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Author Topic: Another newbie!  (Read 5501 times)
ndl0520
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« on: April 10, 2008, 09:52:42 PM »
Hello everyone,

My name is Noel and I'm new to this board & thought I introduce myself.  I am a new dialysis patient as of Jan 08.  I was diagnosed back in 2002 of having Polycystic Kidney Disease.  I'm 41 yrs. old and currently residing in California.  For the past six yrs, I've been fighting pretty hard to avoid going on dialysis till my body finally gave up & told me to stop fighting.  The last three months before I started dialysis was the worst feeling in my life.  I lost lots of weight due to a loss of appetite.  Uncontrollable vomiting along with naseau.  But now that I have started my hemodialysis, I feel much, much better than the way I was feeling the past six yrs. I'm currently going 3 times a week for 3 hours.  Since starting dialysis, I have given up alot of my life.  I'm about to resign my position as a police officer for the past 5 yrs.  I also, ended my 18 yr career in the Army & in the reserves.  Those were two careers that I will miss tremendously.  My finances has gone down since I am now receiving only disability pay.  I'm about to lose my health benefits in June.  Even though I am in tough situation, I have kept my spirits up.  There is no way I will let this disease put me or my family down.  I have a great support group from my family, dialysis unit, & friends.  Now, I have found a great site where people understands me with what I am going thru & where I could understand them also.  I am currently been tested for a possible kidney transplant.  From what the transplant coordinator has told me, that I am a perfect candidate for their kidney program.  But, since I don't have an immediate donor, I guess I will be waiting for 3-5 yrs till I am next on the list.  In the mean time, I will pursue another career and start going to school.  I've been doing alot of thinking of what to do with my future while sitting or laying on my chair being dialyzed.  But Lord willing, I do hope I will get a transplant soon and get a second chance in life.
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Loretta
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« Reply #1 on: April 10, 2008, 10:03:29 PM »
Welcome  :welcomesign; I hope you find help here on IHD. 
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boxman55
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« Reply #2 on: April 10, 2008, 10:25:37 PM »
Welcome to IHD please know that everyone on this site is behind you 100% I look forward to your insight and please use this site to help you. Again welcome ndl0520


Boxman, Moderator
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"Be the change you wished to be"
Started Hemodialysis 8/14/06
Lost lower right leg 5/16/08 due to Diabetes
Sister was denied donation to me for medical reasons 1/2008
monrein
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Might as well smile
« Reply #3 on: April 11, 2008, 04:47:15 AM »
 :welcomesign; to this board Noel.  There is so much collective wisdom and such a wide range of experiences on this site.  Glad you're throwing yours into the mix.
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
Sluff
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« Reply #4 on: April 11, 2008, 04:52:03 AM »
Welcome to ihatedialysis.com ndl0520,

Glad you found us, I hope we can be a comfort to you as you journey through ESRD and Dialysis. There are many members here that can relate to all the changes you are facing. I'm glad you are keeping your spirits up but don't be afraid to ask questions, read through the many pages here and remember that we are here for you. I hope you find a kidney soon.

Sluff/Admin
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bolta72
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my best friend
« Reply #5 on: April 11, 2008, 04:58:50 AM »
Welcome and great to see your spirts are up and your moving on and thanks for serving our country.
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gotta do what I gotta do.. 2 yrs in ctr hemo
Ken Shelmerdine
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Life's a bitch and then you go on dialysis!
« Reply #6 on: April 11, 2008, 05:00:26 AM »
Welcome Noel, you've found an excellent forum. I like your positive outlook. Anything you need to know just ask, there's lots of us on this forum who will be only to happy to help as best we can. :welcomesign;
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Ken
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« Reply #7 on: April 11, 2008, 05:36:12 AM »
:welcomesign; Noel. You have found the perfect site. We are a great group, full of wisdom and support anytime you need us. Keep on posting.  :cuddle;
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"I know there's nothing to it, but I want to know what it is there's nothing to"
annabanana
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« Reply #8 on: April 11, 2008, 05:51:27 AM »
 :welcomesign; Noel!
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caregiver to Randy:
HepC and stage 4 ckd
1 kidney removed (cancer)Aug07
Bajanne
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Goofynina and Epoman - Gone But Not Forgotten

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« Reply #9 on: April 11, 2008, 07:14:32 AM »
Welcome to our community!  We are so glad that you found us. I know that this site will be a great weapon in your dealing with this renal challenge.  It has been for me!  There is much information here.  As we like to say here at IHD - 'Knowledge is Power'.  I already like your attitude and see that you will be a great addition to our wonderful IHD family.  :grouphug;  So keep reading and keep posting.  Let us know what is going on with you - not nosy, just family!


Bajanne, Moderator
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"To be found in Him, not having a righteousness of my own ...but that which is based on faith"



I LOVE  my IHD family! :grouphug;
MyssAnne
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« Reply #10 on: April 11, 2008, 07:28:14 AM »
Welcome, Noel!!! I'm glad you're here! You'll get plenty of support here, as well as laughs, hopefully!

 :welcomesign; :welcomesign;
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rose1999
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« Reply #11 on: April 11, 2008, 08:10:07 AM »
Hi Noel and welcome from the  :ukflag;.  Good to see you have such a positive attitude to life, hope you'll get a kidney soon. 

There are some great people on this board,they really are a family.

 :bunny:
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Meinuk
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« Reply #12 on: April 11, 2008, 11:37:16 AM »
Welcome Noel,

I started Dialysis in January 2007, so I think that I have a pretty recent memory of how terrible it feels.  I can tell you that it does get better.  Even when I was in center, it took a few months for my body to adjust to the treatments (I'm now doing home hemo on NxStage).  Let alone the impact that this has had on your work and mental status.  I was deeply depressed for the first six or seven months, then slowly, my spark started to return.  It is a slow path, but you are not alone.

