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Loretta
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« on: April 03, 2008, 06:30:33 PM »

I was looking through the introductions and could not find mine, so maybe I never did the introduction.  So here goes.

In November of 1989, Thanksgiving day, I did not feel well.  My sister was living with me, and she had to work, so I stayed in town and cooked us a Thanksgiving meal.  Neither one of us ate it.  The next day I noticed some sore places in my legs and went to the Dr. and was told I had blood clots and needed to keep my legs elevated.  Then the next day my back started to hurt.  Along in the evening I realized I was very sick.  Much too sick to drive to the neighboring town to the hospital but I needed to be there.  My friend drove me to the hospital and I was in so much pain I could not either sit or lay still.  When the Dr examined me and touched my back I screamed.  They soon found that I had blood clots also in my renal veins.  The left kidney in particular was in trouble.  I rode an ambulance about 75 miles to the nearest big hospital.  I was very sick for awhile.  They dissolved the clots and I returned home.  The recovery was long and slow, but I did recover.  I knew I had less than normal kidney function, but was doing OK and getting on with life.

August of 2006 I went into the hospital with a MRSA infection on my face and in my eye.  The infection kept coming back and eventually the antibiotics by mouth was not working, so the Dr started giving me these shots.  Sometimes every other day for a week or so to control the outbreaks.  This continued for more than a year.  Each time I got the infection it was harder and harder to get rid of it. I was getting sicker and sicker as well.

Then November of 2007 I got a bad case of bronchitis.  Dr's. treated it but it didn't get better.  I developed an extremely bad cough and just continued to get sicker.  I ended up with a lung specialist in December.  He was not doing any better at clearing up my problems.  Finally the first part of January he put me on Oxygen.  I had been telling him since I first started seeing him that I had a lot of nausea, but I couldn't get him to pay attention to that symptom.  He didn't treat stomach aches he just treated lung problems.  He ordered blood work and asked me to come back in two weeks.  I couldn't get an appointment until about two and a half weeks.  I got the blood work done on my way home from the Dr.  The results set on his desk for two weeks until I had me next appointment.  I was trying to work.  Was on Oxygen 24 hours a day and it was a major job for me to walk the short ways from my desk  to the bathroom.  When I got to the Dr. office He looked at my blood test results and got a strange look on his face.  He said, "You are in Kidney failure."   All the pain and sickness of the winter of 89 flashed through my head.  He said I needed to be in the hospital as soon as possible.  I drove home and had to find places for my dog and daughter and pack a suitcase.  It took me several hours, but I got to the hospital that evening. 

Ignor a Perm- catheter placed early the next morning and started dialysis immediately. In a few days the cough got better. After a week they pulled the catheter and sent me home.  I tried to go back to work but they wouldn't let me.  They said I had to have a note from my DR, giving me permission. Before I could get my note I got sick again.  This time I went into the hospital through the ER. The Perm-catheter was replaced and I went back down to dialysis.  I have been on Dialysis ever since. 

The cause of my right kidney shutting down was an allergic reaction to the antibiotics to treat the MRSA infections.  I have been MRSA free for about a year now.  Knock on wood!!!

The surgeon found cancer in my right kidney.  It has been treated with Lazar and chemo treatments.  In the process scar tissue as blocked of the uretha.  So a Nephro tube (A tube from the kidney out my back to drain the urine) was placed.  It lasted a few months but I was still getting infections and it was causing skin problems around the exit site.  One day it just fell out. 

Now there is no was to access the right kidney.  Because I could still have some cancer in it and I am getting a lot of infections in that kidney, I am going to have the kidney taken out later this month.  I am tired of being in the hospital.  It has been my second home.  I know too many of the nurses, and other staff people.  I will have to stay in for about a week after the surgery.  I hope that after that I can stay out of the hospital for years!

I love this sight.  I hope I can encourage others and in some small way help them through their rough spots as I have been helped through some of mine.

Loretta
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okarol
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Photo is Jenna - after Disneyland - 1988

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« Reply #1 on: April 03, 2008, 06:44:10 PM »

Wow Loretta - you sure have been through a lot.
Even though you've been a member for quite a while, it's nice to read your introduction!
So here's a proper WELCOME TO IHD for ya!
 :welcomesign;
I hope the kidney removal goes well. My friend just had a cancerous kidney removed and she's doing great!
Good luck and thanks for the intro.


okarol/admin
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
Sluff
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« Reply #2 on: April 03, 2008, 08:07:06 PM »

Glad you finally introduced yourself Loretta.

