Around the corner

[dkerr]

Saw my kidney doc today.  He said we were only waiting for my fistula to mature before starting dialysis.  Also could wind up starting before if necessary.

[Orange County Ca]

Are you on the transplant list.  There is no reason to wait.

[dkerr]

I went through pre-transplant testing.  They won't even put me on the list unless I have surgery and have both kidneys removed.  Then they'll put me on the list.  I also have a strong family history of cancer, which makes me leary. 

[Rerun]

Don't start until you have to.  It is not like there will be a trial period.  Once you are on you're on unless you quit.  Just enjoy your free time right now and don't worry we will help you through it.

                                                                                   

[devon]

Keep on keeping on DKerr!   

-Devon

[TynyWonder]

I went through pre-transplant testing.  They won't even put me on the list unless I have surgery and have both kidneys removed.  Then they'll put me on the list.  I also have a strong family history of cancer, which makes me leary. 

I  am a little late in reading this thread sorry..............but is it because of the family history of cancer that they will not put you on the list before your kidneys are removed?   I find that a little strange as I just went for my transplant consult and they told us, they leave the "old" kidneys in when they do a transplant so, why are they wanting to remove yours, do you know?............you have my curiosity up..........

[willieandwinnie]

TynyWonder

Nephrectomy has many indications, for both simple and radical approaches.

A simple nephrectomy is indicated in patients with irreversible kidney damage due to symptomatic chronic infection, obstruction, calculus disease, or severe traumatic injury. Simple nephrectomy is also indicated to treat renovascular hypertension due to noncorrectable renal artery disease or severe unilateral parenchymal damage caused by nephrosclerosis, pyelonephritis, reflux dysplasia, or congenital dysplasia of the kidney.

Radical nephrectomy is the treatment of choice for localized renal cell carcinoma (RCC). In certain circumstances, radical nephrectomy is also indicated to treat locally advanced RCC and metastatic RCC.

With the advent and increasingly mainstream use of abdominal CT scanning and ultrasound imaging in recent years, incidental detection of RCC has increased in asymptomatic patients. Currently, 15-72% of RCC cases are detected incidentally. These tumors tend to be smaller and of lower stage, resulting in better survival rates, lower recurrence rates, and lower metastasis rates than RCC detected in symptomatic patients. Symptomatic RCC presents at a significantly higher stage and grade, and tumors are substantially more aggressive than incidentally discovered lesions, particularly at later stages.

[pelagia]

My husband's clinic would not put him on the active list  for a transplant until he had his kidneys removed.  He has PKD and his kidneys were the size of big footballs - about 15 lbs. total (like having twins!).  According to the surgeon there was no place to safely put a transplant.  Stephen resisted having the nephrectomies until he knew he had a donor lined up.  But, it was getting tenuous near the end as his health was really compromised.

[monrein]

I recall (I think I do anyway) that dkerr has PKD so that could be the reason in her case.

[TynyWonder]

Thank You W&W   

[dkerr]

I do have pkd and have had three bouts of sepsis in the past year and a half. The committee will only consider me for transplant after they are removed.

[Orange County Ca]

Sounds like you got two reasons to get rid of em.

[Ang]

dkerr,


just  remember  when  they both  come  out you are  on  strict  fluid  restrictions  as  your  peeing  days are  gone  till  transplant.

i've  had  1  out  nearly  2  years  ago  now,and  am  contemplating  removing  the  other  but  am  unsure  how much  my  health  will  be  compromised  as  i'm  doing  good  at  the  minute.

i'm  what  you  call  a  flip  flopper