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Dialysis: Home Dialysis
Do you get used to the bloated, "full" feeling? (please say yes)
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Topic: Do you get used to the bloated, "full" feeling? (please say yes) (Read 7555 times)
Adam_W
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Do you get used to the bloated, "full" feeling? (please say yes)
«
on:
July 07, 2008, 06:58:37 PM »
OK, I've only been on PD for a few days, and the first couple were good. But now, as my peritoneum is starting to filter more excess fluid, I'm feeling more bloated and full. it's getting to the point where it's simply uncomfortable in any position, and especially when I move. I've even been getting short of breath sometimes. To make things worse, my doctor just told me to start doing a long dwell overnight. Now I have to deal with this when I'm trying to sleep. If I can't deal with it, then I'm going to be miserable on the cycler. Please tell me I will get used to it!
Adam
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-Diagnosed with ESRD (born with one kidney, hypertension killed it) Jan 21st, 2007
-Started dialysis four days later in hospital (Baxter 1550-I think, then Gambro Phoenix)
-Started in-centre dialysis Feb 6th 2007 (Fres. 2008H)
-Started home hemo June 5th 2007 (NxStage/Pureflow)
-PD catheter placed June 6th 2008 (Bye bye NxStage, at least for now)
-Started CAPD July 4th, 2008
-PD catheter removed Dec 2, 2008-PD just wouldn't work, so I'm back on NxStage
-Kidney function improved enough to go off dialysis, Feb. 2011!!!!!
-Back on dialysis (still NxStage) July 2011
-In-centre self-care dialysis March 2012 (Fresenius 2008K)
-Not on transplant list yet.
"Don't live for dialysis, use dialysis to LIVE"
kimcanada
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Re: Do you get used to the bloated, "full" feeling? (please say yes)
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Reply #1 on:
July 08, 2008, 04:10:16 AM »
You will get used to it... when I first sstarted I was in pain , almost like a gas pain from being so full... I don't even notice it now. I know that its hard to believe at the moment, but just have trust
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KICKSTART
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Re: Do you get used to the bloated, "full" feeling? (please say yes)
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Reply #2 on:
July 08, 2008, 05:54:52 AM »
Yes you will get used to it , i (was) very slim ..still would be if it wasnt for the fluid
and when i first started pd i couldnt stand up straight , it felt like a sack of potatoes in my stomach. I also found it difficult to eat much , a few mouthfulls and i felt full. Now after 4 years apart from my beer barrel i dont notice it at all . Try eating little and often at first till you get more used to it , it helps a bit , also sorry to mention this but keep an eye out for constipation as this can have an effect on your drain out , but honestly you will get used to the feeling of fullness after a while!
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OH NO!!! I have Furniture Disease as well ! My chest has dropped into my drawers !
MiSSis
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Re: Do you get used to the bloated, "full" feeling? (please say yes)
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Reply #3 on:
July 08, 2008, 09:23:17 AM »
Hi Adam,
I too think you'll find that you'll get used to that "full" feeling. You didn't mention how much fluid you were putting in at one time but I'm assuming that you're using 2000L per fill. What % dialysate are you using? Could you possibly be pulling too much fluid off? Hopefully you'll find things easier when you get your cycler. Since you'll be doing more exchanges each night while you sleep, you might find that you can get by with using a lower % dialysate. Not sure what the procedure is at your clinic but because my numbers remain good, I'm allowed to be empty during the day. That means I only need big clothes at night. I can still wear my normal stuff during the day and also I'm not hauling around that extra 5+ lbs of fluid. Maybe this is something you can discuss with your doctor as an option.
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"Keep your face to the sunshine and you will not see the shadows." Helen Keller
Adam_W
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Re: Do you get used to the bloated, "full" feeling? (please say yes)
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Reply #4 on:
July 08, 2008, 11:11:43 AM »
I'm using 2000ml bags and 1.5% dextrose, five exchanges per day. I was expecting to have problems sleeping last night since it was my first "full" night, but once I got comfortable, the fluid kind of settled in around my guts and I didn't feel quite so bloated and had no trouble sleeping. I'll be glad when I get past all these annoying little issues, including discomfort from the fluid.
