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Author Topic: Last Post Loves IHD The Most!  (Read 1833445 times)
jbeany
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Cattitude
« Reply #26450 on: July 09, 2011, 05:27:18 PM »
Quote from: Chris on July 08, 2011, 09:53:24 PM
Pain level scale needs to go higher than 10!

That damn scale is useless.  "With 10 as the worst pain you've ever felt."  Well, let's see, the worst pain I've ever felt was when my intestines tied themselves in a knot the day after my kidney pancreas transplant, and no one believed there was anything wrong.  They figured I was drug seeking and simply constipated and left me alone in the hospital room for an hour, screaming.

So when I tell you my pain level right now is a 5 - it freakin' hurts!
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"Asbestos Gelos"  (As-bes-tos yay-lohs) Greek. Literally, "fireproof laughter".  A term used by Homer for invincible laughter in the face of death and mortality.
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« Reply #26451 on: July 09, 2011, 09:10:58 PM »
Pain scale still puzzles me when I am asked how do I feel!
Logged
Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
Sugarlump
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10 years on and off dialysis
« Reply #26452 on: July 11, 2011, 11:51:36 AM »
Quote from: galvo on July 08, 2011, 09:32:29 PM
Hey, Sugarlump, have you got enough koalas to throw on the barby?

Hiya Galvo (Are you coming then????)  ;D
Will be having bbq shrimp and bbg scallops and bacon as well as sausages (can't get koala from my local butcher!!!)
Trying to find ostrich ... and some form of Australian tinnies to serve!!!
And I am struggling to find cardboard crocodiles may have to find oher decs for garden have flags and signs!!!!
Logged
10 years of half a life
3 years HD 1st transplant Feb 08 failed after 3 months
Back to HD 2nd transplant Dec 10 failed after 11 months
Difficult times with a femoral line and catching MSSA (Thank you Plymouth Hospital)
Back on HD (not easy to do that third time around)
Fighting hard (two years on) to do home HD ... watch this space!
Oh and I am am getting married 1/08/15 to my wonderful partner Drew!!!
The power of optimism over common sense :)
Chris
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« Reply #26453 on: July 11, 2011, 01:16:18 PM »
Well bacon and sausage are about the only things that sound good there, I'm a picky eater, what can I say. I know what I like.
Logged
Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
Poppylicious
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« Reply #26454 on: July 11, 2011, 01:38:28 PM »
Quote from: Sugarlump on July 08, 2011, 04:16:36 AM
POPPY I having a bbq on sat 30th July if you want to come over!!!!
Aussie themed!!!!
And it will NOT rain  :cheer:  :cheer:  :cheer:
Of course it will rain ... it wouldn't be an (Australian themed) English barbecue if it didn't rain!  No barbecued koala?  Not sure I can make it then ...  :P
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- wife of kidney recepient (10/2011) -
venting myself online since 2003 (personal blog)
grumbles of a dialysis wife-y (kidney blog)
sometimes i take pictures (me, on flickr)

Everything was beautiful, and nothing hurt.
tyefly
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This will be me...... Next spring.... I earned it.
« Reply #26455 on: July 11, 2011, 03:36:19 PM »
Chris...... your puppy is so cute.....   glad you got a friend...

Food craving..... I have had many of them since I have had this CKD stuff.....  use to be eggs....now its hot dogs and steak... I can eat the same thing day after day.... hots dogs for breakfast lunch and dinner....  snack.....LOL
Logged
IgA Nephropathy   April 2009
CKD    May 2009
AV Fistula  June 2009
In-Center Dialysis   Sept 2009
Nxstage    Feb 2010
Extended Nxstage March 2011

Transplant Sept 2, 2011

  Hello from the Oregon Coast.....

I am learning to live close to the lives of my friends without ever seeing them. No miles of any measurement can separate your soul from mine.
- John Muir

The clearest way into the Universe is through a forest wilderness.
- John Muir
Chris
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« Reply #26456 on: July 11, 2011, 03:55:16 PM »
Thanks Tyefly.  can't wait for him to stop bitting tho. I hate it when he nips my ankles, but worse is my bad  knee. :stressed;
Logged
Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
Chris
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« Reply #26457 on: July 11, 2011, 06:22:20 PM »
Thanks Tyefly.  can't wait for him to stop bitting tho. I hate it when he nips my ankles, but worse is my bad  knee. :stressed;
« Last Edit: July 11, 2011, 06:23:21 PM by Chris » Logged
Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
YLGuy
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« Reply #26458 on: July 11, 2011, 06:38:42 PM »
 :rofl;
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Chris
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« Reply #26459 on: July 11, 2011, 06:43:13 PM »
This might happen to me tho!
Logged
Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
Sugarlump
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Posts: 2160


