I Hate Dialysis Message Board

Dialysis Discussion => Dialysis: General Discussion => Topic started by: jpearce on August 07, 2009, 01:42:49 PM

Title: Bad "D" Day
Post by: jpearce on August 07, 2009, 01:42:49 PM
 I started dialysis around 8 am this morning, at 9 am my line starts pulling. I can feel where the line is trying to suck up the flow, it starts to pulsate visibly. This has been happening for 3 weeks now. They can't get much fluid off cause my blood volume drops to 60% within the first hour. The Dr. tells me I must of put body weight on I says no, I know I'm drinking 1.5 Lt daily, and if their only getting 2.9 off it all adds up.  The Dr. has increased my dry weight 2.8kilos and now I feel like crap, my belly is swollen out I lose my breath faster, no energy whatsoever. What do you do when they can't get at the fluid?
Title: Re: Bad "D" Day
Post by: monrein on August 07, 2009, 01:54:35 PM
How's your sodium intake? 
Title: Re: Bad "D" Day
Post by: twirl on August 07, 2009, 02:00:15 PM
I ended in the hospital with conjestive heart failure when they were not getting enough fluid off -
I felt no engery -- tired -- hard to walk very far -- and swollen feet
so be careful
Title: Re: Bad "D" Day
Post by: LightLizard on August 07, 2009, 02:19:58 PM
i know it's difficult, but for a while you might benefit from cutting back on your fluid intake. from 1.5 liters to one liter, for instance. and make absolutely sure that any food you consume is sodium-free.
Title: Re: Bad "D" Day
Post by: KICKSTART on August 07, 2009, 02:34:33 PM
I agree you need to cut back on the fluid for a while.
Title: Re: Bad "D" Day
Post by: jpearce on August 07, 2009, 02:45:00 PM
I'll try to cut back on the fluid, everything else reads normal. I follow a low sodium diet and feel good other then being so heavy laden with the fluid. Thank you for all your input
Title: Re: Bad "D" Day
Post by: jbeany on August 07, 2009, 05:41:41 PM
Exercise can help increase your circulation, and that can make it easier to pull fluid.

If you still have periods, your hormones are going to make you retain fluid once a month that no amount of dialysis can pull off, too.  I usually have to add .3 to .5 to my dry weight for a week, then drop back down after.
Title: Re: Bad "D" Day
Post by: RightSide on August 07, 2009, 08:01:58 PM
I'll try to cut back on the fluid, everything else reads normal. I follow a low sodium diet and feel good other then being so heavy laden with the fluid. Thank you for all your input
I found that when I cut my sodium intake below 1,000 mg a day, it made managing fluid much, much easier.  Now my sodium intake is only 800 mg a day, if that.
Title: Re: Bad "D" Day
Post by: Rerun on August 08, 2009, 02:44:44 AM
Sweat it off.  Either exercise or try sitting in a sauna for a few minutes.  I go sit in my hot car but I know that is probably not a good suggestion.

                                                                :waving;

You might ask your clinic or doctor for an extra day on dialysis only pulling fluid.  I think they call it a PUFF.