Adam
Logged
-Diagnosed with ESRD (born with one kidney, hypertension killed it) Jan 21st, 2007
-Started dialysis four days later in hospital (Baxter 1550-I think, then Gambro Phoenix)
-Started in-centre dialysis Feb 6th 2007 (Fres. 2008H)
-Started home hemo June 5th 2007 (NxStage/Pureflow)
-PD catheter placed June 6th 2008 (Bye bye NxStage, at least for now)
-Started CAPD July 4th, 2008
-PD catheter removed Dec 2, 2008-PD just wouldn't work, so I'm back on NxStage
-Kidney function improved enough to go off dialysis, Feb. 2011!!!!!
-Back on dialysis (still NxStage) July 2011
-In-centre self-care dialysis March 2012 (Fresenius 2008K)
-Not on transplant list yet.
"Don't live for dialysis, use dialysis to LIVE"
rookiegirl
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Re: Do you get used to the bloated, "full" feeling? (please say yes)
«
Reply #5 on:
July 10, 2008, 05:50:28 PM »
Adam - give it time, you will get use to it. Somedays, normally at the end of the day, I get really bloated. That is because I either ate something salty and my body is pulling more fluid than norm. I try to be good and watch my salt. But, somedays I get the craving.
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2000-Diagnosed IGA Nephropathy
2002-1st biopsy (complications)
2004-2nd biopsy
10/03/07-Tenckhoff Catheter Placement
10/22/07-Started Peritoneal Dialysis
03/2008-Transplant team meeting
04/2008-Transplant workup
05/2008-Active Transplant list
3/20/09-Cadaver Kidney Transplant
4/07/09-Tenckhoff Catheter removed
4/20/09-New kidney biopsy
peleroja
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Re: Do you get used to the bloated, "full" feeling? (please say yes)
«
Reply #6 on:
July 15, 2008, 09:52:22 AM »
I guess I've been lucky. I never felt bloated or full until they tried to put me on 2500 ml when I was doing manual exchanges. That was the only time. Even now that I'm on the cycler and doing 2500 all the time, I still don't feel bloated. My friend said it's because I've lost 25 pounds but that my peritoneum is still stretched out, so i don't feel bloated like I did before. Hope you're feeling better now.
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MyRenalRomance
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Re: Do you get used to the bloated, "full" feeling? (please say yes)
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Reply #7 on:
July 27, 2008, 05:57:31 PM »
The first time I filled up for Manual PD (1500 ml) I felt like I was 9 months pregnant, and I believe I even "waddled around" as I walked! I'm 5' 3" 95 lbs. However, after draining and re-filling, that feeling went away, and I felt pretty normal all the time.
Once I went on the nighttime cycler, I never felt bloated or full, ever. Lying down evenly distributed the fluid in my peritoneal cavity.
Good luck to you! Are you feeling better these days?
Logged
Kidneys damaged by hypertension/scleroderma 1987
In-center Hemodialysis: May 2007 - October 2007
Switched to Manual PD October '07 - January '08
Switched to PD Nighttime Cycler January '08
Kidney transplant from living related donor June 2008
MyRenalRomance
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Re: Do you get used to the bloated, "full" feeling? (please say yes)
«
Reply #8 on:
July 27, 2008, 06:06:56 PM »
Adam,
I did not see your more current threads. I'm so sorry you're experiencing more problems. Again, I wish you much luck, and hope you get things sorted out!
MRR
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Kidneys damaged by hypertension/scleroderma 1987
In-center Hemodialysis: May 2007 - October 2007
Switched to Manual PD October '07 - January '08
Switched to PD Nighttime Cycler January '08
Kidney transplant from living related donor June 2008
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