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Author Topic: Hello from new member  (Read 3192 times)
micole83
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« on: August 23, 2008, 07:41:24 PM »
Hello, My name is Micole and I am very glad that I found this website.  I am 25 years old and I have been helping my older brother which is 27 and my mother with their battle of ERSD.  My brother kidney faliure was a big shock he was working and attending college full time, and he had is permcath put in his neck, and with help from me and the rest of our family he did graduated.  I did home PD with my brother for three years, and he did have a kidney transplant on Sept. of 2005, but presently he has to go back to dialysis, because his kidney has rejected.  My lovely mother came down with ERSD in 2003, and diabetes and high blood pressure was the caused, she has been taking hemodialysis for about four years now.  I am very excited about interacting with you all, I hope to encourage my mother and brother to interact on this website aswell, my mother will be very excited about it, I am teaching her how to work the computer and the internet now, So she will be on soon.   HOPE TO CHAT SOON!!
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Caregiver for mother and brother with ERSD and both are on hemodialysis
Current Nursing Student
Romona
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« Reply #1 on: August 23, 2008, 08:21:57 PM »
 :welcomesign;
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flip
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« Reply #2 on: August 23, 2008, 08:36:59 PM »
 :welcomesign; :guitar:  :bandance;
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That which does not kill me only makes me stronger - Neitzsche
cookie2008
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« Reply #3 on: August 23, 2008, 10:10:59 PM »
 :welcomesign;
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Started PD in 11/07
Started Hemo in 7/08
Started NxStage 5/09
Joe Paul
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« Reply #4 on: August 24, 2008, 01:21:14 AM »
Welcome Micole, good to have you aboard.
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"The history of discovery is completed by those who don't follow rules"
Angels are with us, but don't take GOD for granted
Transplant Jan. 8, 2010
monrein
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Might as well smile
« Reply #5 on: August 24, 2008, 04:00:00 AM »
 :welcomesign;
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
Bajanne
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Goofynina and Epoman - Gone But Not Forgotten

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« Reply #6 on: August 24, 2008, 05:13:22 AM »
Welcome to our community, Micole!  This is the exact place that you need to be.  I am so gratified to see your love and concern for your brother and mother which brought you to join us.  I am looking forward to them joining as well.  This is a place for information, support and fun.  so read read read and post post post.


Bajanne, Moderator
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"To be found in Him, not having a righteousness of my own ...but that which is based on faith"



I LOVE  my IHD family! :grouphug;
willieandwinnie
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« Reply #7 on: August 24, 2008, 05:47:48 AM »
:welcomesign; Micole. Bless your heart. We are glad you found us and look forward to hearing more from you and your family. Lots of information and support to go around.  :cuddle;
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"I know there's nothing to it, but I want to know what it is there's nothing to"
G-Ma
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« Reply #8 on: August 24, 2008, 06:32:53 AM »
 :welcomesign;  Micole.  Bless you for being a wonderful, caring and helpful daughter and sister, so many people don't have help like this and it is more than the physical, it's the emotional help as well.  Thank you.  This is a great group of people and we will learn from you as well as hopefully give you help that you need.  We are your support just as you support others.
Ann
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Lost vision due to retinopathy 12/2005, 30 Laser Surg 2006
ESRD diagnosed 12/2006
03/2007 Fantastic Eye Surgeon in ND got my sight back and implanted lenses in both eyes, great distance & low reading.
Gortex 4/07.  Started dialysis in ND 5/4/2007
Gortex clotted off Thanksgiving Week of 2007, was unclotted and promptly clotted off 1/2 hour later so Permacath Rt chest.
3/2008 move to NC to be close to children.
2 Step fistula, 05/08-elevated 06/08, using mid August.
Aug 5, 08, trained NxStage and Home on 9/3/2008.
Fistulagram 09/2008. In hospital 10/30/08, Bowel Obstruction.
Back to RAI-Latrobe In Center. No home hemo at this time.
GOD IS GOOD
paris
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« Reply #9 on: August 24, 2008, 11:45:03 AM »
 :welcomesign;  We are so glad you are here.  You will find great information and lots of support.  Your brother and Mother are very fortunate to have someone who is involved with their disease.  I am sure it is hard on you.  Please post often.  We look forward to hearing more about your family. :grouphug;
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It's not what you gather, but what you scatter that tells what kind of life you have lived.
boxman55
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« Reply #10 on: August 24, 2008, 02:14:39 PM »
Welcome we are all glad to have you here. Please post often and have a little fun.

Boxman, Moderator
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"Be the change you wished to be"
Started Hemodialysis 8/14/06
Lost lower right leg 5/16/08 due to Diabetes
Sister was denied donation to me for medical reasons 1/2008
dkerr
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It is what it is . . .
« Reply #11 on: August 24, 2008, 04:01:00 PM »
Welcome.   :flower;
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Ang
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« Reply #12 on: August 24, 2008, 06:05:05 PM »
 :welcomesign;
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live  life  to  the  full  and you won't  die  wondering
RichardMEL
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« Reply #13 on: August 25, 2008, 05:15:21 AM »
Wow Nicole.. Welcome.

You've taken on a big responsibility but you sound like a very loving person. Hopefully we can help you and your family a little bit go through this experience!
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3/1993: Diagnosed with Kidney Failure (FSGS)
25/7/2006: Started hemo 3x/week 5 hour sessions :(
27/11/2010: Cadaveric kidney transplant from my wonderful donor!!! "Danny" currently settling in and working better every day!!! :)

BE POSITIVE * BE INFORMED * BE PROACTIVE * BE IN CONTROL * LIVE LIFE!
CatEars
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« Reply #14 on: August 28, 2008, 01:31:09 AM »
I wish my family was as involved as you are in yours.  You rock little sister  :clap;
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"Seize the moment 'cause tomorrow you might be dead."  -Buffy, "Welcome to the Hellmouth"
RobinM
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« Reply #15 on: August 29, 2008, 04:22:14 PM »

Hi Micole!  :welcomesign;

Robin
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kitkatz
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« Reply #16 on: August 31, 2008, 09:04:43 PM »
Welcome to the forums.  Helping your Mom and brother is a good thing.  Finding more information for them is great.  You will find answers for questions in these forums.




kitkatz,moderator
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lifenotonthelist.com

Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5

Remember your present situation is not your final destination.

Take it one day, one hour, one minute, one second at a time.

"If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1
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