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Author Topic: Get well Chris!  (Read 12484 times)
okarol
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Photo is Jenna - after Disneyland - 1988

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« on: May 10, 2008, 09:28:18 AM »

Our friend Chris is in the hospital with heart trouble. He texted my cell because he's been working on activities for our Chicago meet and wanted to be sure Paris knew that he will be back with more info soon! What a dedicated guy he is! Please join me in sending him some healing thoughts and some LOVE!
 :grouphug;
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
willieandwinnie
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« Reply #1 on: May 10, 2008, 09:29:50 AM »

:bestwishes; Chris. Hope you feel better real soon.  :cuddle;
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kitkatz
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« Reply #2 on: May 10, 2008, 09:30:17 AM »

Not supposed to be in the hospital!  Get well quickly and be tapping the keys soon!   :grouphug;
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Remember your present situation is not your final destination.

Take it one day, one hour, one minute, one second at a time.

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« Reply #3 on: May 10, 2008, 09:30:58 AM »

Bounce back Buddy we need ya around here. I need lots of help with my harem.. :grouphug;
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rose1999
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« Reply #4 on: May 10, 2008, 10:03:50 AM »

:grouphug; :grouphug; Sending lots of love and good wishes your way Chris, hope you will soon be back again (Sluffbunny really can't cope with all of us alone!!) :bunny:
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« Reply #5 on: May 10, 2008, 10:41:29 AM »

Hope your hospital stay is brief and easy and you're home and looking for trouble very soon!
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« Reply #6 on: May 10, 2008, 10:42:45 AM »

Chris:
Get Well Soon!!!!

Kim
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Romona
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« Reply #7 on: May 10, 2008, 11:03:54 AM »

Hey Chris, Get well soon.  :cuddle;
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paris
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« Reply #8 on: May 10, 2008, 11:10:19 AM »

Chris, I am sorry you are in the hospital.  Don't worry about Chicago--we'll work on it when you are better.  I just want you to feel good, heal and be ready to party in August.  Take care; I will be saying some big prayers for you :cuddle;


Chris has been so great about getting info and brochures and is helping to make this a great experience for everyone.  He is our "insider" and is a great help. :2thumbsup;
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Ohio Buckeye
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« Reply #9 on: May 10, 2008, 01:18:37 PM »

Hope you are feeling better soon Chris and back home and back online again.
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MyssAnne
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« Reply #10 on: May 10, 2008, 01:32:04 PM »

Sure hope you make it to the IHD meeting in August, Chris!

Best wishes are being sent your way, that your heart problems get better, darn it!

 :grouphug;
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monrein
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Might as well smile

« Reply #11 on: May 10, 2008, 01:56:07 PM »

Get well soon Chris.  The hospital doesn't need you like we do.
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
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« Reply #12 on: May 10, 2008, 02:00:36 PM »

Get Well soon Chris :grouphug;
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boxman55
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« Reply #13 on: May 10, 2008, 03:24:57 PM »

Chris hope you get well real quick...Boxman
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"Be the change you wished to be"
Started Hemodialysis 8/14/06
Lost lower right leg 5/16/08 due to Diabetes
Sister was denied donation to me for medical reasons 1/2008
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« Reply #14 on: May 10, 2008, 09:17:35 PM »

I'm so sorry to hear you're in the hospital Chris! Hurry up and get better!!! We miss you around here!  :cuddle; :cuddle; :cuddle;
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I HAVE DESIGNED CKD RELATED PRODUCTS FOR SALE TO BENEFIT THE NKF'S 2009 DAYTON KIDNEY WALK (I'M A TEAM CAPTAIN)! CHECK IT OUT @ www.cafepress.com/RetroDogDesigns!!

...or sponsor me at http://walk.kidney.org/goto/janetschnittger
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Diagnosed type 1 diabetic at age 6, CKD (stage 3) diagnosed at 28 after hospital error a year before, started dialysis February '09. Listed for kidney/pancreas transplant at Ohio State & Univ. of Cincinnati.
st789
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« Reply #15 on: May 10, 2008, 09:50:29 PM »

Add me to the list of healing for Chris!
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Adam_W
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Me with Baron von Fresenius

« Reply #16 on: May 10, 2008, 10:43:48 PM »

 :grouphug; I'm sending thoughts and prayers your way, Chris

Adam
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-Diagnosed with ESRD (born with one kidney, hypertension killed it) Jan 21st, 2007
-Started dialysis four days later in hospital (Baxter 1550-I think, then Gambro Phoenix)
-Started in-centre dialysis Feb 6th 2007 (Fres. 2008H)
-Started home hemo June 5th 2007 (NxStage/Pureflow)
-PD catheter placed June 6th 2008 (Bye bye NxStage, at least for now)
-Started CAPD July 4th, 2008
-PD catheter removed Dec 2, 2008-PD just wouldn't work, so I'm back on NxStage
-Kidney function improved enough to go off dialysis, Feb. 2011!!!!!
-Back on dialysis (still NxStage) July 2011 :(
-In-centre self-care dialysis March 2012 (Fresenius 2008K)
-Not on transplant list yet.


