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Author Topic: I've been liberated......Again!  (Read 2919 times)
Adam_W
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Me with Baron von Fresenius
« on: April 15, 2008, 10:12:58 PM »
My graft has been working consistently well for long enough that today I was able to have my catheter taken out. Oh, it feels so good to not have something dangling out of my chest 24/7. And in a couple days I can SHOWER!!! I'm trying to be realistic and tell myself that this access will not last forever, but I'll take every single good treatment it provides while they last.

Adam
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-Diagnosed with ESRD (born with one kidney, hypertension killed it) Jan 21st, 2007
-Started dialysis four days later in hospital (Baxter 1550-I think, then Gambro Phoenix)
-Started in-centre dialysis Feb 6th 2007 (Fres. 2008H)
-Started home hemo June 5th 2007 (NxStage/Pureflow)
-PD catheter placed June 6th 2008 (Bye bye NxStage, at least for now)
-Started CAPD July 4th, 2008
-PD catheter removed Dec 2, 2008-PD just wouldn't work, so I'm back on NxStage
-Kidney function improved enough to go off dialysis, Feb. 2011!!!!!
-Back on dialysis (still NxStage) July 2011 :(
-In-centre self-care dialysis March 2012 (Fresenius 2008K)
-Not on transplant list yet.


"Don't live for dialysis, use dialysis to LIVE"
bolta72
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my best friend
« Reply #1 on: April 16, 2008, 05:20:09 AM »
Good for you, and boy that shower will feel super.
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gotta do what I gotta do.. 2 yrs in ctr hemo
2_DallasCowboys
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« Reply #2 on: April 16, 2008, 06:04:11 AM »
Very good news, Adam! :clap;

I hope that access lasts you a long, long time.

My husband said his first shower after such a long time-
was just so wonderful.  He also said it is amazing the
things we all take for granted- being able to shower is
one of them- you really cannot appreciate it until you
cannot take one.

Anne
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Sluff
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« Reply #3 on: April 16, 2008, 06:20:55 AM »
It's been a long road for you Adam, I'm glad that you are finding a little easier road, even if it seems like a little gain take what you can get.  :beer1;  Good for you.  :thumbup;
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rose1999
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« Reply #4 on: April 16, 2008, 08:01:28 AM »
 :2thumbsup; great news, so happy for you.
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paddbear0000
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Dogs & IHDer's are always glad to see you!

WWW
« Reply #5 on: April 16, 2008, 09:55:35 AM »
Happy dance... :bandance; :bandance; :bandance;
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********************************************************
I HAVE DESIGNED CKD RELATED PRODUCTS FOR SALE TO BENEFIT THE NKF'S 2009 DAYTON KIDNEY WALK (I'M A TEAM CAPTAIN)! CHECK IT OUT @ www.cafepress.com/RetroDogDesigns!!

...or sponsor me at http://walk.kidney.org/goto/janetschnittger
********************************************************
Twitter.com/NKFKidneyWalker
www.facebook.com/profile.php?id=1659267443&ref=nf 
www.caringbridge.org/visit/janetschnittger

Diagnosed type 1 diabetic at age 6, CKD (stage 3) diagnosed at 28 after hospital error a year before, started dialysis February '09. Listed for kidney/pancreas transplant at Ohio State & Univ. of Cincinnati.
monrein
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Might as well smile
« Reply #6 on: April 16, 2008, 10:00:44 AM »
 :yahoo; Showering and peeing.  It really is the little things in life that count.  I was especially happy to get rid of the constant itchy feeling that went along with my subclavian catheter. 





EDITED: Fixed Yahoo Icon Error - Sluff/Admin
« Last Edit: April 16, 2008, 10:02:18 AM by Sluff » Logged
Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
kitkatz
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« Reply #7 on: April 16, 2008, 09:31:05 PM »
I hated the subclavian catheters. Mine hurt constantly.  I cried when it came out from relief.
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lifenotonthelist.com

Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5

Remember your present situation is not your final destination.

Take it one day, one hour, one minute, one second at a time.

"If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1
okarol
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Photo is Jenna - after Disneyland - 1988

WWW
« Reply #8 on: April 16, 2008, 10:51:49 PM »


Shower and enjoy that simple pleasure Adam!  :clap;
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
twirl
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« Reply #9 on: April 19, 2008, 04:15:05 PM »
subclavian catheter?

showering and peeing  ---- our bathrooms are my favorite three rooms in the house
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