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Author Topic: Last Post Loves IHD The Most!  (Read 1833643 times)
conchman
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« Reply #26900 on: March 22, 2012, 01:35:01 PM »
Very, very, tired, but look mom...no hands...

 :o
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"If I had trouble the warranty said, breathe in, breathe out, move on"- J.Buffett

1991 diagnosed PKD (kidneys, liver)
2010 kidneys at 35% (left 2x size)
2011 kidneys at 30% (left 2x size)
YLGuy
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« Reply #26901 on: March 22, 2012, 09:12:26 PM »
 :urcrazy;
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conchman
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« Reply #26902 on: March 23, 2012, 09:14:08 AM »
Here comes the weekend...

 :bandance; :clap; :yahoo; :bandance;
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"If I had trouble the warranty said, breathe in, breathe out, move on"- J.Buffett

1991 diagnosed PKD (kidneys, liver)
2010 kidneys at 35% (left 2x size)
2011 kidneys at 30% (left 2x size)
cassandra
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When all else fails run in circles, shout loudly
« Reply #26903 on: March 23, 2012, 04:07:12 PM »
Yup and a short one here, cos the clocks go forward this Saturday.
Logged
I started out with nothing and I still have most of it left

1983 high proteinloss in urine, chemo, stroke,coma, dialysis
1984 double nephrectomy
1985 transplant from dad
1998 lost dads kidney, start PD
2003 peritineum burst, back to hemo
2012 start Nxstage home hemo
2020 start Gambro AK96

       still on waitinglist, still ok I think
Chris
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« Reply #26904 on: March 23, 2012, 05:11:21 PM »
It's a good news/ bad news sort of day twice in one day. One from doctor visit and the other from guide dog school.
Instead of going to California, they are sending me to Oregon due to the airport I prefer to use at this time due to road construction leaving a 2 mile plus detour to get to airport and having a non stop flight. While it is not bad news, it is disappointing because I had my heart set on California. I hope to change that when I get there.
Logged
Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
cassandra
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When all else fails run in circles, shout loudly
« Reply #26905 on: March 24, 2012, 05:10:17 PM »
its sounds still okay, you can allways go to California with the dog later? Do I hear that you 'sound' a bit better?

love Cas
Logged
I started out with nothing and I still have most of it left

1983 high proteinloss in urine, chemo, stroke,coma, dialysis
1984 double nephrectomy
1985 transplant from dad
1998 lost dads kidney, start PD
2003 peritineum burst, back to hemo
2012 start Nxstage home hemo
2020 start Gambro AK96

       still on waitinglist, still ok I think
conchman
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« Reply #26906 on: March 27, 2012, 01:34:27 PM »
Next...

 :boxing;
Logged
"If I had trouble the warranty said, breathe in, breathe out, move on"- J.Buffett

1991 diagnosed PKD (kidneys, liver)
2010 kidneys at 35% (left 2x size)
2011 kidneys at 30% (left 2x size)
YLGuy
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Posts: 4901
« Reply #26907 on: March 27, 2012, 02:31:39 PM »
 ;D
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Chris
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« Reply #26908 on: March 27, 2012, 03:10:09 PM »
After yesterday's excursion fiasco of lightheadedness going thru Bass Pro Shops, I took the pup on a longer walk today. I'm worn out and so is he for once!
Logged
Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
cassandra
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Gender: Female
Posts: 4974


When all else fails run in circles, shout loudly
« Reply #26909 on: March 28, 2012, 05:03:59 AM »
well, being worn out from physical exersion is good, feels like building up stamina exercise. Are you, and the pup hungry?
Logged
I started out with nothing and I still have most of it left

1983 high proteinloss in urine, chemo, stroke,coma, dialysis
1984 double nephrectomy
1985 transplant from dad
1998 lost dads kidney, start PD
2003 peritineum burst, back to hemo
2012 start Nxstage home hemo
2020 start Gambro AK96

       still on waitinglist, still ok I think
Chris
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Posts: 9219


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« Reply #26910 on: March 28, 2012, 02:46:27 PM »
Quote from: cassandra on March 28, 2012, 05:03:59 AM
well, being worn out from physical exersion is good, feels like building up stamina exercise. Are you, and the pup hungry?

He was, but nothing new about that. I wasn't and obnly had bread atnd soup late at night:
Logged
Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
cassandra
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Gender: Female
Posts: 4974


When all else fails run in circles, shout loudly
« Reply #26911 on: April 09, 2012, 03:07:15 AM »
Hay Chris, wishing you all the best for your trip Wednesday. I didn't want to forget to say that, so a day early is better than too late, I think. Good luck babes.

love Cas
Logged
I started out with nothing and I still have most of it left

1983 high proteinloss in urine, chemo, stroke,coma, dialysis
1984 double nephrectomy
1985 transplant from dad
1998 lost dads kidney, start PD
2003 peritineum burst, back to hemo
2012 start Nxstage home hemo
2020 start Gambro AK96

       still on waitinglist, still ok I think
Chris
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Gender: Male
Posts: 9219