"Don't live for dialysis, use dialysis to LIVE"
Sluff
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« Reply #17 on: May 11, 2008, 08:07:59 AM »

Hey Chris, get well soon. Okay?
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angela515
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i am awesome.

« Reply #18 on: May 11, 2008, 08:13:43 AM »

I just get out and you go in... not the way things work Mr.  :P Get outta there soon, and feel better.  :grouphug;
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Live Donor Transplant From My Mom 12/14/1999
Perfect Match (6 of 6) Cadaver Transplant On 1/14/2007
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Melissa: ESRD since 1992, transplant June 10, 2008

« Reply #19 on: May 12, 2008, 03:15:14 PM »

Aww. Get well soon!  :grouphug;
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I have Alport's Syndrome. My kidneys failed when I was 14 and I was on PD for five years before receiving a kidney transplant from my mother. That kidney failed in 2004 and I've been back on PD ever since. I am undergoing treatment for my high antibodies at Cedars-Sinai medical center. I had a kidney transplant on June 10, 2008. My boyfriend was the donor.
annabanana
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« Reply #20 on: May 12, 2008, 03:19:22 PM »

Healing thoughts to you, Chris.
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HepC and stage 4 ckd
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« Reply #21 on: May 13, 2008, 06:15:36 AM »

Thanks everyone.
I tried to write a short version of what happened to Karol, but lost everything when I used the Spell Check feature. So I typed it up in Word and it turned up being lengthy.



Wednesday May 7, I had on and off chest pressure. Didn’t think much about it and went to bed.

Thursday May 8, woke up with chest pressure still occurring. This time it was not going away, but went to take my final and figured it would pass also. Done taking final, I call my GP doc wondering if there was a quick fix, blood test, or something not requiring an ER visit, but get answering service instead. So I travel towards home and stop to get mother’s day card (not a good variety this year of humorous cards this year) and as I am going thru almost all the cards, I get a call from my doctors nurse. She tells me there is no quick fix and I have to go to the ER. Since I didn’t finish picking a card out yet and didn’t think I would be admitted, I continued to look for a card and then leave for the hospital.

I get to the hospital’s ER area at 12:30 pm and tell them what has been happening and they take me right back. Idiot #1 enters the scene and asks me to step on the scale with my coat on. She didn’t want me to take it off. Well crap! Weight is going to be way off with this coat on. She proceeds to take my vitals and records from my medication sheet what I take tat I bring with in my folder. She takes me to a room, but also takes my folder that had all my medical information and insurance cards. So I get into the dinky hard to close freeze your butt off gown and wait 20 minutes for the nurse to comeback. She was about to take blood pressure from my left arm till I told her she couldn’t and why. So she puts up the usual medical sign to not use left arm for b/p or vp and proceeds to start an IV line. Doctor comes in a few minutes later and asks the same questions the other two nurses asked on why am I here. I tell him the same thing and he orders blood test and a nitroglycerin pill.

Then idiot #2 enters the scene. The lab tech apparently missed sign #1 and sign #2 on not to use left arm, or can not read English at a grade school level. Tough call there! I tell her she can not use my left arm and she begins to give me an attitude as I am telling her why. So I jot down her name to complain later. Then an EKG tech comes in to do a test and a chest x-ray an hour later. So I lie there waiting and waiting for someone to come in to just check up on me, even when I disconnect an O2 sensor or a heart monitor lead. Apparently that’s the first thing they check instead of asking “are you alright?” So there I lay boredom a bed that I am to long or big for and the doc finally comes in after 4 pm to tell me the test done so far comeback negative and asked me how I felt after the nitroglycerin pill. I told him I felt better and noticed I could breathe better that I didn’t notice I had a problem before. He then tells me we can keep you for observation or admit me to find the cause of the pressure feeling. Well duhhhhh! I want to find out what is the cause of the problem is. So more waiting, but he already decided to admit me anyway due to my medical history and talking to my doctor. So there I lay by myself again, smelling  fresh brewed coffee I would love to have instead of this cup of ice water they left me that I won’t touch. I ended up dozing off, but can hear people walking by making loud sounds. Then 8 pm rolls around and a new nurse comes in to see how I was doing and to tell me that a room will be ready in 15 minutes. I proceeded to tell her that I haven’t had anything to drink since this morning and would like some decaf coffee or even some regular coffee. She asked when the last time I ate was and I said yesterday afternoon. She tells me that she will be right back with something and I am hoping it’s a coffee! A few minutes pass by and a transporter comes in to my room to take me upstairs at 8:27 pm and the first thing I thought, crap, no coffee! Then the nurse comes running in and hands me a brown bag and 2 of those 4 oz apple juice containers. Brown bag was odd o me till I got upstairs to find a chicken sandwich, pudding, a cookie, cranberry juice, and potato chips inside. This stuff use to come in a nice neat packed box, I guess paper sack was a real cost cutting measure.

