7piglets
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Me and the boys
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« on: March 21, 2008, 06:33:29 AM » |
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HI everyone I am a 37 yr old f.. I have been type 1 diabetic for 25+yrs and that is cause of kidney failure, Although I didnt know I was in kidney failure until I my twins were stillborn. I knew my kidneys were failing for 4 yrs now and finally talked dr into getting on a kidney list. I am also a 2x cancer surviror (which is the misscomunnication dr had he thought I had to wait 4yrs cancer free and turns out my kind of cancer is 2 plus I should have still been allowed to gather time but cant complain about the whatifs. I had Pd catheter put in in Feb...still not working .In fact wasnt working in the o/r but dr felt it was blood clots..Top things off they did tons of tests and everything is showing catheter is fine ..but CT did show several enlarged lymph nodes and a mass in my lung..(God willing it is not the Sarcoma cancer that came back but things dont look good) Dr wants me to have gen surgeon biopsy lymph nodes in pelvis and meanwhile he can see what is going on with catheter ..I want to find out if lymph are reacting to catheter that is why they are swelling and i am hoping this 'mass' is just fluid (I didnt have CT with contrast so not sure how accurate it is showing fluid vs solid tumor) So that is part of my life LOL I have a whole long black cloud book but it iis early why put you to sleep now  I am so happy I found this site ..thanks |
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willieandwinnie
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« Reply #1 on: March 21, 2008, 06:37:26 AM » |
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 7piglets. It sounds like you have had your share of crap going on. You have found a great site with wonderful people that will answer your questions and listen to you rant. Please keep us updated on what you find out.  |
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"I know there's nothing to it, but I want to know what it is there's nothing to"
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annabanana
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« Reply #2 on: March 21, 2008, 06:47:02 AM » |
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Welcome 7piglets. This IS a great site! |
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caregiver to Randy:
HepC and stage 4 ckd
1 kidney removed (cancer)Aug07
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Bajanne
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« Reply #3 on: March 21, 2008, 06:57:48 AM » |
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Welcome to our community! We are so glad you joined us. This is just the place for you to be, with people who understand EXACTLY what you are going through. This is much more than a website - we have become a real family, sharing and caring. So take advantage of all the site has to offer. Read lots and post lots. We want to know what is going on with you. Not nosy, just family. I see that you are a survivor like me. I had my cancer challenge and then this renal challenge. But we will make it!! Bajanne, Moderator |
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"To be found in Him, not having a righteousness of my own ...but that which is based on faith"  I LOVE my IHD family! |
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rose1999
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« Reply #4 on: March 21, 2008, 07:09:24 AM » |
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Hello and . Sounds like you are going through the mill, hope things work out for you. As Bajanne says, you are survivors and you will make it.  Great name, I love it will you tell us why 7 piglets? |
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paris
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« Reply #5 on: March 21, 2008, 07:31:58 AM » |
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You certainly have been through more than most people. You have found a good place for information and especially for support. I am so sad about your twins. You have had your share and more of heartache. So glad you are here Looking forward to hearing more of your journey.
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It's not what you gather, but what you scatter that tells what kind of life you have lived. |
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7piglets
Jr. Member
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Me and the boys
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« Reply #6 on: March 21, 2008, 09:32:34 AM » |
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HI everyone for the warm welcome. .first off let me say I am from USA and in Jersey (sorry didnt mention it in original post) I really appreciate everyones input and welcomes.. Rose1999 the name 7piglets because Well one I love Piglet from Winnie the Pooh and the 7 is we actually lost 2 sets of twins back to back 2 yrs in a row..Michael April 20, 2004, Kaitlyn April 22,2004, Taylor and Jessica both stillborn June 16,2005 ....After their loss is when I found out about kidneys and told I couldnt get pregnant again..so we became foster parents..We have since adopted 1 of our Foster sons Erik who is 3 (4 in 2wks) , we have Marvin who is 2 and he came to us at 3 months old and are adopting him next month. We are just waiting for court date and we have his 1/2 sister Samantha who we are in process of adopting ...So add it all and you get 7 |
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st789
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« Reply #7 on: March 21, 2008, 09:40:12 AM » |
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Careful of peritonist.