WWW
« Reply #26912 on: April 09, 2012, 11:22:02 PM »
Thanks cass. I am goning to my friends house to stay there Tuesday night so I can be taken to the airport early Wednesday and then stay there till Sunday after flying back.
Logged
Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
YLGuy
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Posts: 4901
« Reply #26913 on: April 10, 2012, 10:44:29 AM »
 :)
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conchman
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« Reply #26914 on: April 11, 2012, 11:13:13 AM »
Not today YL... ;D    ;D
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"If I had trouble the warranty said, breathe in, breathe out, move on"- J.Buffett

1991 diagnosed PKD (kidneys, liver)
2010 kidneys at 35% (left 2x size)
2011 kidneys at 30% (left 2x size)
YLGuy
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Posts: 4901
« Reply #26915 on: April 11, 2012, 08:53:05 PM »
 ;D  :sir ken;  ;D
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Sue
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« Reply #26916 on: April 12, 2012, 03:26:53 AM »
 :o
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Life is not measured by the number of breaths we take, but by the moments that take our breath away.
conchman
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« Reply #26917 on: April 12, 2012, 04:41:11 AM »
Today's Thursday...

That means.....Big Bang and pizza...(only two slices makes me full)  but... :cheer:


 :bandance;

Next...
Logged
"If I had trouble the warranty said, breathe in, breathe out, move on"- J.Buffett

1991 diagnosed PKD (kidneys, liver)
2010 kidneys at 35% (left 2x size)
2011 kidneys at 30% (left 2x size)
cassandra
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*****
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Gender: Female
Posts: 4974


When all else fails run in circles, shout loudly
« Reply #26918 on: April 12, 2012, 03:59:35 PM »
Whats happening Chris?
Logged
I started out with nothing and I still have most of it left

1983 high proteinloss in urine, chemo, stroke,coma, dialysis
1984 double nephrectomy
1985 transplant from dad
1998 lost dads kidney, start PD
2003 peritineum burst, back to hemo
2012 start Nxstage home hemo
2020 start Gambro AK96

       still on waitinglist, still ok I think
conchman
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Posts: 339
« Reply #26919 on: April 12, 2012, 05:32:02 PM »
Big Bang is a re-run, pizza however not bad... 8)
Logged
"If I had trouble the warranty said, breathe in, breathe out, move on"- J.Buffett

1991 diagnosed PKD (kidneys, liver)
2010 kidneys at 35% (left 2x size)
2011 kidneys at 30% (left 2x size)
YLGuy
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*****
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Gender: Male
Posts: 4901
« Reply #26920 on: April 12, 2012, 08:14:05 PM »
 :popcorn;
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conchman
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« Reply #26921 on: April 13, 2012, 04:52:03 AM »
TGIF...

 :waving;
Logged
"If I had trouble the warranty said, breathe in, breathe out, move on"- J.Buffett

1991 diagnosed PKD (kidneys, liver)
2010 kidneys at 35% (left 2x size)
2011 kidneys at 30% (left 2x size)
Chris
Member for Life
******
Offline Offline

Gender: Male
Posts: 9219


WWW
« Reply #26922 on: April 14, 2012, 05:40:01 PM »
Guide Dog further evaluation did not go well, pretty much from the start wth the person who was doing the evaluation. I use my cane to well to need a guide dog is one comment she said and that I am to detail/analytical to use a guide dog effectively. She said even tho it is a new city that I never been to before and didn't know area, that should not be one of my concerns. It also seems asking a question after she mentions something is wrong to do. f this was the case, she should have just shut up and let me do the trial run or do it again while she stays quiet and acts like a guide dog. It was a bad experience and hope to either complain or talk to someone in the main office. She seemed rude right from the start.
 
On the positive side, I did finally get to meet another person who has had a k/p yx and similar experiences of becoming a diabetic, when our eye sight deteriorated, years of transplant. So we exchanged emails. Unfortunatelly she live to far away! :banghead;
 
Anyway I sent an email to the facility that did accept me fully to see if t was to late to send letter in and to see if I need doctor letters, but still hoping to hear back from the main facility of my first choice in guide dog facilities after I share my concerns.
 
So I should have a guide dog by the end of July when I go with second choice in guide dog facilities.
Logged
Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
cassandra
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Gender: Female
Posts: 4974


When all else fails run in circles, shout loudly
« Reply #26923 on: April 15, 2012, 04:47:03 AM »
ridiculous, I've never heard of people not getting a guide-dog cause you use your stick too well. Man.....
But glad to hear you met someone whom you can email with, and great you get a guide-dog even when it is you second choice. But wow, end of July will be here before you know it.



        :2thumbsup;



lots of love Cas
Logged
I started out with nothing and I still have most of it left

1983 high proteinloss in urine, chemo, stroke,coma, dialysis
1984 double nephrectomy
1985 transplant from dad
1998 lost dads kidney, start PD
2003 peritineum burst, back to hemo
2012 start Nxstage home hemo
2020 start Gambro AK96

       still on waitinglist, still ok I think
Chris
Member for Life
******
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Gender: Male
Posts: 9219


WWW
« Reply #26924 on: April 15, 2012, 02:08:53 PM »
In a way, it felt like I was going thru the transplant process again. I want my concerns heard tho and an explanation.
Logged
Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
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