So there I am in a room finally and then it dawns on me, I have the usual roommate that I get 99.9% of the time I am here. The other .1% is when I have my own room there where there is peace and quiet. I never get a quiet or sane roommate and I already know I won’t get any rest. Turn on the tv, but fall asleep. I wake up at 10:00 pm and ask the nurse about my meds. He tells me that the pharmacy is running behind and told me to wait. I told him I can’t wait. I only have an hours window before my immunosuppressant’s become ineffective. He then asks if I had my meds with. I said yes, but they are out in my vehicle and I’ll go get them. At that poi I’m thinking I wish I didn’t rush to get out of class and put them in my book bag instead of my coat. He say’s no, I can’t go out to my vehicle and he goes over my meds and I discover that the nurse downstairs or who ever copied my meds down wrote down what meds are taken at what times they are taken. Crap, when will they ever get this right! Anyway the nurse calls down the pharmacy and tells them that I need my meds ASAP and I get them by 10:37 pm. Then the nurse proceeds to ask me if I wanted a sleeping pill, I told him yes, and he asked me how many, 1 or 2. I said 2 with the roommate I have.

Well that night I was out cold and pretty much the next day, but was awaken by nurse who wanted to give me one pill. I asked here what it was, then told here I’m not taking it. ItAt 7am it was to early and that type of med goes with taking my immuno meds, not by itself, what good is it going to do to me. So she gives me an attitude about that. Well that was next name on the list to complain about, but start to wonder if these people can read and right Why do they copy my medication list and do not follow it is beyond me. Not sure how much simpler I can make it.  After lunch, more test begin. First was a echocardiogram. That was fast, but as soon as I was taken up to my room, I am taken back down to nuclear medicine for a stress test. First part of the test is done with a dye injection and a 3-D scan of the heart is taken. Will ere comes idiot #3 giving me crap on how to hold my arm. So I yell back I can’t do it that way. H tells me I have to hold my arms straight above my head. Well when I do that, my left arm becomes weak and blood flow is not to good because of the graft in my arm. This test takes 15 minutes and he tells me to quit moving my arm. Wish I could idiot, but I can’t, I’m loosing feeling and can’t hold it up without wiggling my fingers or bending my arm to circulate blood. Finally done dealing with this jack in the box and I’m off to the treadmill. Doctor comes in and tells me he has never worked with a transplant patient before and ask me why I’m not on Lipitor. I told him I was taken off it after my transplant and my numbers are good, I just had them checked, go look on the computer. Well while on the treadmill, only wearing socks (not the best thing to wear on a treadmill!), I pass the standard mark, so they rev the rpm up and angle. 5 minutes later they rev it up again all the while adding more dye to my body. At this stage I am running in the worst kind of way, holding my hands out onto a bar and wearing only socks, which is not the best way for me to run. At this point I am running out of energy and the treadmill stops. Once the treadmill stopped, I got nauseated real fast and then the chest pressure begins. At the same time the doctors I give you a C for effort. WT$! I’m nauseated and have chest discomfort and you tell me this! Give me some shoes and don’t tell me to hold the bar in front of me and I could have done better.

Back to scanning room and this time I have a different tech. She tells me I only need to hold my arms above my head just to clear the machine and then I can rest them comfortably. This made the experience 100% tolerable compared to dealing with idiot#3. And back to my room I go.
I get back to my room and find that I will have no rest since roommates family and their small kids are there taking up most of the room yacking away. Great, no peace and quiet and now I gotta worry about these small kids spreading germs I don’t need to catch. GET ME OUTTA HERE!!!!!!  Luckily the test wore me out a little and I dozed off. 10 pm rolls around and my meds are given and again asked if I wanted a sleeping pill and how many. I say 2 and I fall asleep. Then at 2 am I am woken up by my roommate screaming his head off having a nightmare. CAN’s come in wondering what is going on and this guy thinks he is in a jeep and begins talking to people that are not even there. A few minutes later he turns the TV on at full blast. So I leave the room wandering the hallways looking for a quiet area to sit and snooze. Only place I find is the surgical waiting room, but there are people waiting there, so no luck sitting there. So I walk the hallways and thought about sneaking downstairs to the vending machines o get some decaf coffee, but there are nurses and security guards wandering the hallways. 5 am rolls by and I try togo back to bed since it is quiet now in there. I doze off, but awaken at 6:30 am by room service asking what I want to order. I said peace and quiet, I want some sleep and I hang up and go back to sleep. &:30 am I am awaken again this time by a dialysis tech for my roommate. Guess trying to be quiet to not disturb anyone else is out of their realm. Then I thought, I hope I don’t have to use the washroom since he has equipment in there! So I put my head between two pillows to try to drown out the noise and pull my blankets over me to get some sleep. Well that almost worked till the roommate became combative with the tech trying to pull his needles out constantly and trying to leave. CRAP!! GET ME OUT OF HERE NOW or I will beat this man with a baseball bat to shut him up and calm him down NOW! He constantly did this throughout his session.

