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Author Topic: After five years of waiting  (Read 12714 times)
cambonesegirl
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« on: April 06, 2008, 12:48:43 PM »

I got a kidney transplant!!! After being on dialysis for 9 years and on the waiting list for 5 years, I finally got it! :yahoo;

Here's the short story version.....

I got the call 1 a.m. Monday morning for a potential donor (again) then around 9 a.m. I got another call saying to go to the hospital. YAY! While there, they did some test, I got dialysis and by 4:30 p.m. they were rolling me to the O.R. I was told I came out by 11 p.m? Everything was just going so well for me, each day my labs came back better and better dropping to normal levels. I came home Saturday around 4 p.m. I feel great, a little pain at the incision site so I'm moving a little sluggish, but I can feel my energy level kicking in.


A little personal note to add.....

I haven't been able to produce urine in over 8 years so I have to train my bladder now. It was nice when I first came out of surgery because they put a urinary catheter to help, but once that came out the first four hours I was going about 10 times in 45 minutes, that because they gave me a diuretic pill, but once that wore off I was still going every 30 minutes to an hour.....that hasn't changed yet. I'm not complaining though... I CAN PEE AGAIN!! =P

It was very surprising to get the call because I met with the doctor a month ago and he said because my p.r.a is high I would probably have to wait a couple more years. I got a 2 out of 6 match.
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rose1999
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« Reply #1 on: April 06, 2008, 12:52:17 PM »

This is fantastic news  :yahoo; :bandance;.  Hope you continue to do well.  :grouphug;
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IrishGirl
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« Reply #2 on: April 06, 2008, 12:54:05 PM »

Good for you! Congratulations on your new kidney. What a great day for you...after all that waiting. I wish you the best on your continued recovery...what an adjustment to make ! A great adustment that is!
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rookiegirl
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« Reply #3 on: April 06, 2008, 01:35:00 PM »

Congratulations!!!  :clap; I'm so happy for you.  Your story has given me hope for the future to come.  I'm still trying to get on the list.  Slow process but I know it will be all worth it.  I wish you the best success.
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2000-Diagnosed IGA Nephropathy
2002-1st biopsy (complications)
2004-2nd biopsy
10/03/07-Tenckhoff Catheter Placement
10/22/07-Started Peritoneal Dialysis
03/2008-Transplant team meeting
04/2008-Transplant workup
05/2008-Active Transplant list
3/20/09-Cadaver Kidney Transplant
4/07/09-Tenckhoff Catheter removed
4/20/09-New kidney biopsy
willieandwinnie
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« Reply #4 on: April 06, 2008, 01:40:20 PM »

:bandance; :yahoo; cambonesegirl. Congratulation!!!!! Please let us know how you are doing. Drink, drink, drink and rest.  :yahoo; :yahoo;
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"I know there's nothing to it, but I want to know what it is there's nothing to"
lola
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I can fly!!!

« Reply #5 on: April 06, 2008, 01:50:40 PM »

 :yahoo; :bandance; :yahoo; :bandance;
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kellyt
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« Reply #6 on: April 06, 2008, 01:53:09 PM »

 :clap;  Congratulations!  That's wonderful news!   Better stock up on TP!   :2thumbsup;
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1993 diagnosed with glomerulonephritis.
Oct 41, 2007 - Got fistula placed.
Feb 13, 2008 - Activated on "the list".
Nov 5, 2008 - Received living donor transplant from my sister-in-law, Etta.
Nov 5, 2011 - THREE YEARS POST TRANSPLANT!  :D
mysty
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I'm here.. for us.

« Reply #7 on: April 06, 2008, 01:57:56 PM »

Yay.. Mark the day and have a Happy Kidney day every year...
So excited for you!!! :yahoo; :bandance;
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Love does not come by finding the perfect person, but by learning to see an imperfect person perfectly.
paddbear0000
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« Reply #8 on: April 06, 2008, 07:28:34 PM »

Yay! Congratulations!  :bandance; :bandance; :bandance; :bandance; :bandance; :bandance; :bandance;
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********************************************************
I HAVE DESIGNED CKD RELATED PRODUCTS FOR SALE TO BENEFIT THE NKF'S 2009 DAYTON KIDNEY WALK (I'M A TEAM CAPTAIN)! CHECK IT OUT @ www.cafepress.com/RetroDogDesigns!!

...or sponsor me at http://walk.kidney.org/goto/janetschnittger
********************************************************
Twitter.com/NKFKidneyWalker
www.facebook.com/profile.php?id=1659267443&ref=nf 
www.caringbridge.org/visit/janetschnittger

Diagnosed type 1 diabetic at age 6, CKD (stage 3) diagnosed at 28 after hospital error a year before, started dialysis February '09. Listed for kidney/pancreas transplant at Ohio State & Univ. of Cincinnati.
Laurie
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May 13, 2008

« Reply #9 on: April 06, 2008, 07:44:38 PM »