IHD is a huge support for so many people - we are all in this together- Dialysis veterans and newbies.  Welcome aboard.

Best Wishes,

Anna
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Research Dialysis Units:  http://projects.propublica.org/dialysis/

52 with PKD
deceased donor transplant 11/2/08
nxstage 10/07 - 11/08;  30LS/S; 20LT/W/R  @450
temp. permcath:  inserted 5/07 - removed 7/19/07
in-center hemo:  m/w/f 1/12/07
list: 6/05
a/v fistula: 5/05
NxStage training diary post (10/07):  http://ihatedialysis.com/forum/index.php?topic=5229.0
Newspaper article: Me dialyzing alone:  http://ihatedialysis.com/forum/index.php?topic=7332.0
Transplant post 11/08):  http://ihatedialysis.com/forum/index.php?topic=10893.msg187492#msg187492
Fistula removal post (7/10): http://ihatedialysis.com/forum/index.php?topic=18735.msg324217#msg324217
Post Transplant Skin Cancer (2/14): http://ihatedialysis.com/forum/index.php?topic=30659.msg476547#msg476547

“To doubt everything or to believe everything are two equally convenient solutions; both dispense with the necessity of thought.” - Henri Poincare
kellyt
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« Reply #13 on: April 11, 2008, 11:40:35 AM »
:waving;  Glad you found this site.  You will LOVE it!

Thank you for the service you provided both as a Police Officer and as an Army Reservist.  Both extremely commendable positions!    :welcomesign;     :usaflag;
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1993 diagnosed with glomerulonephritis.
Oct 41, 2007 - Got fistula placed.
Feb 13, 2008 - Activated on "the list".
Nov 5, 2008 - Received living donor transplant from my sister-in-law, Etta.
Nov 5, 2011 - THREE YEARS POST TRANSPLANT!  :D
kimcanada
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WWW
« Reply #14 on: April 11, 2008, 12:03:49 PM »
Hi and welcome!!!!

I am 41years also, and have been on dialysis for 1 year in January...  I can so relate how it feels better once you start dialysis.  I will look forward to reading your posts :)
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NolaGail
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« Reply #15 on: April 11, 2008, 12:37:19 PM »
A big  :welcomesign; Noel!

You have come to the right place for help and humor.  There is a great group of people here waiting to support you or just listen when you are having a bad day.  Visit here often!

Nola
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In His no-slip grip!

Living donor has one more test to go (4-14-2008).  Her left kidney could be mine in a few months.  No surgery date yet.
twirl
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« Reply #16 on: April 11, 2008, 12:53:36 PM »
Hey to U
I also have PKD
you lucky dog,you
I go 3 times a week for 4 hours, that last hour is the killer....
Glad you are here
IHD helps
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Ohio Buckeye
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« Reply #17 on: April 11, 2008, 01:29:25 PM »
 :welcomesign; Noel to the IHD Family!
I hope you get that 2nd chance at life also.
I'm glad you re feeling better.
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If I must do this to live, I must strive to live
while I am doing this.
rookiegirl
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« Reply #18 on: April 11, 2008, 01:58:51 PM »
 :welcomesign; to IHD Family.  You come to the right place.  Look forward to all your posts.

 :waving;
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2000-Diagnosed IGA Nephropathy
2002-1st biopsy (complications)
2004-2nd biopsy
10/03/07-Tenckhoff Catheter Placement
10/22/07-Started Peritoneal Dialysis
03/2008-Transplant team meeting
04/2008-Transplant workup
05/2008-Active Transplant list
3/20/09-Cadaver Kidney Transplant
4/07/09-Tenckhoff Catheter removed
4/20/09-New kidney biopsy
paris
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« Reply #19 on: April 12, 2008, 06:54:03 AM »
 :welcomesign; Glad you found us. There is so much information here and wonderful people to give support.  Love your attitude!
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It's not what you gather, but what you scatter that tells what kind of life you have lived.
Psim
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« Reply #20 on: April 12, 2008, 07:57:23 AM »
 :welcomesign;
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Ang
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« Reply #21 on: April 12, 2008, 09:10:50 PM »
 :welcomesign;  noel


  from   1  pkd  to  another  pkd,  i  wish  you  luck  with  it  all.

  any  questions  just  ask  and  i'll  help  if  i  can.
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live  life  to  the  full  and you won't  die  wondering
Romona
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« Reply #22 on: April 13, 2008, 11:45:50 AM »
 :welcomesign;
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kitkatz
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« Reply #23 on: May 04, 2008, 08:40:21 PM »
Welcome.  Where in California are you located northern, or southern? I am southern California.  We have quite a few people in so CA. on this board.  Good to get to know you!


kitkatz, moderator
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lifenotonthelist.com

Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5

Remember your present situation is not your final destination.

Take it one day, one hour, one minute, one second at a time.

"If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1
ndl0520
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« Reply #24 on: May 05, 2008, 06:36:48 AM »
Quote from: kitkatz on May 04, 2008, 08:40:21 PM
Welcome.  Where in California are you located northern, or southern? I am southern California.  We have quite a few people in so CA. on this board.  Good to get to know you!


kitkatz, moderator
Hello KitKatz,


I'm from Southern California.  Currently residing near West Covina.  I truly enjoy this forum since I've signed up.  I'm glad I found this site.


Edited: Fixed quote tags - okarol/admin
« Last Edit: May 05, 2008, 08:30:18 AM by okarol » Logged
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