I need to rant

[Brightsky69]

Hi Everyone –

I hope you guys are doing well. I am about over it myself.  I know I am getting closer and closer to dialysis. I’ve tried cutting back on protein and I try my best to stay away from salt. It’s like I can’t win….I cut back on protein and my anemia seems to be getting worse, if I eat more protein then that is not good for my transplant. I can’t even LOOK at salt without my ankles swelling. I am already on lasix for the extra fluid. I want to hang on to this transplant for as long as possible. But food is becoming a new enemy.

Before my transplant I use to do CAPD. This go around I want to try APD using a cycler machine at night. I wonder what it’s like. Do any of you use this type of dialysis?

[pelagia]

Wish everything was going better for you.  It sounds like you've done everything you can as you get ready for a new stage. 

[peleroja]

I just graduated to CCPD after 5 years on CAPD.  The thing you have to get used to is the noise of the machine.  I'm on my 5th machine, due primarily to the noise.  Luckily I have a pretty big house, so I put the machine in the hallway (almost a room in itself as it's 11 feet wide), and I use an extension on the patient line so I can sleep in my bed.  Once I got that figured out it has become a piece of cake.  I hope you get to keep your transplant, but if not, CCPD is the way to go!

[Adam_W]

I hope your transplant hangs on longer. I'm still waiting to switch to CCPD (it will be even longer now because I have a leak in my peritoneum), but I'm really looking forward to using the cycler. As for the noise, I've personally never had a problem with any kind of noise as long as it's constant-I can't sleep with the TV or radio on. I probably could, however, sleep with a jet engine running beside my bed. OK, maybe not quite something like that. Anyhoo, hopefully you won't need dialysis again for a long time, but I would definitely recommend a return to PD (or even home hemo if you can).

Adam

[IUNurse]

Baxter's cycler is very quiet.  Most all of my patient sleep right through it.  I think it depends on if you are a light sleeper or a heavy sleeper.  Good luck and I hope you don't have to think about dialysis anytime soon!

[okarol]

I am sorry you're losing that kidney, but it sure did last a long time!
Do you plan to get another transplant?
Good luck with the cycler.

[paris]

I'll keep hoping the transplant will last a little longer.  Sending good thoughts

[stauffenberg]

As long as the diuretic is still being prescribed for you, that is a good sign, since diuretics are useless when the residual renal function sinks to a point very close to dialysis being necessary.

[Brightsky69]

Thanks for all of the support.

I got the call today. I am  officially on the transplant list. Let the wait begin!   

[okarol]

Thanks for all of the support.

I got the call today. I am  officially on the transplant list. Let the wait begin!   

Cool!

[Adam_W]

Good to know your on the list. Hopefully that new kidney will come for you really soon. 

Adam

[pelagia]

Happy to hear that you are on the list!