Sleeping Pills post transplant

[MIbarra]

   I'm up till 5 some nights too! Sometimes I sleep for only 2 hours a night 3-4 days straight. Then I sleep all night and almost all day it feels for several days. Ugh!

[okarol]

  I'm till 5 some nights too! Sometimes I sleep for only 2 hours a night 3-4 days straight. Then I sleep all night and almost all day it feels for several days. Ugh!

That was Jenna's pattern on dialysis, and it is still the same after transplant. She seems tired after 3 am. Sometimes wakes after a few hours, then sleeps for a day. It's so bizarre.

[Chris]

I only took the sleping pill last night and didn't kick in till after 11:30 pm. Then woke up at 4 am due to cat begging for trats, UGHHH! Finally fell back to sleep after 5 am, then  one of my alarms goes off at 6 am, turned that off and then the next round of alarms  start going off at 8 am. I put those on snooze, but accidentally turned the important one off to get up and going to get my blood test done. Next 2 alarms (watch and cell phone) went off at 10 and I thought it was only around 9, but watch going off is a dead give away that it wasn't, so I had to hurry up and get in the shower and get to my local hospital. Hopefully these labs are bettereven though it was 38 minutes after the 12 hour mark for the trough level for my Prograf level. I should have tried to take just half of the pain killer and the sleeping pill so I wouldn't wake up in the wee hours of the day.

[angela515]

38 minutes isn't going to mess your labs up.

[Chris]

I'm a stickler for having them on time incase they ask when I took my pills last and when the labs where taken. Easier for my bad memory

[angela515]

I totally understand, I am as well.

[MIbarra]

Chris, how often do you get labs done now?

[Chris]

Last 3 months it has been every other week or every week depending on results or  new test added. Starting to wish I had a catheter for blood draws.

[MIbarra]

I know! I still have the bruise and lump in my right arm from last week's blood draw. I'm only doing once a month or every 2 now though.

[Chris]

I only get a bruise when I let the trainee have a stab, which then leaves a hematoma also. I think it's just that my veins have so much scar tissue for the two sites they only use in my right arm.

Forgot to take sleeping pill and to late to take it now, crude

[angela515]

I have hated getting my blood drawn since forever because they made my viens die. I only get poked once if the tech is lucky, otherwise I have to get poked at least twice, sometimes more.

I haven't taken my sleeping pill yet ad I gotta get up at 6-7, I will take it when I am done watching tv tho, hehe.

[Chris]

I worry if I take them now/late, I won't be able to get up when I need to in the morning. Took pain killer though, but not making me tired.
This will bemy last post for tonight though, I hope/trying

[angela515]

They don't work for me much anymore, so i can still get up if I just take one.. but if I take like 3, then that sucks for me getting up, lol.

Goodnight Chris

[Chris]

This time I hope to remember to take them. I stayed up till 5 am then got back up at 7:25 am. Then forgot to stop at the hospital to pick up my lab results. Not wasting gas to go back today. I really do not want to be needing a to do list everytime I go out so I don't forget!

[pelagia]

Is this a common thing for transplant recipients to be insomniacs?  The same thing has happened to my husband.

[Chris]

I don't know, I never asked my transplant center. Never saw anything on the manufactures website either of the immunosuppressants. I had it real bad after my transplant though, but have always gone to bed late even before I was a full blown teenager.

[angela515]

I have had insomnia before both of my transplants.

[Chris]

Can't take them tonight, have to be up at 3:45 am to get ready and get to the train station for early morning test and doc visits in Chicago. Whoopee!
I need to try two pills, 1 barely did anything last night.

[angela515]

You go to the dr alot..

[Chris]

And again on monday to Chicago for another test, transplant doc, and I was suppose to see some nutritionist, but have to cancel. Can't afford the $120 they want to bill me. They said medicare won't cover it, but I have a paper that say's they will, so screw them. Think I have another test on Monday too. I know I have 2 tomorrow and two docs. Hopefully get something done with my knee.

[angela515]

Come out here and drive me to all my appts I am *supposed* to have but cancel or move to months later due to no ride. 

[Chris]

Wanna do some of my test for me?
Today was a fun filled day there. Can't have knee surgery due to osteomalacia, but possibly in December. Also said I will need a knee replacement, but will hold off due to age. He will only do surgery before I see him in October for follow up if pain gets so bad the risk will necessitate ?(not sure I am using the right word) the need for surgery. He sees me having up to 3 orthoscope procedures on my left knee before replacement. Right knee is starting to show the same ill affects of the left. Both have bone spurs on the knee caps, whooppee!

Then   I had one blood test and the guy had a hard time getting blood and said the vein blew as he started to get blood. He said he wasn't going to stick me again though because I was to cold and shivering.

Got home, listened to voice mail and stupid transplant center called about my labs. These morons never learn to call my cell phone, it is the first number listed to get a hold of me, not my home number and I was just there in the fricken building on the same floor. I'm not going in tomorrow though, I'll call, but I'm not going in.

Well now I have a script for physical therapy in the water, a new pain med for the daytime, and I don't feel like taking my sleeping pill even though I should. I had one hours sleep today, between 2:30 am and 3:45 am when I got up. I need something to just knock my butt out!

[angela515]

No, thanks. I got my own probs.

With yours and mine combined we would be unable to leave a bed no matter what. Thats no good.

[Chris]

I'll have to pick up new prescription tomorrow. Take pill, wait for new side effects, fall flat on face sums it up.

[MIbarra]

unable to leave a bed no matter what. Thats no good.

This can be good at times. hee hee