I Hate Dialysis Message Board
Introduction => Introduce Yourself => Topic started by: mark j on August 14, 2005, 10:13:59 AM
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Hey all
My name is Mark I was diagnosed with PKD in 1989 and my kidneys have been slowly failing to the point where this week I started dialysis, so I'm somewhat new to this change in my life. I have been on the kidney transplant list since december. I still feel pretty good (except for fatigue) and have been able to keep working( Self employed 10=12 hrs/day) Glad to have a site where I can communicate with others in the same boat!!
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Hey all
My name is Mark I was diagnosed with PKD in 1989 and my kidneys have been slowly failing to the point where this week I started dialysis, so I'm somewhat new to this change in my life. I have been on the kidney transplant list since december. I still feel pretty good (except for fatigue) and have been able to keep working( Self employed 10=12 hrs/day) Glad to have a site where I can communicate with others in the same boat!!
Welcome a board Mark glad your here I hope you visit us often. I made this place so people like us can come and get the truth about dialysis and rant or vent their frustrations. Bottomline is dialysis/kidney failure sucks, we make the best of our lives and most of us try to stay postive but I/we still hate dialysis and that's why this site is here. I'm glad you joined and I look forward to your future posts. Welcome.
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hello Mark.I'm sorry to hear you just started dialysis.Remember the more time you spend on the machine the better you will feel.I was going to a dialysis unit and recieving 12 hrs of treatment.my blood work and quality of life were suffering.I then decided to up y hours to 18 hrs a week(6 times a week for 3hrs each time).I was amazed at how well I felt. Better energy.less fatique,and most of all less fluid restriction.I lasted four years working, on 12 hrs a week.I was a framer(house builder)Because of fragile skin ,loss of muscle mass,and increased fatique I had to give up my job.It has been Two years now ,my job now Is looking after my health,and be ready for a transplant.I have just started Nocturnal Dialysis September 1st.I am getting 35-40 hrs a week of dialysis now.I am cleaning 135liters a night.Waiting for the new diet no fluid resriction, and more energy.I could help with any questions you might have.Sincerly 6yr Vet. ;D
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Hi Mark,
I've been on PD for 18 months now. I still work full-time at a very physically demanding job. I still have all my energy except for those occasions when my hemoglobin has dropped (has only happened twice in June this year.) I knew something wasn't right. You get to know your body real well, so I called my nurse. She drew my blood, and as soon as she got the results that afternoon she told me that I had dropped from 12.2 to 10.5 It was taken care immediately with 60mcg of ARANESP. I was back to "normal" in a couple of days.
Of course lack of energy can be attributed to so many things. In my case it was due to low hemoglobin.
Take care and God bless!
Marina :)