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Author Topic: One year later...  (Read 21656 times)
Sara
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« on: July 23, 2008, 06:05:51 AM »

I don't know if I should post here, or on the general board or what.  Admin or Mod will move if appropriate I'm sure.   :2thumbsup;

I was asked to check in, and here I am.  The one year anniversary of Joe's death was last Friday (July 18) and I'm doing OK.  I found a great grief support group and they are wonderful, almost as wonderful as the group here.   :cuddle;  Still at the same job, although I'm working PT and spoiled on it.  I could work FT probably but I don't wanna.   :P  Hoping to take a class this fall, maybe it'll stick this time?  Who knows.  I've been journaling a lot on a blog and that really helps.  I highly recommend it for anyone, just blog about normal life, it's great.  Trying to get my house back in order.  I've never been Ms. Suzy Homemaker but after Joe, I really let things slide.  So now I'm trying to clean up and make my boring depressing home into something vibrant and cheery (thinking turquoise walls in a few rooms but it's not definite yet.)

Anyway, not sure what else to write here, but I hope you all are well.  I think of you all fondly, and often. 

Love y'all,
Sara
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Sara, wife to Joe (he's the one on dialysis)

Hemodialysis in-center since Jan '06
Transplant list since Sept '06
Joe died July 18, 2007
kitkatz
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« Reply #1 on: July 23, 2008, 06:27:30 AM »

It sounds like you have made a start.  Finding a grief group was an excellent idea.  I hope your life continues to be smooth.  Thanks for checking in.
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lifenotonthelist.com

Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5

Remember your present situation is not your final destination.

Take it one day, one hour, one minute, one second at a time.

"If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1
glitter
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« Reply #2 on: July 23, 2008, 07:12:34 AM »

Sara, I am glad you found a group of understanding people to help you through your grief, as much as I miss your posts, I figured coming here might be painful. AS you can see- your "whats for supper" thread is still one of the most popular threads!! I have never seen turquoise walls- but I would bet they would be pretty! Love and Miss you very much,

 Julie
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Jack A Adams July 2, 1957--Feb. 28, 2009
I will miss him- FOREVER

caregiver to Jack (he was on dialysis)
RCC
nephrectomy april13,2006
dialysis april 14,2006
willieandwinnie
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« Reply #3 on: July 23, 2008, 08:30:46 AM »

:cuddle; Sara, so happy that you posted. Your support group sounds like the place to be right now in your life. You know that we all think of you often and pray that you are finding some peace in your life. Please, keep letting us know how you are doing. We'll always be here. Take Care.  :grouphug;
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« Reply #4 on: July 23, 2008, 09:00:11 AM »

Thank you for updating us.  You are still very much a part of our IHD family, and we want to know how you are doing.   Glad things are working out for you.  You continue to be in our caring thoughts and prayers.  :cuddle;
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"To be found in Him, not having a righteousness of my own ...but that which is based on faith"



I LOVE  my IHD family! :grouphug;
paris
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« Reply #5 on: July 23, 2008, 09:22:15 AM »

Glad to hear from you. The support group sounds like a good thing.  Thanks for letting us know how you are doing.
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Sluff
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« Reply #6 on: July 23, 2008, 09:23:02 AM »

Reiterating the thoughts of others. I think of you often, and hope you are well.  :grouphug;
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okarol
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« Reply #7 on: July 23, 2008, 09:52:35 AM »

 :flower; Hi Sara,
Thank you for the update. I hope you do add some color to those walls! It sounds like fun! Best wishes to you, you are often thought of around here and we miss you.
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
thegrammalady
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« Reply #8 on: July 23, 2008, 02:21:51 PM »

so good to hear that you are moving forward and doing well. a can of paint goes a long way toward brightening up a house and your willingness to make little changes will soon make it a home again. i miss your posts and think of you often. please know that you're always welcome.
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s
......................................................................................
If you can smile when things go wrong, you have someone in mind to blame.

Lead me not into temptation, I can find it myself.

Life isn't about waiting for the storm to pass, it's about learning how to dance in the rain.

Some mistakes are too much fun to only make once.

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For You Are Crunchy And Taste Good With Ketchup
lola
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I can fly!!!

« Reply #9 on: July 23, 2008, 02:48:53 PM »

Sara, glad things are going well for you. Go bright with the paint it's fun to do things like that, plus when it makes you wanna :puke; you can paint it another color. Take care :flower; :cuddle;
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monrein
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Might as well smile

« Reply #10 on: July 23, 2008, 02:55:51 PM »

I'm glad that you're doing OK, maybe even better than OK, and that you've found a good support group to help you through this tough time.  Please update again sometime, may be when those walls get some paint. :grouphug;
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
Ohio Buckeye
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« Reply #11 on: July 23, 2008, 03:02:43 PM »

I'm sure glad to hear from you again Sara.
I'm glad you found a good support group. That really helps.
I'm glad you are doing well.
There are a couple of tv shows about decorating rooms and houses and
I'm surprised what they do to those walls.
Keep in touch.
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If I must do this to live, I must strive to live
while I am doing this.
Sara
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« Reply #12 on: October 22, 2008, 09:24:57 AM »

Just checking in here...

