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Author Topic: Last Post Loves IHD The Most!  (Read 1833631 times)
YLGuy
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« Reply #26875 on: March 13, 2012, 11:57:40 AM »

 :popcorn;
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cassandra
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When all else fails run in circles, shout loudly

« Reply #26876 on: March 13, 2012, 01:18:33 PM »

Oh no, poor Chris, what on earth happended?
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I started out with nothing and I still have most of it left

1983 high proteinloss in urine, chemo, stroke,coma, dialysis
1984 double nephrectomy
1985 transplant from dad
1998 lost dads kidney, start PD
2003 peritineum burst, back to hemo
2012 start Nxstage home hemo
2020 start Gambro AK96

       still on waitinglist, still ok I think
conchman
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« Reply #26877 on: March 14, 2012, 04:19:30 AM »

Morning all...


  ;)
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"If I had trouble the warranty said, breathe in, breathe out, move on"- J.Buffett

1991 diagnosed PKD (kidneys, liver)
2010 kidneys at 35% (left 2x size)
2011 kidneys at 30% (left 2x size)
YLGuy
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« Reply #26878 on: March 14, 2012, 08:58:23 AM »

 :waving;
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Chris
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« Reply #26879 on: March 14, 2012, 12:26:58 PM »

Oh no, poor Chris, what on earth happended?


I don't know and feel like walking out due to one doctors attitude. Not to mention getting mystery meals and expect to eat it. If I have no part in choosing my food, do not send anything .
Logged

Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
Chris
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« Reply #26880 on: March 15, 2012, 08:23:46 AM »

Might go home today. Told to eat salty foods to
Logged

Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
YLGuy
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Posts: 4901

« Reply #26881 on: March 15, 2012, 08:47:02 AM »

 :thumbup;  :popcorn;
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conchman
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« Reply #26882 on: March 15, 2012, 10:46:50 AM »

Can't wait, Big Bang Pizza night... :2thumbsup;
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"If I had trouble the warranty said, breathe in, breathe out, move on"- J.Buffett

1991 diagnosed PKD (kidneys, liver)
2010 kidneys at 35% (left 2x size)
2011 kidneys at 30% (left 2x size)
YLGuy
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Posts: 4901

« Reply #26883 on: March 15, 2012, 11:02:50 AM »

 :2thumbsup;
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cassandra
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When all else fails run in circles, shout loudly

« Reply #26884 on: March 15, 2012, 05:31:07 PM »

or some crisps (with binder), and wellcome home.
At least you can know now what you eat. I hope you feel okay,  and get strong enough to go on your trip.

love Cas
Logged

I started out with nothing and I still have most of it left

1983 high proteinloss in urine, chemo, stroke,coma, dialysis
1984 double nephrectomy
1985 transplant from dad
1998 lost dads kidney, start PD
2003 peritineum burst, back to hemo
2012 start Nxstage home hemo
2020 start Gambro AK96

       still on waitinglist, still ok I think
Chris
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« Reply #26885 on: March 15, 2012, 11:28:14 PM »

I'm home, have to wear mask in public since immune system s lowered. Take this, eat that, drink this, avoid that, see us in a week, see G.. doctor for follow up (no idea why). Came home, greeted by cat who wanted my attention, opened mail, fell asleep till 10 pm Got up and went downstairs to hang out with pup and he pretty much was well behaved for once. No jumping up on me, no runing off to go upstairs, quiet, and just wanted to be petted. Seems to have gotten bigger since I last saw him pretty much a month ago.
Logged

Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
cassandra
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Gender: Female
Posts: 4974


When all else fails run in circles, shout loudly

« Reply #26886 on: March 16, 2012, 01:48:40 AM »

pup must have been fed well, ask the recipe, maybe you can share. Glad you're home,
Are you allowed to try to increase your immune-system with supplements or something, or is that straight away a problem with rejection?


                                  :grouphug;


love Cas
Logged

I started out with nothing and I still have most of it left

1983 high proteinloss in urine, chemo, stroke,coma, dialysis
1984 double nephrectomy
1985 transplant from dad
1998 lost dads kidney, start PD
2003 peritineum burst, back to hemo
2012 start Nxstage home hemo
2020 start Gambro AK96

       still on waitinglist, still ok I think
Chris
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Posts: 9219


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« Reply #26887 on: March 16, 2012, 02:26:07 AM »

Do nothing unless we tell you or in this case wait till I see them April 2 with updated labs.
Logged

Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
cassandra
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*****
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Gender: Female
Posts: 4974


When all else fails run in circles, shout loudly

« Reply #26888 on: March 17, 2012, 05:14:37 AM »

that's a bit of a wait, sigh. well keep strong, eat healthy, and drink good,
I hope you have a bit of a nice weekend,

love Cas
Logged

I started out with nothing and I still have most of it left

1983 high proteinloss in urine, chemo, stroke,coma, dialysis
1984 double nephrectomy
1985 transplant from dad
1998 lost dads kidney, start PD
2003 peritineum burst, back to hemo
2012 start Nxstage home hemo
2020 start Gambro AK96

       still on waitinglist, still ok I think
kitkatz
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« Reply #26889 on: March 17, 2012, 05:58:09 PM »

Last post buys dinner!  :rofl;
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lifenotonthelist.com

Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5

Remember your present situation is not your final destination.