:yahoo; Congratulations!!!
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March 7, 2001 - Complications after C-section caused kidney failure
March 2001 - December 2001 - Hemo Dialysis
December 2001 - Kidney function improved dialysis no longer necessary
October 2006 - Kidney function started to decline
May 9, 2007 - Listed at Baylor Dallas and Fort Worth
October 12, 2007 - Started PD
May 13, 2008 - Kidney Transplant from a deceased donor
KT0930
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« Reply #10 on: April 06, 2008, 07:56:09 PM »

That's GREAT news! I'm so happy for you!  :yahoo;
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"Dialysis ain't for sissies" ~My wonderful husband
~~~~~~~
I received a 6 out of 6 antigen match transplant on January 9, 2008. Third transplant, first time on The List.
vandie
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« Reply #11 on: April 06, 2008, 07:57:48 PM »

Wonderful news.   

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Life is the journey, not the destination.
_________________________________________
I received a kidney transplant on August 4, 2007.
Sluff
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« Reply #12 on: April 06, 2008, 08:35:59 PM »

Thats awesome news cambonesegirl.  Woo! Hoo!  :clap;
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Psim
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« Reply #13 on: April 06, 2008, 10:23:23 PM »

Yay Cambonesegirl!!!!  :yahoo; :yahoo; :yahoo; Long may you pee!
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okarol
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Photo is Jenna - after Disneyland - 1988

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« Reply #14 on: April 06, 2008, 11:25:38 PM »

 :beer1; Keep drinking that water! So happy to hear the news! It must of been a great tissue match to get around the high PRA. Congrats!  :bandance;
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
RichardMEL
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« Reply #15 on: April 07, 2008, 01:29:26 AM »

Fantastic! Another IHD member transplant... keep that pee coming and enjoy!! So happy for you!!
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3/1993: Diagnosed with Kidney Failure (FSGS)
25/7/2006: Started hemo 3x/week 5 hour sessions :(
27/11/2010: Cadaveric kidney transplant from my wonderful donor!!! "Danny" currently settling in and working better every day!!! :)

BE POSITIVE * BE INFORMED * BE PROACTIVE * BE IN CONTROL * LIVE LIFE!
Ken Shelmerdine
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Life's a bitch and then you go on dialysis!

« Reply #16 on: April 07, 2008, 03:15:03 AM »

Congratulations that'e excellent news. :yahoo; :clap;
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Ken
paddbear0000
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Dogs & IHDer's are always glad to see you!

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« Reply #17 on: April 07, 2008, 09:35:08 AM »

I think we need a thread with pictures of transplant patients holding up their bags of pee!  :rofl;  Thanks Tamara for that idea!  ;D
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********************************************************
I HAVE DESIGNED CKD RELATED PRODUCTS FOR SALE TO BENEFIT THE NKF'S 2009 DAYTON KIDNEY WALK (I'M A TEAM CAPTAIN)! CHECK IT OUT @ www.cafepress.com/RetroDogDesigns!!

...or sponsor me at http://walk.kidney.org/goto/janetschnittger
********************************************************
Twitter.com/NKFKidneyWalker
www.facebook.com/profile.php?id=1659267443&ref=nf 
www.caringbridge.org/visit/janetschnittger

Diagnosed type 1 diabetic at age 6, CKD (stage 3) diagnosed at 28 after hospital error a year before, started dialysis February '09. Listed for kidney/pancreas transplant at Ohio State & Univ. of Cincinnati.
paris
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« Reply #18 on: April 07, 2008, 10:23:29 AM »

Great news!  So happy for you :yahoo;
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It's not what you gather, but what you scatter that tells what kind of life you have lived.
kidney4traci
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« Reply #19 on: April 07, 2008, 10:29:08 AM »

Yes, pee is good!!!  Congratualtions!  I loved hearing your story, I too have a high PRA and it gives me hope that there will be a day I get that call too!! Yes, I am excited for you and keep us posted on your continued good health.  And Happy Peeing!!!!
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Married - three children.
Alports female, diagnosed ESRD 10/04
11/04  Hemo in clinic
6/07 hemo at HOME! 
2/3/09 - Transplant from an angel of a friend!!!
kimcanada
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« Reply #20 on: April 07, 2008, 10:43:27 AM »

Congrats Cambonesegirl!!!!
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MyssAnne
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« Reply #21 on: April 07, 2008, 11:01:57 AM »

YAY for you!!!! That is wonderful news!!!!!  Pee for us, girl!!!   :bandance; :bandance; :beer1; :beer1;
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Sunny
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Sunny

« Reply #22 on: April 07, 2008, 12:17:32 PM »

I am so happy for you. Finally you got what you needed.
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Sunny, 49 year old female
 pre-dialysis with GoodPastures
Ohio Buckeye
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« Reply #23 on: April 07, 2008, 12:27:14 PM »

Congratulations :clap; :clap; :bandance; :bandance;!
Hope the kidney lasts for many years! 
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If I must do this to live, I must strive to live
while I am doing this.
NolaGail
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« Reply #24 on: April 07, 2008, 02:18:01 PM »

 :yahoo; :bandance; :yahoo; :bandance; :clap;

Happy thoughts your way!  Congratulations on your new kidney!!!

NolaGail
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In His no-slip grip!

Living donor has one more test to go (4-14-2008).  Her left kidney could be mine in a few months.  No surgery date yet.
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