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Author Topic: Last Post Loves IHD The Most!  (Read 1834102 times)
MooseMom
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« Reply #24675 on: January 03, 2011, 10:40:44 PM »
I did get out of my jammies long enough to go outside and take a walk in sub-freezing temps...very invigorating.  But now it is time to re-jammy and go to bed, but first I had to fly by and win!
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"Eggs are so inadequate, don't you think?  I mean, they ought to be able to become anything, but instead you always get a chicken.  Or a duck.  Or whatever they're programmed to be.  You never get anything interesting, like regret, or the middle of last week."
Chris
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« Reply #24676 on: January 03, 2011, 11:02:40 PM »
I awoke, took meds late, and now need to be asleep so I can wake up at 5 am so I can go to doc in city. I'm not a morning person unless already awake from the night before.
Logged
Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
MooseMom
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« Reply #24677 on: January 03, 2011, 11:04:12 PM »
Naw...just stay up all night and post about how much you love IHD! :rofl;
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"Eggs are so inadequate, don't you think?  I mean, they ought to be able to become anything, but instead you always get a chicken.  Or a duck.  Or whatever they're programmed to be.  You never get anything interesting, like regret, or the middle of last week."
okarol
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Photo is Jenna - after Disneyland - 1988

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« Reply #24678 on: January 04, 2011, 12:56:18 AM »
I need to sleep, Jenna has her transplant evaluation tomorrow. Maybe we should create a pool to bet on how long it will take to get her listed.  ;D
Logged

Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
MooseMom
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« Reply #24679 on: January 04, 2011, 02:24:00 AM »
Oh, good luck to Jenna tomorrow!  Would you mind maybe starting a thread where you tell us all about it?  That would be great...or maybe just continue your thread about Jenna deciding to be waitlisted again.  Anyway, please do tell us how it all went.
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"Eggs are so inadequate, don't you think?  I mean, they ought to be able to become anything, but instead you always get a chicken.  Or a duck.  Or whatever they're programmed to be.  You never get anything interesting, like regret, or the middle of last week."
cariad
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What's past is prologue
« Reply #24680 on: January 04, 2011, 09:08:58 AM »
Yes, best of luck to you and Jenna, Karol!

I'll bet that it's like last time - she is listed right away. They are already familiar with her and her history so they really shouldn't wait. I dislike the formality with the list.

UCSF listed me immediately and I think that is just their policy. And a brilliant policy it is, too!
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Be kind, for everyone you meet is fighting a great battle. - Philo of Alexandria

People have hope in me. - John Bul Dau, Sudanese Lost Boy
tyefly
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This will be me...... Next spring.... I earned it.
« Reply #24681 on: January 04, 2011, 01:08:44 PM »
  I am sure everything will work out fine.....  and  Jenna will be our winner...
Logged
IgA Nephropathy   April 2009
CKD    May 2009
AV Fistula  June 2009
In-Center Dialysis   Sept 2009
Nxstage    Feb 2010
Extended Nxstage March 2011

Transplant Sept 2, 2011

  Hello from the Oregon Coast.....

I am learning to live close to the lives of my friends without ever seeing them. No miles of any measurement can separate your soul from mine.
- John Muir

The clearest way into the Universe is through a forest wilderness.
- John Muir
Chris
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« Reply #24682 on: January 04, 2011, 05:29:27 PM »
I have nothing funny or whitty to say yet
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Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
galvo
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« Reply #24683 on: January 04, 2011, 06:29:24 PM »
Yet?
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Galvo
ChickenLittle56
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Chickenlittle and Maria
« Reply #24684 on: January 04, 2011, 10:47:11 PM »
Quote from: Chris on January 04, 2011, 05:29:27 PM
I have nothing funny or whitty to say yet

Whaaat ??? ??? ??? ::)
Logged
As I was coming out the Nephrologist office, I thought the sky was falling.
Knew I was going on dialysis since November 1999.
Had a fistula put in January 2000.
Been on 4-1/2 hour dialysis since August 28, 2001. (They took out 35Kg that single week)

Maria hasbeen on hemodualysis since January, 2005
okarol
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Photo is Jenna - after Disneyland - 1988

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« Reply #24685 on: January 04, 2011, 11:34:02 PM »
 :2thumbsup; I am here! Anyone else awake??  :waving;
Logged

Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
ChickenLittle56
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Chickenlittle and Maria
« Reply #24686 on: January 04, 2011, 11:36:15 PM »
I'm here. :waving;
Logged
As I was coming out the Nephrologist office, I thought the sky was falling.
Knew I was going on dialysis since November 1999.
Had a fistula put in January 2000.
Been on 4-1/2 hour dialysis since August 28, 2001. (They took out 35Kg that single week)

Maria hasbeen on hemodualysis since January, 2005
galvo
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« Reply #24687 on: January 05, 2011, 04:07:49 AM »
No you are not.
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Galvo
looneytunes
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Wishin' I was Fishin'
« Reply #24688 on: January 05, 2011, 04:16:30 AM »
Mornin' Galvo...good luck Jenna! 
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"The key to being patient is having something to do in the meantime" AU
Chris
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« Reply #24689 on: January 05, 2011, 03:40:37 PM »
I still have nothing whitty or funny yet. Still in a quandry on why it will cost $1000 to fix drivers seat track so seat wont move/tilt back and forth when stoping or accelerating from a stop and why it is not covered by the warranty since to me it can be a saftey issue. However the cruise control switch on the steering wheel was fixed under warranty and the radio is being replaced, but not the seat track, WT? Is he $1000 replacing the whole leather seat with all the electronics? :urcrazy; :stressed; :stressed; :banghead; :rant;
Logged
Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
galvo
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« Reply #24690 on: January 05, 2011, 04:06:58 PM »
G'day looney! Chris, don't get me started on car repairs; I've just had a hideous month dealing with this.
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Galvo
Chris
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« Reply #24691 on: January 05, 2011, 06:31:58 PM »
Nothing going on here.
Logged
Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
tyefly
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Gender: Female
Posts: 2016


This will be me...... Next spring.... I earned it.
« Reply #24692 on: January 05, 2011, 10:28:30 PM »
 :oops;
Logged
IgA Nephropathy   April 2009
CKD    May 2009
AV Fistula  June 2009
In-Center Dialysis   Sept 2009
Nxstage    Feb 2010
Extended Nxstage March 2011

Transplant Sept 2, 2011

  Hello from the Oregon Coast.....

I am learning to live close to the lives of my friends without ever seeing them. No miles of any measurement can separate your soul from mine.
- John Muir

The clearest way into the Universe is through a forest wilderness.
- John Muir
ChickenLittle56
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Chickenlittle and Maria
« Reply #24693 on: January 05, 2011, 11:14:33 PM »
Just  :waving; to those behind me.
Logged
As I was coming out the Nephrologist office, I thought the sky was falling.
Knew I was going on dialysis since November 1999.
Had a fistula put in January 2000.
Been on 4-1/2 hour dialysis since August 28, 2001. (They took out 35Kg that single week)

Maria hasbeen on hemodualysis since January, 2005
galvo
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« Reply #24694 on: January 06, 2011, 12:15:53 AM »
 :ausflag;
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Galvo
Chris
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« Reply #24695 on: January 06, 2011, 12:32:11 AM »
 :waving;  to the people in back because I'm in the front row!
Logged
Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
kitkatz
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Posts: 17042
« Reply #24696 on: January 06, 2011, 01:38:46 AM »
Hey sweaties!  In San Diego on a little vacation. Went to Old town today to see the great-great-great grandfather's house.
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lifenotonthelist.com

Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5

Remember your present situation is not your final destination.

Take it one day, one hour, one minute, one second at a time.

"If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1
okarol
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Photo is Jenna - after Disneyland - 1988

WWW
« Reply #24697 on: January 06, 2011, 09:45:58 AM »
I updated Jenna's waitlist thread.
I have dresses to deliver for the Kidney Teen Prom.
I am mailing long overdue packages.
My car needs a new catalytic converter so I can pass the smog check.
My sister went home to Wisconsin and I miss her already.
I win!
Logged

Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
ChickenLittle56
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Posts: 637


Chickenlittle and Maria
« Reply #24698 on: January 06, 2011, 10:58:44 AM »
Trying frantically to find another Medicare Advantage play for my parents since the plan they had no longer serves this area. >:(
On top of that at least I win for now ;D
Logged
As I was coming out the Nephrologist office, I thought the sky was falling.
Knew I was going on dialysis since November 1999.
Had a fistula put in January 2000.
Been on 4-1/2 hour dialysis since August 28, 2001. (They took out 35Kg that single week)

Maria hasbeen on hemodualysis since January, 2005
galvo
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« Reply #24699 on: January 06, 2011, 04:41:24 PM »
I am very tired but still a winner!
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Galvo
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