I am just past 15 months since Joe died.  Most days I am doing really well, but sometimes little things will bring up memories, that, while I don't want to forget, are painful to remember.  An example, I was going through a old pile of paperwork and found the card from flowers Joe sent me 2 years ago.  It had an "inside joke," something just between us, but now I can't remember exactly what was the story behind the joke!  That's disappointing but hopefully it will come back to me.  In about 10 days or so, there is All Souls' Day, where I'll go to the cemetery and there will be a special mass for everyone who has died.  I haven't been to the cemetery since his ashes were put there last Thanksgiving Day, so that might be a little emotional (it's hard seeing his name on the plaque) but I'll get through it OK.  I started college classes in August, and I'm doing well (knock on wood.)  So far all A's, but I have a new class starting this week (International Relations) so we'll see how that goes, LOL. 

I hope you all are doing well.  Please take care of yourselves.

With love,
Sara
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Sara, wife to Joe (he's the one on dialysis)

Hemodialysis in-center since Jan '06
Transplant list since Sept '06
Joe died July 18, 2007
Zach
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« Reply #13 on: October 22, 2008, 09:27:06 AM »

Be well, Sara.

8)
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Uninterrupted in-center (self-care) hemodialysis since 1982 -- 34 YEARS on March 3, 2016 !!
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
No transplant.  Not yet, anyway.  Only decided to be listed on 11/9/06. Inactive at the moment.  ;)
I make films.

Just the facts: 70.0 kgs. (about 154 lbs.)
Treatment: Tue-Thur-Sat   5.5 hours, 2x/wk, 6 hours, 1x/wk
Dialysate flow (Qd)=600;  Blood pump speed(Qb)=315
Fresenius Optiflux-180 filter--without reuse
Fresenius 2008T dialysis machine
My KDOQI Nutrition (+/ -):  2,450 Calories, 84 grams Protein/day.

"Living a life, not an apology."
willieandwinnie
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« Reply #14 on: October 22, 2008, 09:46:38 AM »

:flower; Sara, so nice to hear from you. We are so happy that you are doing well in your classes and have no doubt that your new class will be another "A". Please keep letting us know how you are. We think of you often.  :cuddle;
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"I know there's nothing to it, but I want to know what it is there's nothing to"
monrein
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Might as well smile

« Reply #15 on: October 22, 2008, 10:00:40 AM »

So nice to hear you're doing well Sara.  Best of luck with all your classes .  :flower;
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
lola
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I can fly!!!

« Reply #16 on: October 22, 2008, 11:45:17 AM »

 :grouphug; :grouphug;
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thegrammalady
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« Reply #17 on: October 22, 2008, 01:50:03 PM »

glad to hear things are going well.   :grouphug;
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s
......................................................................................
If you can smile when things go wrong, you have someone in mind to blame.

Lead me not into temptation, I can find it myself.

Life isn't about waiting for the storm to pass, it's about learning how to dance in the rain.

Some mistakes are too much fun to only make once.

Meddle Not In The Affairs Of Dragons
For You Are Crunchy And Taste Good With Ketchup
Sluff
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« Reply #18 on: October 22, 2008, 06:01:25 PM »

Hope your classes continue to go well. Please check in more if you have the time, we miss ya.  :grouphug;
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Rerun
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« Reply #19 on: October 22, 2008, 06:05:00 PM »

Sara, glad to hear from you.  I'm glad you are moving forward.  Joe would want that.
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paris
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« Reply #20 on: October 22, 2008, 08:44:29 PM »

Good to see your post, Sara.   Thank you for letting us know how you are doing.   :grouphug;
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It's not what you gather, but what you scatter that tells what kind of life you have lived.
Mimi
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« Reply #21 on: October 22, 2008, 08:53:18 PM »

So glad to hear from you, Sara.  I'm sure the last 15 months have been sad.  Keep letting us
hear from you and good luck with school.

Love, Mimi
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it is putting out the lamp because the dawn has come.
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« Reply #22 on: October 29, 2008, 07:50:51 AM »

I was so happy to see your update.  Glad to hear about your classes.  you go, girl.  You keep on keeping on. :grouphug;
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"To be found in Him, not having a righteousness of my own ...but that which is based on faith"



I LOVE  my IHD family! :grouphug;
skyedogrocks
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Rob showing off his pot of gold!

« Reply #23 on: November 03, 2008, 10:39:35 AM »

So good to hear from you Sara, I think of you often.  I hope this past Saturday (All Souls Day) was kind to you and that it wasn't too hard to be at the cemetary.  I think it's great you are moving forward with your life.  As Rerun said, Joe would want that.

Take care and check in often, we miss you.  :cuddle;

Larraine
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Wife to Rob who is currently doing Nx Stage Home Hemo Dialysis.

11/17/09 After 4 years on dialysis, Rob received a kidney from our George.  Kidney is working great!  YEAH!!!!
tonyA
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ToNY- Brother of Joe

« Reply #24 on: November 05, 2008, 08:12:17 PM »

I've caught wind of this website a while back, but yet to post anything. i've read around this site for an hour or so to catch up on things and read about my brother. This website made me miss hom completely more. it never gets easy missing a loved one. i wish i would of known how painful and urgent the situation was. Joe just made everything look simple. he never struck me as a sufferer. i guess that was the point.
Anyways, Sara, you know i appreciate everything you've done for my brother, you know how i feel about him. i can't say enough of how much i appreciate what you've done for his life. i know it was hard and still is, thank you for putting up with his physical and emotional struggles and doing what you've done on this site. i hope you know you're still a part of this family and can contact me for anything. sorry for my mother and her crazy calls, it is absolutely her way of grieving though. thanks again for putting up with it. i'm truely glad you came into his life. i miss joe too, and every little thing still reminds me of him. but i wouldn't have it any other way. thanks again sara.
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