more if your active.
Maybe if you look at the numbers and do some math you can control your thirst level
a bit more?
But Im aware sometimes nothing helps when your just hot and thirsty.
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"All we are is dust in the wind," dude. Bill and Ted's Excellent Adventure http://ihaveesrd.blogspot.com/Alports @ age 19 hemo in center 4 months 20 paternal kidney transplant 14 years Present 1 1/2 yr PD 4 month in center now 6 months @ home NxStage Daily Soon Nocturnal! |
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RichardMEL
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« Reply #43 on: May 16, 2008, 01:12:17 AM » |
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I have found that 1 bottled water (.5L, .9 FL oz) adds about a half a kilo of weight.
So i try to limit myself to 6 waters bottle a day. I do fine with 2-3 though.
Hold on am I reading this right? You drink 3L (6x500ml) of water a day and still are OK with the fluids in terms of dialysis? wow!! |
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3/1993: Diagnosed with Kidney Failure (FSGS) 25/7/2006: Started hemo 3x/week 5 hour sessions 27/11/2010: Cadaveric kidney transplant from my wonderful donor!!! "Danny" currently settling in and working better every day!!! BE POSITIVE * BE INFORMED * BE PROACTIVE * BE IN CONTROL * LIVE LIFE!
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flip
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« Reply #44 on: May 16, 2008, 02:56:30 AM » |
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I drink quite a bit myself but I still have good urine output. I guess as long as I don't have any fluid gain, I won't worry about it.
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That which does not kill me only makes me stronger - Neitzsche
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migaguiar
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Step back. Im full of toxins.
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« Reply #45 on: May 16, 2008, 10:44:05 AM » |
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sorry, i forgot to mention im on the NxStage 6 short treatments a week. but while i was in center i could have 3x500ml a day and be fine. no urine output either. Maye cuz i try to stay active and burn it off?  ? I walk and do chores as much as i can. |
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"All we are is dust in the wind," dude. Bill and Ted's Excellent Adventure http://ihaveesrd.blogspot.com/Alports @ age 19 hemo in center 4 months 20 paternal kidney transplant 14 years Present 1 1/2 yr PD 4 month in center now 6 months @ home NxStage Daily Soon Nocturnal! |
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Zach
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« Reply #46 on: May 16, 2008, 10:51:24 AM » |
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Maye cuz i try to stay active and burn it off??
I walk and do chores as much as i can.
A good workout you can lose almost a litre of fluid.  |
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Uninterrupted in-center (self-care) hemodialysis since 1982 -- 34 YEARS on March 3, 2016 !! ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~ No transplant. Not yet, anyway. Only decided to be listed on 11/9/06. Inactive at the moment.  I make films. Just the facts: 70.0 kgs. (about 154 lbs.) Treatment: Tue-Thur-Sat 5.5 hours, 2x/wk, 6 hours, 1x/wk Dialysate flow (Qd)=600; Blood pump speed(Qb)=315 Fresenius Optiflux-180 filter--without reuse Fresenius 2008T dialysis machine My KDOQI Nutrition (+/ -): 2,450 Calories, 84 grams Protein/day. "Living a life, not an apology." |
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Lori1851
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This is me Lori , Dustin's mom
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« Reply #47 on: May 16, 2008, 02:33:43 PM » |
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Don't know if this helps but my son fixes himself a snowcone. Mainly fine ice. Seems to keep him from going over 48 ounces.
Lori/Indiana
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BigDadii
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« Reply #48 on: May 21, 2008, 01:51:41 PM » |
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I can do anything through Christ Jesus
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« Reply #49 on: May 21, 2008, 04:14:51 PM » |
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I still drink alcohol with no problems and no objections from the staff. It does reduce fluid gain because it tends to dehydrate. I'm not diabetic nor do I take any meds that might interact. Beer is fairly high in potassium. I usually stick with red wine or vodka and cranberry juice. Most people think I'm crazy (maybe I am) but it works for me.
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That which does not kill me only makes me stronger - Neitzsche
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