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Author Topic: Sluff is in the hospital  (Read 23969 times)
Sluff
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« Reply #75 on: September 17, 2008, 09:06:55 PM »

Thanks for all the information. I guess I'm waiting a few weeks to see how the meds will affect my BP.
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kidney4traci
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« Reply #76 on: September 21, 2008, 02:34:56 PM »

Sluff, sorry to have missed this ... glad you are home now.  Hope they get everything evern out for you soon.  How do people send cards?  How do you see one's address?  Only special people with Jedi tricks?
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Married - three children.
Alports female, diagnosed ESRD 10/04
11/04  Hemo in clinic
6/07 hemo at HOME! 
2/3/09 - Transplant from an angel of a friend!!!
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« Reply #77 on: September 21, 2008, 05:25:11 PM »

 :bestwishes;

I hope that sluff is feeling much better very soon and able to come out of the hospital.....  I would like to send to Sluff and all concerned my heartfelt best wishes, come on how else am i going to join this family ... bloody big family unit .. sorry my attempt at humour ... Keep Smiling Purple
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May you always have a kind word on your lips, May you always have a smile in your heart and May you always have a song in your soul..Keep Smiling
kellyt
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« Reply #78 on: September 21, 2008, 06:10:56 PM »

I'm glad you're on your way to feeling better.   Is this going to affect you coming to Vegas?  Hope not!
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1993 diagnosed with glomerulonephritis.
Oct 41, 2007 - Got fistula placed.
Feb 13, 2008 - Activated on "the list".
Nov 5, 2008 - Received living donor transplant from my sister-in-law, Etta.
Nov 5, 2011 - THREE YEARS POST TRANSPLANT!  :D
Sluff
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« Reply #79 on: September 22, 2008, 02:53:27 PM »

:bestwishes;

I hope that sluff is feeling much better very soon and able to come out of the hospital.....  I would like to send to Sluff and all concerned my heartfelt best wishes, come on how else am i going to join this family ... bloody big family unit .. sorry my attempt at humour ... Keep Smiling Purple

I have been out for awhile now. Still having BP problems even with all the meds I'm on. This morning was 224/124.  I think I need to see if my BP machine is working properly. Usually when it's this high I would have a bad headache and probably be in the hospital.
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lruffner
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« Reply #80 on: September 22, 2008, 03:04:35 PM »

Holy cow Sluff!! You probably should be seen. I used to think that my BP machine was wacked too, so I took it into the docs office and compared readings with their machine. It was right, but luckily I have never been that high. BTW, can you tell when your BP is elevated, in general? The docs always say that you can't tell, but I sure can. I feel like I am under pressure and ready to blow....best that I can describe it.
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Diagnosed w/ primary fsgs- June 2007
Getting ready to begin transplant work-up at IU and Jewish-9/08

"Live for Today"
monrein
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Might as well smile

« Reply #81 on: September 22, 2008, 03:06:51 PM »

Holy cow Sluff!! You probably should be seen. I used to think that my BP machine was wacked too, so I took it into the docs office and compared readings with their machine. It was right, but luckily I have never been that high. BTW, can you tell when your BP is elevated, in general? The docs always say that you can't tell, but I sure can. I feel like I am under pressure and ready to blow....best that I can describe it.

Ditto to that.  Very scary Sluff.  Please take good care.
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
Sluff
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« Reply #82 on: September 22, 2008, 03:09:22 PM »

Holy cow Sluff!! You probably should be seen. I used to think that my BP machine was wacked too, so I took it into the docs office and compared readings with their machine. It was right, but luckily I have never been that high. BTW, can you tell when your BP is elevated, in general? The docs always say that you can't tell, but I sure can. I feel like I am under pressure and ready to blow....best that I can describe it.

I usually get severe headaches. That's pretty much it. I have an appointment for thursday 8:20am.

I'll still come to Vegas as long as I am able to. I wouldn't miss Vegas for anything.
« Last Edit: September 22, 2008, 03:13:53 PM by Sluff » Logged
kellyt
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« Reply #83 on: September 22, 2008, 03:19:59 PM »

Before my doctor found the right combinations of BP meds for me (Lotensin 20 mg qd and Norvasc 5 mg qd) I would take my BP at the local Supermarket by the pharmacy.  Everytime I would sit and do my BP the machine would Error or shut off.  I never really felt bad, though.  I could only hear my heart beating in my ears when I lied down.  Never got the headaches and such.

I hope your appointment goes well!
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1993 diagnosed with glomerulonephritis.
Oct 41, 2007 - Got fistula placed.
Feb 13, 2008 - Activated on "the list".
Nov 5, 2008 - Received living donor transplant from my sister-in-law, Etta.
Nov 5, 2011 - THREE YEARS POST TRANSPLANT!  :D
lruffner
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« Reply #84 on: September 22, 2008, 03:27:24 PM »

Forgot to mention-

A few posts back I was telling you about Tekturna and its supposed protein lowering abilities, as well as BP.....well, found out today that it lowered a friends from 7g to 1g in 90 days.

Sudden elevation in BP is what brought on my diagnosis of fsgs. I was already on 2 BP meds and it was still like 180/ 75. I am on around 5 meds now and sometimes I am still 145-160. With that being so out of whack, is what lead to my quick decline to stage 4.

