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Author Topic: Any news on twirl?  (Read 9883 times)
willieandwinnie
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« on: May 12, 2008, 11:05:19 AM »
I was hoping we would of heard something by now.... Hope she is alright  :grouphug;
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rose1999
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« Reply #1 on: May 12, 2008, 12:22:38 PM »
Yes I keep looking for a message, does anyone have any contact with her?  If so please tell her we are thinking about her and missing her  :grouphug;
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monrein
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Might as well smile
« Reply #2 on: May 12, 2008, 12:29:52 PM »
I thought she mentioned somewhere that she was going to be staying in for 5 days.  Her surgery was Thursday so she may not be back home just yet.
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
willieandwinnie
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« Reply #3 on: May 15, 2008, 09:30:48 AM »
Okay, it's been 7 days...... where is she??????? Hope she's alright.  :cuddle;
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okarol
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Photo is Jenna - after Disneyland - 1988

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« Reply #4 on: May 15, 2008, 09:57:50 AM »

I was just thinking the same thing.

Where are you twirl?  ???
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
Sluff
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« Reply #5 on: May 15, 2008, 02:25:56 PM »
Have not heard anything.
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xtrememoosetrax
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« Reply #6 on: May 15, 2008, 02:28:47 PM »
Twirl, we miss you !!!!
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Living donor to friend via 3-way paired exchange on July 30, 2008.

www.paireddonation.org
www.caringbridge.org/visit/marthahansen
Romona
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« Reply #7 on: May 15, 2008, 05:56:38 PM »
Miss you Twirl! :grouphug;
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annabanana
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« Reply #8 on: May 15, 2008, 08:11:08 PM »
We need Twirl!!!
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caregiver to Randy:
HepC and stage 4 ckd
1 kidney removed (cancer)Aug07
Adam_W
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Me with Baron von Fresenius
« Reply #9 on: May 15, 2008, 11:13:19 PM »
Hope you're doing ok, Twirl.  :grouphug;

Adam
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-Diagnosed with ESRD (born with one kidney, hypertension killed it) Jan 21st, 2007
-Started dialysis four days later in hospital (Baxter 1550-I think, then Gambro Phoenix)
-Started in-centre dialysis Feb 6th 2007 (Fres. 2008H)
-Started home hemo June 5th 2007 (NxStage/Pureflow)
-PD catheter placed June 6th 2008 (Bye bye NxStage, at least for now)
-Started CAPD July 4th, 2008
-PD catheter removed Dec 2, 2008-PD just wouldn't work, so I'm back on NxStage
-Kidney function improved enough to go off dialysis, Feb. 2011!!!!!
-Back on dialysis (still NxStage) July 2011 :(
-In-centre self-care dialysis March 2012 (Fresenius 2008K)
-Not on transplant list yet.


"Don't live for dialysis, use dialysis to LIVE"
willieandwinnie
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« Reply #10 on: May 18, 2008, 07:38:12 AM »
twirl, you have been gone entirely too long. We're worried about you.  :cuddle;
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thegrammalady
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« Reply #11 on: May 18, 2008, 12:37:34 PM »
thinking of you, hope everything is moving forward. we miss you.
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Lead me not into temptation, I can find it myself.

Life isn't about waiting for the storm to pass, it's about learning how to dance in the rain.

Some mistakes are too much fun to only make once.

Meddle Not In The Affairs Of Dragons
For You Are Crunchy And Taste Good With Ketchup
paris
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« Reply #12 on: May 18, 2008, 04:22:18 PM »
 :grouphug;
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It's not what you gather, but what you scatter that tells what kind of life you have lived.
kellyt
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« Reply #13 on: May 18, 2008, 04:35:15 PM »
I missed what she's having done?  Or I forgot.   ???   What is/was she in the hospital for?    :thx;
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1993 diagnosed with glomerulonephritis.
Oct 41, 2007 - Got fistula placed.
Feb 13, 2008 - Activated on "the list".
Nov 5, 2008 - Received living donor transplant from my sister-in-law, Etta.
Nov 5, 2011 - THREE YEARS POST TRANSPLANT!  :D
Sluff
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« Reply #14 on: May 18, 2008, 05:04:54 PM »
Having the parathyroid surgery on May 8th.
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rose1999
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« Reply #15 on: May 18, 2008, 10:54:36 PM »
But it's May 19th now - where are you Twirl????????? Hope you are OK.  :grouphug;
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kidney4traci
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« Reply #16 on: May 18, 2008, 10:59:41 PM »
I sent her a pm and never heard back.  I am in Houston and could check on her but do not know how to reach her.  If anyone does and wants to help, let me know.
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Married - three children.
Alports female, diagnosed ESRD 10/04
11/04  Hemo in clinic
6/07 hemo at HOME! 
2/3/09 - Transplant from an angel of a friend!!!
okarol
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Photo is Jenna - after Disneyland - 1988

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« Reply #17 on: May 19, 2008, 08:07:29 AM »

Unfortunately she did not join our emergency contact list.

TWIRL... come see us!!!!

 :-\
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
Sluff
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« Reply #18 on: May 19, 2008, 09:12:20 AM »
I sent her an email. If I get a response I'll let you all know.
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willieandwinnie
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« Reply #19 on: May 20, 2008, 05:59:36 PM »
twirl........... Please let us know you are okay.  :cuddle;
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"I know there's nothing to it, but I want to know what it is there's nothing to"
kidney4traci
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« Reply #20 on: May 20, 2008, 06:22:55 PM »
 ??? ??? :bunny: miss you twirl...


EDITED: Fixed smiley icon - okarol/admin
« Last Edit: May 20, 2008, 09:16:52 PM by okarol » Logged
Married - three children.
Alports female, diagnosed ESRD 10/04
11/04  Hemo in clinic
6/07 hemo at HOME! 
2/3/09 - Transplant from an angel of a friend!!!
okarol
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Gender: Female
Posts: 100933


Photo is Jenna - after Disneyland - 1988

WWW
« Reply #21 on: May 20, 2008, 09:17:36 PM »

 :bestwishes; thinking of you twirl
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
okarol
Administrator
Member for Life
*****
Offline Offline

Gender: Female
Posts: 100933


Photo is Jenna - after Disneyland - 1988

WWW
« Reply #22 on: May 21, 2008, 01:53:59 PM »
 :waving; She's online!! Wooo hoooo!!!  :bandance;
Logged

Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
monrein
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Posts: 8323


Might as well smile
« Reply #23 on: May 21, 2008, 01:56:50 PM »
 :bandance; :bandance; :yahoo; :waving;

Welcome back Twirl.
Logged
Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
xtrememoosetrax
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Posts: 519
« Reply #24 on: May 21, 2008, 02:04:13 PM »
 Glad you're back, twirl! You have been missed.  :big hug: 
Logged
Living donor to friend via 3-way paired exchange on July 30, 2008.

www.paireddonation.org
www.caringbridge.org/visit/marthahansen
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