Take it one day, one hour, one minute, one second at a time.

"If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1
Chris
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« Reply #26890 on: March 17, 2012, 09:54:20 PM »

Cas, I read my discharge sheets today and found that they forgot to tell me something, get labs once a week! I normally do not read discharge sheets, this time lucky I did.

Took pup out for a walk, but could barely do .25 of a normal route. Basically went around the block getting light-headed. Posted video of him in the backyard on FB. He has gotten bigger since I last did anything with him in the first week of Feb.
Logged

Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
cassandra
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*****
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Gender: Female
Posts: 4974


When all else fails run in circles, shout loudly

« Reply #26891 on: March 18, 2012, 09:33:28 AM »

definitely a good thing you looked this time. You probably feel better soon, and can walk further, cos you have probably not been eating well for a bit right? Take care,

love Cas
Logged

I started out with nothing and I still have most of it left

1983 high proteinloss in urine, chemo, stroke,coma, dialysis
1984 double nephrectomy
1985 transplant from dad
1998 lost dads kidney, start PD
2003 peritineum burst, back to hemo
2012 start Nxstage home hemo
2020 start Gambro AK96

       still on waitinglist, still ok I think
Chris
Member for Life
******
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Gender: Male
Posts: 9219


WWW
« Reply #26892 on: March 18, 2012, 04:41:05 PM »

So far prednisone is not doing a thing about appetite



I emailed a woman who is part of, not sure it's called a support group or not, but a group of guide dog users from a specific school who have meetings via confrence calling.

Anyway she cleared up concerns/ worries on why I had to fly out for 3 day's to try a couple dogs and to see if I  qualify. The reason this is done is so your not in class 2 weeks and have to be sent home without a dog because one may not be able to do task such as bending down to put harness on. Now I feel more confident I will get to go with my first choice of guide dog facilities. 
Logged

Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
Chris
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Gender: Male
Posts: 9219


WWW
« Reply #26893 on: March 18, 2012, 05:31:18 PM »

Somehow I lost the ability to use smileys on my iPhone just when I finally get to use my phone on IHD too!

Yes, I looked at the checkbox below!
Logged

Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
YLGuy
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Gender: Male
Posts: 4901

« Reply #26894 on: March 18, 2012, 07:56:19 PM »

 :o
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cassandra
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Posts: 4974


When all else fails run in circles, shout loudly

« Reply #26895 on: March 19, 2012, 02:27:45 AM »

well, I can't even use smileys on my 'normal' computer. I'll try again

 :urcrazy;


nope
Logged

I started out with nothing and I still have most of it left

1983 high proteinloss in urine, chemo, stroke,coma, dialysis
1984 double nephrectomy
1985 transplant from dad
1998 lost dads kidney, start PD
2003 peritineum burst, back to hemo
2012 start Nxstage home hemo
2020 start Gambro AK96

       still on waitinglist, still ok I think
conchman
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Gender: Male
Posts: 339


« Reply #26896 on: March 19, 2012, 04:44:17 AM »

Morning all, looks like I'm a winner, for a least the next few minutes...


 :bandance;
Logged

"If I had trouble the warranty said, breathe in, breathe out, move on"- J.Buffett

1991 diagnosed PKD (kidneys, liver)
2010 kidneys at 35% (left 2x size)
2011 kidneys at 30% (left 2x size)
Chris
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******
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Gender: Male
Posts: 9219


WWW
« Reply #26897 on: March 20, 2012, 04:19:09 PM »

I finally got a call back from my first choice guide dog school on flight plans. I will be flying out the second week of April for 3 days to try out a couple dogs and get class schedule on the Friday I fly back.
 
So in 3 weeks I have to get in better health/ recover better! Can't wait for my complimentary airline peanuts! :sarcasm;
Logged

Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
cassandra
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*****
Offline Offline

Gender: Female
Posts: 4974


When all else fails run in circles, shout loudly

« Reply #26898 on: March 22, 2012, 07:05:24 AM »

great Chris, that's only a few days away. Definitely keep up the exercise honey, and good luck




 :bandance;
Logged

I started out with nothing and I still have most of it left

1983 high proteinloss in urine, chemo, stroke,coma, dialysis
1984 double nephrectomy
1985 transplant from dad
1998 lost dads kidney, start PD
2003 peritineum burst, back to hemo
2012 start Nxstage home hemo
2020 start Gambro AK96

       still on waitinglist, still ok I think
YLGuy
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Gender: Male
Posts: 4901

« Reply #26899 on: March 22, 2012, 08:01:07 AM »

 :thumbup;
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