I hope you  get it under control quickly Sluff  :)


Before my doctor found the right combinations of BP meds for me (Lotensin 20 mg qd and Norvasc 5 mg qd) I would take my BP at the local Supermarket by the pharmacy. Everytime I would sit and do my BP the machine would Error or shut off. I never really felt bad, though. I could only hear my heart beating in my ears when I lied down. Never got the headaches and such.

I hope your appointment goes well!

Kellyt- I thought that I was the only one to have that problem, although mine was constant, whether lying or standing. I have never had anything to bother me as much as that. I can take my pulse without ever touching an arm, I just listen. It is exhausting to say the least! The only drug that saved me from that is Zebeta and I will never trade it for anything..lol.

Zebeta  2.5mg
lisinopril  80mg
Hyzaar  100mg                    This is just what I take for BP and it still runs above what they would like.
Cardizem CD  360mg
Tekturna  150 mg.
Lovaza (fish oil) 4 huge capsules
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Diagnosed w/ primary fsgs- June 2007
Getting ready to begin transplant work-up at IU and Jewish-9/08

"Live for Today"
kellyt
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« Reply #85 on: September 22, 2008, 04:40:57 PM »

Yeah, I too found it very annoying.  I didin't know it was my BP until I mentioned it to my doc.  For the last year or more my BP has been really good!  I mean like 96/76 and thereabouts.  And that's usually before I take my meds in the a.m.  I sometimes don't even take my Norvasc.  However, if I ever do hear my hearbeat when I lay down I know I need to adjust something or talk to my doc.
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1993 diagnosed with glomerulonephritis.
Oct 41, 2007 - Got fistula placed.
Feb 13, 2008 - Activated on "the list".
Nov 5, 2008 - Received living donor transplant from my sister-in-law, Etta.
Nov 5, 2011 - THREE YEARS POST TRANSPLANT!  :D
paris
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« Reply #86 on: September 22, 2008, 05:42:56 PM »

Sluff, please take care.   Have you talked to your doctor this week about your bp?  I wish I could help.   :cuddle;
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It's not what you gather, but what you scatter that tells what kind of life you have lived.
Sluff
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« Reply #87 on: September 22, 2008, 09:36:44 PM »

Thursday at 8:20 am I will.
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Romona
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« Reply #88 on: September 23, 2008, 09:34:15 AM »

 :grouphug;
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okarol
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« Reply #89 on: September 23, 2008, 11:28:49 AM »


I am glad you're going in to get checked out. That BP is pretty high, hope they find the right combination of meds for you!  :cuddle;
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
willieandwinnie
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« Reply #90 on: September 24, 2008, 02:39:54 PM »

Good luck tomorrow Sluff  :bunny: Let us know what you find out.  :cuddle;
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"I know there's nothing to it, but I want to know what it is there's nothing to"
pelagia
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« Reply #91 on: September 24, 2008, 03:00:38 PM »

I am optimistic that they will get it straight for you Sluff. 
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As for me, I'll borrow this thought: "Having never experienced kidney disease, I had no idea how crucial kidney function is to the rest of the body." - KD
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Life's a bitch and then you go on dialysis!

« Reply #92 on: September 24, 2008, 03:20:03 PM »

Good luck tomorrow Sluff lets hope it's your BP machine that's gone wonky. :cuddle;
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Ken
paris
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« Reply #93 on: September 24, 2008, 05:07:08 PM »

We're surrounding you with lots of prayers for tomorrow   :grouphug;
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It's not what you gather, but what you scatter that tells what kind of life you have lived.
willieandwinnie
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« Reply #94 on: September 25, 2008, 10:34:58 AM »

How did it go Sluff  :bunny:. Please update us.  :grouphug;
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"I know there's nothing to it, but I want to know what it is there's nothing to"
paris
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« Reply #95 on: September 25, 2008, 11:17:01 AM »

Waiting to hear some good news.  How did the doctor's appointment go?    :grouphug;
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It's not what you gather, but what you scatter that tells what kind of life you have lived.
annabanana
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« Reply #96 on: September 25, 2008, 11:50:21 AM »

Thinking about you, Sluff.  :cuddle;
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caregiver to Randy:
HepC and stage 4 ckd
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devon
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« Reply #97 on: September 25, 2008, 12:08:05 PM »

Hoping to hear good news today. High BP is really not something to mess with when you're working with poor kidney function.  It seems to exacerbate the problems!

-Devon
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KT0930
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« Reply #98 on: September 25, 2008, 12:38:19 PM »

Hope all is good!
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"Dialysis ain't for sissies" ~My wonderful husband
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I received a 6 out of 6 antigen match transplant on January 9, 2008. Third transplant, first time on The List.
Sluff
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« Reply #99 on: September 25, 2008, 01:33:07 PM »

  :waving; False Alarm!  :waving;  Everything is going the right direction.  BS are finally below 200 consistently and increasing my Lantus. BP was 162/80 so that is headed in the right direction also. The high readings must have been the machine I was using. I spent $50.00 today and bought a new one. Thanks for everyone's concern and the advice but you can relax in knowing things are improving.   :)
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