Finally, I get some news from the test. Doctor comes in and wakes me wondering why I am covered up, head between two pillows. I tell him why and that I need to get out of here due to roommate. He tells me that it wasn’t a heart attack, but there is some swelling of the heart that is due to diabetes complications and that the cause for the chest pressure is due to acid reflux which nitroglycerin also helps, but would like to do more test and will talk to the other doctors. The cardiologist comes in my room 2 hours later and asks me why I am covered up with my head between two pillows and I proceeded to tell him why. He tells me what I already been told and we discuss what diabetes does to the body and he would like to see me on Lipitor even though my numbers are good.

Doctor #3 comes in; the nephrologist on duty from my clinic asks me the same question the other doctors asked about. Why am I under the covers with my head between two pillows? She then asked me when was the last time I urinated and I told her yesterday before lunch, but I haven’t eaten or drank anything since. I had no appetite or thirst. I just want to get out of here and get some rest. She then say’s she will push more IV fluids and I argue about that. I told her I would do better if I was not here, especially with this roommate. She leaves and says’s nothing. So at 2:30 pm I call the nurse to ask about my discharge papers. I get no reply. Call again and no reply and this is way before a shift change. Finally at 4 pm the nurse comes in and asks if I am ready to go home. I told her yes and she tells me she will get my papers ready. So I start taking my heart monitor off, change my clothes, get my shoes on, and begin peeling all the tape off my arm holding the IV line in place. Could have taken it out myself, but didn’t want to go to the middle of the room to empty the IV line in the biohazard wastebasket and risk seeing or getting in some odd conversation with roommate.

Nurse comes back into room after 4:30 pm and see’s that I am ready to go. She pulls out my IV line and starts to tell me I have to wait for transport to take me down. I tell her I can walk and my vehicle is close o the front. She then tells me I won’t have to wait, she will take me downstairs. Get downstairs and just missed the coffee shop from closing. Crap, I need some real coffee. On my way home, I stop at Starbucks and use my gift card to get a large decaf raspberry latte and then proceed to go to the pharmacy for my prescription.

I get home and look at my discharge papers and notice that the papers where ready at 1:58 pm, SO$ I begin l Lipitor that night and had nothing but problems with it. The side effects are to adverse for me and my nephrologist said to stop taking it when I talked to her on Monday.

And that’s what happened in a nutshell.



There ya go Chris.

EDITED: Copied and paste document - Sluff/Admin


« Last Edit: May 13, 2008, 10:48:01 AM by Sluff » Logged

Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
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« Reply #22 on: May 13, 2008, 08:27:10 AM »

WOW!  That was an experience!  Thank you for chronicling it for us like that.   As Clitheroe Kid used to say (the Brits over 40 will know this) "Don't some mothers hav'em!"  The rank ignorance (sometimes) of the people who have our lives in their hands can be chilling at times!
Glad you made it through!!
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I LOVE  my IHD family! :grouphug;
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« Reply #23 on: May 13, 2008, 08:40:37 AM »

Oh Chris!!! What a horrible horrible experience!!!  I HATE going to someplace new that doesn't know my/our history,and this is why!!!

Man, I am glad you are home, now, and I'm glad it wasn't a heart attack too!!! 
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Dogs & IHDer's are always glad to see you!

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« Reply #24 on: May 13, 2008, 08:51:43 AM »

Yikes!!  :o  I'm so sorry you had to go through that. I'm glad you're feeling better and that you got you're coffee!
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I HAVE DESIGNED CKD RELATED PRODUCTS FOR SALE TO BENEFIT THE NKF'S 2009 DAYTON KIDNEY WALK (I'M A TEAM CAPTAIN)! CHECK IT OUT @ www.cafepress.com/RetroDogDesigns!!

...or sponsor me at http://walk.kidney.org/goto/janetschnittger
********************************************************
Twitter.com/NKFKidneyWalker
www.facebook.com/profile.php?id=1659267443&ref=nf 
www.caringbridge.org/visit/janetschnittger

Diagnosed type 1 diabetic at age 6, CKD (stage 3) diagnosed at 28 after hospital error a year before, started dialysis February '09. Listed for kidney/pancreas transplant at Ohio State & Univ. of Cincinnati.
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