10 years on and off dialysis
« Reply #26460 on: July 13, 2011, 05:50:44 AM »
I was feeling really blue today til I started reading posts on here and couldn't stop laughing
Vegas is going to be such fun

Thank God for my IHD friends  :rofl;  :rofl;  :rofl;
Logged
10 years of half a life
3 years HD 1st transplant Feb 08 failed after 3 months
Back to HD 2nd transplant Dec 10 failed after 11 months
Difficult times with a femoral line and catching MSSA (Thank you Plymouth Hospital)
Back on HD (not easy to do that third time around)
Fighting hard (two years on) to do home HD ... watch this space!
Oh and I am am getting married 1/08/15 to my wonderful partner Drew!!!
The power of optimism over common sense :)
Chris
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« Reply #26461 on: July 13, 2011, 09:05:21 AM »
Is it wrong to sleep and let parents take care of dog for once?
I had been out in the heat yesterday going to pick up papers from doc and getting lab results, then had cane training out in the heat. I do not do well with heat, I get tired and loose energy. So I was awoken by the dog barking and my parents were up. They took the pup out over an hour ago and tell him to settle down and go to sleep since it was 12 am. Well he didn't sstop and had to go and he did, all over his crate and self. Instead of taking the dog out like their my mom's instinct was, my dad said to quiet him down. So they had to bath him, clean up the crate in the middle of the night while I slept. Then this morning I get crap for not waking up. Oh well is my thought, you wanted the dog also, you have to share the responcability. If he is my dog and my dog only, then I will take full responcability. So far today is going easier, but wish my pain would go away fully. Not looking forward to upcoming test when doc comes back from vacation.
Logged
Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
YLGuy
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« Reply #26462 on: July 13, 2011, 07:07:23 PM »
I watched 127 Hours during dialysis today.  It was kind of weird sitting there not being able to move my arm as I watched it.  I know his situation was MUCH more painful than mine.  At the end of dialysis I started to cramp.  Hmmm, maybe sympathy cramps.
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Sugarlump
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10 years on and off dialysis
« Reply #26463 on: July 13, 2011, 10:37:09 PM »
Morning YL its ******* down with rain here again (and I have to drive a 150 mile round trip to a wedding today! My straw hat is so going to get ruined and my green dress turn see through!)
I am putting you in charge of the Vegas weather for October
sunshine all round please!  :clap;  :clap;  :clap;
Logged
10 years of half a life
3 years HD 1st transplant Feb 08 failed after 3 months
Back to HD 2nd transplant Dec 10 failed after 11 months
Difficult times with a femoral line and catching MSSA (Thank you Plymouth Hospital)
Back on HD (not easy to do that third time around)
Fighting hard (two years on) to do home HD ... watch this space!
Oh and I am am getting married 1/08/15 to my wonderful partner Drew!!!
The power of optimism over common sense :)
YLGuy
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« Reply #26464 on: July 14, 2011, 12:07:25 AM »
 :pics; of the green dress!  :rofl;
Actually I hope you made it there safe and dry.
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Sugarlump
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10 years on and off dialysis
« Reply #26465 on: July 15, 2011, 06:31:26 AM »
Fortunately it stopped and the sun sort of came out so hat and dress were unscathed
but reception was a riot, I drank far too much and had far too much fun...
I have another session with personal trainer tomorrow he is going to be so pissed off with me... :bow;
Logged
10 years of half a life
3 years HD 1st transplant Feb 08 failed after 3 months
Back to HD 2nd transplant Dec 10 failed after 11 months
Difficult times with a femoral line and catching MSSA (Thank you Plymouth Hospital)
Back on HD (not easy to do that third time around)
Fighting hard (two years on) to do home HD ... watch this space!
Oh and I am am getting married 1/08/15 to my wonderful partner Drew!!!
The power of optimism over common sense :)
Chris
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Gender: Male
Posts: 9219


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« Reply #26466 on: July 15, 2011, 08:01:36 PM »
Today was a bad day with pup, the little sh^% grabbed my glasses off my face and ran off with them while outside. It was hard to catch  him, then find my glasses, but luckily he only scratched the right lens which I can not see out of. I am not in a good mood with what he did, so I am staying away from him. Had to go to urology, but they had to send sample out for further testing. Not looking forward to scope test next month if pain is going to be this bad, I need a rest!
Logged
Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
Sugarlump
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Posts: 2160


