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Author Topic: Last Post Loves IHD The Most!  (Read 1833503 times)
Chris
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« Reply #26250 on: June 07, 2011, 10:05:50 PM »
Hi tyefly :waving;
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Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
YLGuy
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« Reply #26251 on: June 07, 2011, 10:23:05 PM »
 :waving;
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Chris
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« Reply #26252 on: June 07, 2011, 10:28:10 PM »
I guess winning for 2 days is enough. Get's boring being at the top wit no one chasing.
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Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
YLGuy
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« Reply #26253 on: June 07, 2011, 10:39:11 PM »
 ;D
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Des
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« Reply #26254 on: June 08, 2011, 12:01:22 AM »
Good morning,


It is bitterly cold here... now I know some of you would say that it is not cold.... well it is cold for us.

13degrees and raining. Coldest day this winter (so far) it never actually gets much colder here.

brrrrrrrrrr
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Please note: I am no expert. Advise given is not medical advise but from my own experience or research. Or just a feeling...

South Africa
PKD
Jan 2010 Nephrectomy (left kidney)
Jan 2010 Fistula
Started April 2010 Hemo Dialysis(hate every second of it)
Nov 2012 Placed on disalibity (loving it)
galvo
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« Reply #26255 on: June 08, 2011, 10:15:42 PM »
13, Des!!! That's sunbathing weather. We had minus 5 last night and have got to plus 8 to-day.
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Galvo
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« Reply #26256 on: June 08, 2011, 10:19:50 PM »

Partly Cloudy   
High
76°F
8)
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galvo
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« Reply #26257 on: June 08, 2011, 10:27:05 PM »
 :sir ken;
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Galvo
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« Reply #26258 on: June 08, 2011, 10:39:30 PM »
 :P
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MooseMom
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« Reply #26259 on: June 08, 2011, 10:40:58 PM »
I met Hugh Jackman tonight!!
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"Eggs are so inadequate, don't you think?  I mean, they ought to be able to become anything, but instead you always get a chicken.  Or a duck.  Or whatever they're programmed to be.  You never get anything interesting, like regret, or the middle of last week."
galvo
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« Reply #26260 on: June 08, 2011, 10:45:10 PM »
Nice bloke, isn't he?
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Galvo
MooseMom
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« Reply #26261 on: June 08, 2011, 10:48:20 PM »
He's also incredibly talented.  He's got one of those stage voices.  He's just yumtastic. :-*  And yes, he's just a nice, nice guy.
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"Eggs are so inadequate, don't you think?  I mean, they ought to be able to become anything, but instead you always get a chicken.  Or a duck.  Or whatever they're programmed to be.  You never get anything interesting, like regret, or the middle of last week."
galvo
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« Reply #26262 on: June 08, 2011, 10:51:48 PM »
Yumtastic - I love it!
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Galvo
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« Reply #26263 on: June 08, 2011, 10:52:27 PM »
Yumtastic!  :o
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natnnnat
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« Reply #26264 on: June 08, 2011, 11:36:11 PM »
Quote from: MooseMom on June 08, 2011, 10:40:58 PM
I met Hugh Jackman tonight!!

You wha?  you wha.. wha..? ?  You met Huge Ackman?!?!? Such a dream boat.  Gargle.
Where and why?  Did he meet you?  Is he now (as Gregory says of Chris Isaak after getting his autograph one night)
"your very very good friend" Mr Huge Ackman?
(Yumtastic is correct, and such a good boy)
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Natalya – Sydney, Australia
wife of Gregory, who is the kidney patient: 
1986: kidney failure at 19 years old, cause unknown
PD for a year, in-centre haemo for 4 years
Transplant 1 lasted 21 years (Lucy: 1991 - 2012), failed due to Transplant glomerulopathy
5 weeks Haemo 2012
Transplant 2 (Maggie) installed Feb 13, 2013, returned to work June 17, 2013 average crea was 130, now is 140.
Infections in June / July, hospital 1-4 Aug for infections.

Over the years:  skin cancer; thyroidectomy, pneumonia; CMV; BK; 14 surgeries
Generally glossy and happy.

2009 - 2013 PhD research student : How people make sense of renal failure in online discussion boards
Submitted February 2013 :: Graduated Sep 2013.   http://godbold.name/experiencingdialysis/
Heartfelt thanks to IHD, KK and ADB for your generosity and support.
Chris
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« Reply #26265 on: June 08, 2011, 11:41:47 PM »
No idea how hot it was today, but it was hot and my vehicle said it was 100 out when I got off the train at 5:30 pm
 
How did that happen MooseMom?
Logged
Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
okarol
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Photo is Jenna - after Disneyland - 1988

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« Reply #26266 on: June 09, 2011, 12:35:17 AM »
Quote from: MooseMom on June 08, 2011, 10:40:58 PM
I met Hugh Jackman tonight!!

details! please!!
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
YLGuy
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« Reply #26267 on: June 09, 2011, 05:42:02 AM »
MM, you can't drop a bomb like that without posting any of the details!
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tyefly
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This will be me...... Next spring.... I earned it.
« Reply #26268 on: June 09, 2011, 10:09:27 AM »
Sadly I had to look up who was this Hugh guy......   I dont watch movies.... or much TV.... I guess I am alittle outdated.......LOL...   but still want the story...
Logged
IgA Nephropathy   April 2009
CKD    May 2009
AV Fistula  June 2009
In-Center Dialysis   Sept 2009
Nxstage    Feb 2010
Extended Nxstage March 2011

Transplant Sept 2, 2011

  Hello from the Oregon Coast.....

