I Hate Dialysis Message Board
Dialysis Discussion => Dialysis: General Discussion => Topic started by: Sugarlump on October 18, 2014, 12:37:43 AM
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I have been pushing for home haemo for 2 years. my partner has trained up to a certain leve (lining machine, programming, running during dialysis)l but then I got sick, then I had line problems, then I had heart problems but
things have stabilised and we restarted training.
This week he started needling me (under guidannce) First day bottom needle, second day top needle, third day top needle (my bottom one can be a little tough to push needle through!)
I am so proud of my partner. Three years ago,a blood test would make him feel faint!!!
And when he gets the needles in he is really quite gentle!!! all those hours of watching me be put on weren't wasted.
One baby step nearer getting home Yay :cuddle;
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Well done Sugar and partner!
I do hope you are ready for home haemo soon and I do wish you both very good luck!
Best wishes from Kristina.
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I have been pushing for home haemo for 2 years. my partner has trained up to a certain leve (lining machine, programming, running during dialysis)l but then I got sick, then I had line problems, then I had heart problems but
things have stabilised and we restarted training.
This week he started needling me (under guidannce) First day bottom needle, second day top needle, third day top needle (my bottom one can be a little tough to push needle through!)
I am so proud of my partner. Three years ago,a blood test would make him feel faint!!!
And when he gets the needles in he is really quite gentle!!! all those hours of watching me be put on weren't wasted.
One baby step nearer getting home Yay :cuddle;
Good job. Keep up the good work. Soon it will be routine.
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Fantastic news!!!! Real proud of you both
:yahoo; :cheer:
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Any reason why you cannot cannulate yourself? It is empowering.
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As much as I admire your accomplishment I must admit I admire your partners more I imagine it is tough to stick that large needle in someone you care for. However it appears you both are doing well so :beer1; to you both.
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Any reason why you cannot cannulate yourself? It is empowering.
No I can't because it is a high up (about 4 and 5 inches above the elbow on the inside of my left arm.) I can't get the angle right >:(
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As much as I admire your accomplishment I must admit I admire your partners more I imagine it is tough to stick that large needle in someone you care for. However it appears you both are doing well so :beer1; to you both.
Oh I do too ... he is a star. When we first met, I was five months on from having a transplant and relatively fit and well. Five months later, it all went rapidly downhill as my transplant failed from antibody rejection.
He could have walked then...or bailed out in the face of so much hospital treatment and procedures and my poor health. He didn't. He stuck it out through thick and thin, and even when I caught a MSSA infection and was extremely poorly, needing 24 hour care, he was still there. Always cheerful and supportive. Doing everything that needed to be done.
He volunteered to train up straight away when we had to recommence dialysis and volunteered his kidney too. I am not yet back on list (due to ill health) and it unlikely to be good enough match but we might be able to go onto the swopsies list ... finding me a very close match may be very difficult.
I tell him everyday how much I love him.
He taught me what real love is by his actions.
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You are both very lucky to have met each other...
and your relationship sounds like a very rare one these days...
I agree with you that it is the (often practical) actions that count so much...
... I do wish you both many happy years together,
and I send you my best wishes, Kristina.
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How very exciting, I am just learning my needling now also. I am doing myself, and so far have had about three sucesses, somedays just don't want to work for me, but I suspect that will end as my fistula continues to develop. I am very happy for you and your partner, we are all getting closer to home! Ted
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One thing I have learnt with my fistula is two days are never the same, sometimes the needles slide in easy and other days, it can be tough and require quite a bit of pressure and absolutely correct angle of the needle to go in. Also my fistula direction subtly changes :)
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Any reason why you cannot cannulate yourself? It is empowering.
No I can't because it is a high up (about 4 and 5 inches above the elbow on the inside of my left arm.) I can't get the angle right >:(
My husband can relate to that. His fistula is in the same place as yours. He says it's hard because it's like having to look at something with your head upside down. From his view, what looks "left" to him looks "right" from my viewpoint. That's why I use my hand to help guide his, kind of like doing a "tandem stick".
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Oh Bravo to you both..
At some point I'll have to train for a new machine (Fres) as that's what they use at the unit I'll be going to, if and when I relocate to live with my partner:) Its gonna be scary, and she's willing to be involved in my care, not needling (I've been doing that on and off since I was 10!) but its still going to be a HUGE step for us both..
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I kind of like the fact that we share the dialysis, not literally of course, but by him being fully involved.
Its become our dialysis rather than my dialysis.
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Update : Drew is now getting both needles in and we are waiting for home visit from Home Therapy Manager Electrician and Plumber to work out where machine will go and sort out water softener...
Getting closer to reality....
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Update : Drew is now getting both needles in and we are waiting for home visit from Home Therapy Manager Electrician and Plumber to work out where machine will go and sort out water softener...
Getting closer to reality....
Great news. You will love home hemo.