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Author Topic: Got my PD wings  (Read 4384 times)
kimcanada
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« on: May 20, 2008, 12:09:13 PM »
Today was my first day training with for PD.

I went in at 8am and just had fluid put in and takin out about 4 times...

Everything went ok, I was feeling very bloated, and VERY full, I hope that passes.  I went for a walk when my nurses went for lunch and my tube (I call it Mister) fell out of my new belt and was hanging out of my shirt, I think I will tape Mister to my belly the next time I go for a walk!

Kim
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jbeany
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« Reply #1 on: May 20, 2008, 05:29:44 PM »
Hope it works well for you - good luck!
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paris
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« Reply #2 on: May 20, 2008, 05:53:37 PM »
Kim,    "mister" :rofl; :rofl;  I am excited for you and hope PD works great for you.  This will give you more freedom until you get that transplant!  I want your turn to be next!!
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It's not what you gather, but what you scatter that tells what kind of life you have lived.
fluffy
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« Reply #3 on: May 20, 2008, 11:30:45 PM »
the full feeling should  go away in a few days, dont worry you'll get used to it :)
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kimcanada
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« Reply #4 on: May 21, 2008, 02:34:56 AM »
Well today will be the whole day with 4 hour exchanges...  I was kinda nervous to go to sleep , so I tapes mister (in my belt to my belly...

He never moved and I had a good nights sleep :)

I am accually getting so excited to start this at home.

Paris you are to sweet / Fluffy arre you on PD?

kim
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KICKSTART
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« Reply #5 on: May 21, 2008, 05:21:50 AM »
The best way i found to get over that 'full' feeling was to just eat little and often in the first few weeks , just to give yourself time to get used to that bloated feeling ..also one thing to watch is that you dont get constipated !!
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OH NO!!! I have Furniture Disease as well ! My chest has dropped into my drawers !
rookiegirl
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« Reply #6 on: May 21, 2008, 08:08:30 AM »
Hi kimcanada,

I started PD on 10/22/2007.  I had the same feeling of fullness, bloated, etc...  It was a rough start for me because my body had to get use to the fluid inside.  After 7 months on PD, it has gotten better.  Only complaint I have is during the end of my drain.  It still pinches, but I do CAPD and I control my end drain.

I hope all goes well for you.  Continue to share your experience and ask questions.

 :bestwishes;
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2000-Diagnosed IGA Nephropathy
2002-1st biopsy (complications)
2004-2nd biopsy
10/03/07-Tenckhoff Catheter Placement
10/22/07-Started Peritoneal Dialysis
03/2008-Transplant team meeting
04/2008-Transplant workup
05/2008-Active Transplant list
3/20/09-Cadaver Kidney Transplant
4/07/09-Tenckhoff Catheter removed
4/20/09-New kidney biopsy
migaguiar
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Step back. Im full of toxins.

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« Reply #7 on: May 21, 2008, 10:46:17 AM »
Please make sure to tape it well even under the belt. An anchor (taping) works well. You dont want it tugging or pulling because it will cause lots of skin aggravation at the entrance then it could become infected easily. It could also pull out slowly therefore not allowing the skin to seal tightly around the cath leaving an entrance for bacteria. :(
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"All we are is dust in the wind," dude.
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Alports @ age 19 hemo in center 4 months
20 paternal kidney transplant 14 years
Present 1 1/2 yr PD
4 month in center
now 6 months @ home NxStage Daily
Soon Nocturnal!
kimcanada
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« Reply #8 on: May 21, 2008, 12:32:16 PM »
Well day 2 is over, I am doing my own dinner and bedtime exchanges tonight!  I was supposed to do hemo tonight but begged them to let me do my PD instead!!!

I am going to try to do the smaller meal thing, when I first fill up, its like my torso isn't long enough or something ,,, I do find that it does subside after a half hour or hour, I must say my only complaint so far is the fullness...

Thank you for your very helpful responses all :)
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monrein
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« Reply #9 on: May 21, 2008, 02:02:19 PM »
Best of luck with everything Kim.  Nice that you can be at home.  Keep us posted.
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
fluffy
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« Reply #10 on: May 21, 2008, 04:46:16 PM »
Hey Kim, i was on pd for about 3 years but i had to stop due to infections, now im stuck on hemo :p. i miss pd tho i got to do more stuff and i had more time. Best of luck with it tho. Pd is definately the best choice for more freedom
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CW
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« Reply #11 on: May 21, 2008, 07:15:36 PM »
That is cute Kim, Mister  :rofl; omg....
OK I am back now, I am glad everything is going well. I went for my first flush/training today 5/21/08. I  did not "fill up" just put in about 500 or so.
I am glad to be part of the club. I still have to go to hemo for now but soon to be free!!

Good luck with PD I hope it all goes well
CW
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20 years navigating ESRD
Had a transplant but it rejected

To all of my kidney brothers and sisters who have left too soon -
Where you used to be, there is a hole in the world, which I find myself constantly walking around in the daytime, and falling in at night.  I miss you like hell.  ~Edna St Vincent Millay
kimcanada
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« Reply #12 on: May 26, 2008, 02:22:14 PM »
My update...

I have been home for 3 days now, and I must say that I am SO tired, its been building up since I got home, and I have been blaming it on the fact that I have to get my house in order and whatnot.  Bit man O man I am tired, I also have cramps when I drain and when I fill... I am draining as I am typing this, and I am for the first time trying a 1.5 solution, I hope this helps.
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Meinuk
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« Reply #13 on: May 26, 2008, 02:29:00 PM »
Kim,

Thanks for the update.  Glad that you are home, sorry that you are exhausted.  Hopefully things will be getting better and better.  I think that we share a Dialysis Hemoversary 1/12/07.  Time flies eh?

Best,

Anna
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Research Dialysis Units:  http://projects.propublica.org/dialysis/

52 with PKD
deceased donor transplant 11/2/08
nxstage 10/07 - 11/08;  30LS/S; 20LT/W/R  @450
temp. permcath:  inserted 5/07 - removed 7/19/07
in-center hemo:  m/w/f 1/12/07
list: 6/05
a/v fistula: 5/05
NxStage training diary post (10/07):  http://ihatedialysis.com/forum/index.php?topic=5229.0
Newspaper article: Me dialyzing alone:  http://ihatedialysis.com/forum/index.php?topic=7332.0
Transplant post 11/08):  http://ihatedialysis.com/forum/index.php?topic=10893.msg187492#msg187492
Fistula removal post (7/10): http://ihatedialysis.com/forum/index.php?topic=18735.msg324217#msg324217
Post Transplant Skin Cancer (2/14): http://ihatedialysis.com/forum/index.php?topic=30659.msg476547#msg476547

“To doubt everything or to believe everything are two equally convenient solutions; both dispense with the necessity of thought.” - Henri Poincare
kimcanada
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« Reply #14 on: May 26, 2008, 02:47:56 PM »
Time does fly :)  Well everyone needs to know they are not alone in this big world, so I will love knowing that I share an anniversary with you .. cheers, :wine;
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Ang
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« Reply #15 on: May 26, 2008, 07:39:28 PM »
good luck  with  it  all  KC :thumbup;
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