not again, God, please

[twirl]

Stasie took my 18 month old granddaughter to get her shots
the doc took a long time to exam her and told Stasie to take her to the hospital now for an X-ray
it was too late in the afternoon
so Stasie has to make an appointment tomorrow
it seems that Trasie's liver is two or three inches from where it should be
doc wanted to know it we had medical issues
PKD is in our family
I had open heart surgery as a child
Missy, my middle daughter was born with a diaphragmatic hernia and is lucky to be alive ( hernia in her diaphragm)
did my selfishness to have children cause all this pain
i had miscarriages and when to specialists
I told them I had PKD
one doc told me that sometimes you have it and you never know until an autospy is done
they made no big deal out it
I love my children to pieces
but did I have to cause all this pain and to my granddaughter

[Rerun]

Let's just pray that it is not PKD.  Not in an 18 month old.  God please no. 

You are not selfish.  Too late anyway they are all here.   

[Sluff]

   I pray for good news.

[kitkatz]

You were not selfish to have your children.  It is a grand and glorious reason we are here on earth, to procreate. Remember our souls know what will happen in our life's lessons.  We chose the route we are following before we came to learn something.

[kidney4traci]

Will say a prayer for Trasie to be ok.  Also pray you have peace knowing you were fortunate to have children and I am sure they love you back and wouldn't trade their lives in for anything.  I am sure it is harder to see this go on with a baby so young, my heart breaks for you all.  Lots of love and prayer...  keep us posted please.

[Mimi]

Twirl don't go on a guilt trip. You did the best that you knew how to do at the time.  I will be praying
for Trasie.

Love, Mimi

[st789]

 

God looks over this child.  Pray for her.

[rose1999]

Don't blame yourself. Please know we are all hoping and praying for a good outcome. 

[Ang]

i'd  be  surprised/shocked  if  it  was  pkd  as  it  usually  does'nt  surface  till  at  least  15  at  the  earliest.

[angellady07]

Prayers are with you.

[mysty]

 

[oleboy]

  Your Family will be in my thoughts and prayers.


Fixed icon (group hug) Boxman,Moderator

[petey]

lots of prayers and lots of   coming your way from Marvin and me

[KR Cincy]

As hard as it may be to do, don't get ahead of yourself...one day at a time....we're all pulling for you and your family.

[Lori1851]

I will keep you in prayer!!!! Your not selfish. Children are Gods gift and I truely believe that.

Lori/Indiana

[willieandwinnie]

twirl  I'll keep you and yours in my thoughts and prayers. Keep us posted.

[NolaGail]

Twirl,

Children are a treasure from the Lord.  You did not cause this. 

Praying for good news.    Please keep us posted.

NolaGail

[stauffenberg]

The way you stated your question, Twirl, in effect answers it.  You knew there was a risk; you heard some soothing words from a doctor; and then you decided to go ahead with the risk.  Who is to blame for how the risk may have turned out for the child?  You? The doctor who incorrectly tried to minimize the significance of the risk?  The medical system for not being able to cure the condition?  God for creating a world in which such horrors can befall innocent children, and for building an irrational desire into people to breed whatever the risks?  There are countless agents to which we could assign the blame, depending on our explanatory preferences.

[KT0930]

Twirl. First, like others have said, don't get ahead of yourself. Second, know that we are all here for you to rant and vent to - we care. Third, no you're not selfish, you're human for wanting children. 

[twirl]

Thank you for your kind words and they did make a difference to me.
Stasie is about 4-5 months pregnant and she is spotting now and has to go to the hospital.
Trasie has her sonogram tomorrow at 1:30 and can not eat anything until after her test and she may have to stay all night.
bad things happen to good people

you are all wonderful and comforting and thanks

[Jannie]

I think illnesses run in families. My father always had stomach ulcers. He had his appendix out at age 18, he said it was horrible, that was in the days the only anesthesia was ether. He was sick all his life with stomach ulcers, had three stomach operations, at least half his stomach was removed. When he was over 70, he developed cirrhosis of the liver, this was a man who had a glass of wine at Christmas, never drank except for that. it killed him at 75. He also had his gall bladder out in his 50's. My sister (his daughter) had her gall bladder out at 40 and her daughter had hers out at 16. Wow- younger and younger, three generations! And I developed kidnry failure at 48, though I didn't need dialysis till I was 54.  I look at my kids, they are a lot of work , a lot of heartache, but both are healthy, just average girls, now 18 and 19. I have a nephew with autism and a niece whose liver failed and got a liver transplant two weeks ago. She had been jaundiced, her legs swelled so bad she couldn't walk. She now has a miracle-a new lease on life.  Walk a mile in my shoes . . .

[IrishGirl]

Twirl,

 Do not beat yourself up over this. None of us ever knows what the future holds for us. We live our
life as we should and we make our choices to celebrate life. As it should be. You had every right to have your precious children, as we all do. Life is not fair. And life is sure not easy. Some roads are harder
then others. Your children were your celebration of life and your grandchildren as well. None of us can choose, unfortunately, what traits we pass to our offspring. I do not blame my father for our family's
PKD nor do my kids blame me. These children will not blame you. You gave them life. God will take care of the rest. The liver could be something or it could be nothing, wait and see. And yes, bad things DO happen to good people. We will all be praying for you, and for your daughter and grand daughter as well. Everyone has the right to experience the joy of having children and you especially deserved to have that light in your life.  You did not cause this to happen. Everything we do in our life is a crap shoot.  Every day we roll the dice. I will pray for your family. IrishGirl

[twirl]

your words are great comfort to me and I read them all everytime I go to IHD
I am so grateful I found IHD
Trasie's liver in fine but she has a cyst on one kidney
she is going to a renal pedi doctor soon
Monday we bring in a urine sample and she is having blood tests done
then we go see a pedi renal doc
I will keep you informed

Stauffenberg-- I did not know about the risks. I focused on the reason for all the misscarriages. It had nothing to do with PKD. I incorrectly
thought if I had a big problem the docs would inform me.

[annabanana]

twirl, I just now read this thread. You have not caused pain to anyone. I had thoughts like that 2 years ago when my 10 year old son had to have heart surgery. I know it's so hard, but you can't think that way. Think about love for your children and little grandaughter. 

[okarol]

hi twirl,

I was wondering what happened with Trasie and how she's doing.