I am learning to live close to the lives of my friends without ever seeing them. No miles of any measurement can separate your soul from mine.
- John Muir

The clearest way into the Universe is through a forest wilderness.
- John Muir
Chris
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« Reply #26269 on: June 09, 2011, 03:05:40 PM »
I have nothing clever yet to say.
 
Logged
Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
MooseMom
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« Reply #26270 on: June 09, 2011, 03:06:03 PM »
I don't know if any of you have ever heard of a singer-songwriter named Richard Marx.  I had not, I must admit.  He is from the Chicago area, and he has written many popular songs that most of you would probably know if you heard them.  He's written songs for everyone from N-Sync to Keith Urban.  He is a producer also.  He has put out a fair number of albums. 

http://www.suntimes.com/entertainment/5808289-421/richard-marx-pumped-up-about-pbs-special-taping-at-historic-theater.html

My husband surprised me with 2 tickets to this PBS taping because he knows I'm a Hugh Jackman fan.  I have to confess to being rather bowled over when he hosted the Oscars; I had no idea he was that talented.  Anyway, my husband remembered my drooling, and he thought I'd like to attend this concert/taping, and he was right...it was brilliant.  I happen to like "Vertical Horizon" also, and their frontman has collaborated with Marx many times, so he was there, too.  And Hugh Jackman was amazing...he just sauntered onto the stage, dressed in jeans and a denim shirt, and with that megawatt smile and Broadway voice, well, it was such fun. 

Since this was a taping, there was a lot of storytelling and talk with the audience that Marx knows will be edited out, so the whole performance felt more like a casual conversation than a formal concert.  The music business does seem to be incestuous; songwriters work with so many different kinds of performers, and a lot of the stories that he and Hugh Jackman had to tell were really interesting.

Afterwards, everyone was just sort of milling around; it's a small theater in a small town, so just milling about is endemic here.  Therefore, it wasn't really hard to get a quick "hello, enjoyed the show" to the performers.  Everyone was really nice and grateful that so many had turned up; the theater is not-airconditioned and it had been the hottest day in town for decades.  When HJ said that Chicago was too hot, everyone laughed because it's not exactly Australia around here.
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"Eggs are so inadequate, don't you think?  I mean, they ought to be able to become anything, but instead you always get a chicken.  Or a duck.  Or whatever they're programmed to be.  You never get anything interesting, like regret, or the middle of last week."
MooseMom
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« Reply #26271 on: June 09, 2011, 03:06:48 PM »
Quote from: Chris on June 09, 2011, 03:05:40 PM
I have nothing clever yet to say.

I'm sure you will think of something...
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"Eggs are so inadequate, don't you think?  I mean, they ought to be able to become anything, but instead you always get a chicken.  Or a duck.  Or whatever they're programmed to be.  You never get anything interesting, like regret, or the middle of last week."
Chris
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« Reply #26272 on: June 09, 2011, 03:59:52 PM »
Nope, nothing yet, but keep forgetting your in the Chicago area too.
 
Now have Caddy Shack, Footloose, Top Gun songs going on in my head.
Logged
Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
natnnnat
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« Reply #26273 on: June 09, 2011, 09:35:18 PM »
That's a fantastic story MM, I am envious as can be.  :bow;
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Natalya – Sydney, Australia
wife of Gregory, who is the kidney patient: 
1986: kidney failure at 19 years old, cause unknown
PD for a year, in-centre haemo for 4 years
Transplant 1 lasted 21 years (Lucy: 1991 - 2012), failed due to Transplant glomerulopathy
5 weeks Haemo 2012
Transplant 2 (Maggie) installed Feb 13, 2013, returned to work June 17, 2013 average crea was 130, now is 140.
Infections in June / July, hospital 1-4 Aug for infections.

Over the years:  skin cancer; thyroidectomy, pneumonia; CMV; BK; 14 surgeries
Generally glossy and happy.

2009 - 2013 PhD research student : How people make sense of renal failure in online discussion boards
Submitted February 2013 :: Graduated Sep 2013.   http://godbold.name/experiencingdialysis/
Heartfelt thanks to IHD, KK and ADB for your generosity and support.
YLGuy
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« Reply #26274 on: June 09, 2011, 10:08:47 PM »
 :waving;
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