My old motorcycle was named Loretta, it was a lemon... :rofl; Thanks for the intro and I hope you enjoy IHD.
Keep in touch and keep us posted when you get your kidney removed. Hopefully when that's over you have great news.

Sluff/Admin
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boxman55
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« Reply #3 on: April 04, 2008, 04:06:26 AM »

Welcome Welcome Welcome. Glad you are here...

Boxman,Moderator
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"Be the change you wished to be"
Started Hemodialysis 8/14/06
Lost lower right leg 5/16/08 due to Diabetes
Sister was denied donation to me for medical reasons 1/2008
bolta72
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my best friend

« Reply #4 on: April 04, 2008, 05:01:00 AM »

Welcome to you and I hope all works out.
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gotta do what I gotta do.. 2 yrs in ctr hemo
MyssAnne
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« Reply #5 on: April 04, 2008, 05:12:46 AM »

Welcome, Loretta! Wow. You have been through the wringer. I so hope it goes fairly smoothly from now on for you!!!   :cuddle;
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willieandwinnie
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« Reply #6 on: April 04, 2008, 05:43:20 AM »

Loretta, You have been through a lot. I know you have been here for a while but I wanted to  :welcomesign; you to the family. Take care.
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"I know there's nothing to it, but I want to know what it is there's nothing to"
Psim
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« Reply #7 on: April 04, 2008, 09:56:03 AM »

Wow, Loretta, you have been through a lot. I'm glad you made it through and are part of the IHD family.
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annabanana
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« Reply #8 on: April 04, 2008, 10:28:47 AM »

Hi, Loretta. It's great that you are getting that kidney removed. Hopefully that will solve a lot of your problems! My husband had a kidney removed last year because of cancer.
Good luck!
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caregiver to Randy:
HepC and stage 4 ckd
1 kidney removed (cancer)Aug07
paris
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« Reply #9 on: April 04, 2008, 12:09:07 PM »

Glad to formally meet you, Loretta.  You are incredibly strong to have survived going through one bad time after another.  Hopefully, this will be the beginning of things getting better.  I am sorry for all that you have endured.   Keep us posted on the surgery.  We'll all be thinking of you. :grouphug;
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It's not what you gather, but what you scatter that tells what kind of life you have lived.
Bajanne
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« Reply #10 on: April 04, 2008, 03:10:46 PM »

Welcome officially to our community!  Thank you for coming and giving us such a thorough intro.  Don't have to tell you about IHD, do I!  Just keep on keeping on.   :grouphug;


Bajanne, Moderator
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"To be found in Him, not having a righteousness of my own ...but that which is based on faith"



I LOVE  my IHD family! :grouphug;
Romona
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« Reply #11 on: April 04, 2008, 03:47:44 PM »

 :grouphug;
You have been through alot.  :welcomesign;
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kitkatz
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« Reply #12 on: April 08, 2008, 10:09:37 PM »

That is a lot of stuff to have been through. I hope everything is much better now and you are recovering.



kitkatz,moderator
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lifenotonthelist.com

Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5

Remember your present situation is not your final destination.

Take it one day, one hour, one minute, one second at a time.

"If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1
monrein
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Might as well smile

« Reply #13 on: April 09, 2008, 02:16:08 PM »

  :welcomesign;  I'm so sorry you've had to go through so much.  Glad you're here.
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
Loretta
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« Reply #14 on: April 10, 2008, 09:59:30 PM »

Thank-you for all the welcomes.

I think we have all been through a lot!

Best wishes to all!
Loretta
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Ang
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« Reply #15 on: April 12, 2008, 09:20:22 PM »

 :welcomesign;
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live  life  to  the  full  and you won't  die  wondering
mikey07840
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Her royal highness Queen Ruth on her throne, RIP

« Reply #16 on: April 14, 2008, 06:29:44 PM »

 :thx; for the introduction.   :welcomesign;
 
Mikey  :usaflag;
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06/85 Diagnosed with type 1 Diabetes
10/04 Radical Nephrectomy (Kidney Cancer or renal cell carcinoma)
02/08 Started Hemodialysis
04/08 Started Peritoneal Dialysis (CAPD)
05/08 Started CCPD (my cycler: The little box of alarms)
07/09 AV Fistula and Permacath added, PD catheter removed. PD discontinued and Hemodialysis resumed
08/09 AV Fistula redone higher up on arm, first one did not work
07/11 Mass found on remaining kidney
08/11 Radical Nephrectomy, confirmed that mass was renal cell carcinoma
12/12 Whipple, mass on pancreas confirmed as renal cell carcinoma

• Don't Knock on Death's door; Ring the bell and run away. Death hates that.

• I'm not a complete Idiot -- some parts are missing.
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