10 years on and off dialysis
« Reply #26467 on: July 16, 2011, 03:19:14 PM »
Actualy personal trainer happy with me have lost 7lbs and made me do circuit training with weights plus treadmill runs
Dead to world by 11pm
                                        :yahoo;  :yahoo;  :yahoo;
Logged
10 years of half a life
3 years HD 1st transplant Feb 08 failed after 3 months
Back to HD 2nd transplant Dec 10 failed after 11 months
Difficult times with a femoral line and catching MSSA (Thank you Plymouth Hospital)
Back on HD (not easy to do that third time around)
Fighting hard (two years on) to do home HD ... watch this space!
Oh and I am am getting married 1/08/15 to my wonderful partner Drew!!!
The power of optimism over common sense :)
Chris
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Gender: Male
Posts: 9219


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« Reply #26468 on: July 16, 2011, 07:21:51 PM »
.....and back on treadmill by 8 am?
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Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
Sugarlump
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Gender: Female
Posts: 2160


10 years on and off dialysis
« Reply #26469 on: July 19, 2011, 05:53:24 AM »
Quote from: Poppylicious on July 11, 2011, 01:38:28 PM
Quote from: Sugarlump on July 08, 2011, 04:16:36 AM
POPPY I having a bbq on sat 30th July if you want to come over!!!!
Aussie themed!!!!
And it will NOT rain  :cheer:  :cheer:  :cheer:
Of course it will rain ... it wouldn't be an (Australian themed) English barbecue if it didn't rain!  No barbecued koala?  Not sure I can make it then ...  :P

I HAVE FOUND KANGAROO BURGERS Locally!!!! YIPPEEEEEEE
All I need now is to source Aussie Beer in bottles not XXXX or Fosters!
So come on down Poppy and have a roo burger!!!
 :bandance;  :bandance;  :bandance;

PS Margaritas and cocktail umbrellas for the "ladies"
« Last Edit: July 19, 2011, 05:55:45 AM by Sugarlump » Logged
10 years of half a life
3 years HD 1st transplant Feb 08 failed after 3 months
Back to HD 2nd transplant Dec 10 failed after 11 months
Difficult times with a femoral line and catching MSSA (Thank you Plymouth Hospital)
Back on HD (not easy to do that third time around)
Fighting hard (two years on) to do home HD ... watch this space!
Oh and I am am getting married 1/08/15 to my wonderful partner Drew!!!
The power of optimism over common sense :)
YLGuy
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Posts: 4901
« Reply #26470 on: July 19, 2011, 06:59:07 AM »
It is just too hard. Way too hard.  Thank goodness I was blessed with 3 really great kids.
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cariad
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What's past is prologue
« Reply #26471 on: July 19, 2011, 08:33:44 AM »
Quote from: YLGuy on July 19, 2011, 06:59:07 AM
It is just too hard. Way too hard.  Thank goodness I was blessed with 3 really great kids.

Marc, are you OK?
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Be kind, for everyone you meet is fighting a great battle. - Philo of Alexandria

People have hope in me. - John Bul Dau, Sudanese Lost Boy
YLGuy
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« Reply #26472 on: July 19, 2011, 08:38:58 AM »
It's just so hard.  I am so tired. IHD is a wonderful supportive community but it is not the same as having someone close to talk to and actually care about you.  I have had so many balls in the air for so long they seem to be getting away from me. Like many people right now I can't make ends meet.  I guess I am just having a pity party for myself but I am just so tired.
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cariad
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What's past is prologue
« Reply #26473 on: July 19, 2011, 09:15:36 AM »
(((((Marc)))))

Try not to be so hard on yourself - what you suspect is a pity party I would call a normal reaction to overwhelming circumstances. Try to be nice to yourself, and maybe let the non-essential tasks in your day slide for a little while until you (hopefully) get some of your energy back.

I am sorry I do not have to more to offer. I hear you that IHD is great but no substitute for people in your life. I am hoping that things turn around for you very soon. :cuddle;
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Be kind, for everyone you meet is fighting a great battle. - Philo of Alexandria

People have hope in me. - John Bul Dau, Sudanese Lost Boy
Chris
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« Reply #26474 on: July 19, 2011, 10:47:02 AM »
Quote from: Sugarlump on July 19, 2011, 05:53:24 AM


I HAVE FOUND KANGAROO BURGERS Locally!!!! YIPPEEEEEEE
All I need now is to source Aussie Beer in bottles not XXXX or Fosters!
So come on down Poppy and have a roo burger!!!
 :bandance; :bandance; :bandance;

PS Margaritas and cocktail umbrellas for the "ladies"

Yeah, let me know how those turn out in taste. I think I'd take a pass on those.
 
Here's your koala, but I can't let you eatem!
Logged
Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
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