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rookiegirl
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« Reply #8 on: March 21, 2008, 10:49:02 AM » |
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to IHD
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2000-Diagnosed IGA Nephropathy
2002-1st biopsy (complications)
2004-2nd biopsy
10/03/07-Tenckhoff Catheter Placement
10/22/07-Started Peritoneal Dialysis
03/2008-Transplant team meeting
04/2008-Transplant workup
05/2008-Active Transplant list
3/20/09-Cadaver Kidney Transplant
4/07/09-Tenckhoff Catheter removed
4/20/09-New kidney biopsy
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petey
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MEMBER BANNED
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« Reply #9 on: March 21, 2008, 11:00:50 AM » |
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Welcome, 7piglets! (Love the name and the reason for it). My, you certainly have been through a lot. I'm glad you found us and we found you. Like several others have said, I hope you'll feel like a part of our "family" now. Let us know what's going on with you and yours.
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Sluff
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« Reply #10 on: March 21, 2008, 06:47:35 PM » |
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Welcome 7piglets to ihatedialysis.com,
Sorry to hear of you losing two sets of twins but I'm glad you seem to be upbeat. You have a beautiful smile and your boys look so happy in that picture. You have had a few bumps in the road but I hope your future is better. Thanks for taking the time to join our family and please know you can read, ask questions and post as often as you like.
Sluff/Admin
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kellyt
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« Reply #11 on: March 21, 2008, 06:55:12 PM » |
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1993 diagnosed with glomerulonephritis. Oct 41, 2007 - Got fistula placed. Feb 13, 2008 - Activated on "the list". Nov 5, 2008 - Received living donor transplant from my sister-in-law, Etta. Nov 5, 2011 - THREE YEARS POST TRANSPLANT!  |
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Ang
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« Reply #12 on: March 21, 2008, 08:26:16 PM » |
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ti ihd you've been through the wringer in the past,hope the sun shines brightly in the future. 
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live life to the full and you won't die wondering
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boxman55
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« Reply #13 on: March 22, 2008, 10:20:15 AM » |
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Welcome to IHD. Best of luck to you starting PD please don't hesitate to ask any questions you might have. We have a number of people that are on or have been on PD and can help greatly
Boxman/Moderator
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« Last Edit: March 24, 2008, 02:01:20 AM by boxman55 »
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"Be the change you wished to be" Started Hemodialysis 8/14/06 Lost lower right leg 5/16/08 due to Diabetes Sister was denied donation to me for medical reasons 1/2008 |
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Ohio Buckeye
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« Reply #14 on: March 22, 2008, 10:42:31 AM » |
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Hi 7Piglets. to the IHD Family. |
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If I must do this to live, I must strive to live
while I am doing this.
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rose1999
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« Reply #15 on: March 22, 2008, 12:05:46 PM » |
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Thanks for sharing the reason behind your name, it's very sad and I;m sorry for your losses. But it's lovely to see that youhave made your loss into a big gain for Erik, Marvin & Samantha, you must be special people I love piglet too!! |
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mel75
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"I am what I am"
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« Reply #16 on: March 22, 2008, 12:51:02 PM » |
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 Happy Easter and Welcome. Hope everything turns out well with your cath. And everything else Mel
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*~Mel~*
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kitkatz
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« Reply #17 on: March 22, 2008, 01:37:15 PM » |
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Hey 7 piglets! Welcome to the boards! There is alot of information on here about PD and what happens when you are doing it. From the aches and pains to placement of the catheter. We are full of information! Have fun.
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lifenotonthelist.com Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5 Remember your present situation is not your final destination. Take it one day, one hour, one minute, one second at a time. "If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1 |
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del
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« Reply #18 on: March 22, 2008, 04:44:21 PM » |
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7piglets. So sorry to hear about your losses. You will find a lot of very informed people here.
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Don't take your organs to heaven. Heaven knows we need them here.
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7piglets
Jr. Member
Offline
Gender:
Posts: 89
Me and the boys
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« Reply #19 on: March 22, 2008, 10:53:12 PM » |
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I have only been here 2 days but wanted to say you guys are just wonderful thankyou..I think I am posting in all the forums LOL You are going to bann me if I ask anymore questions.. (I did mention in antoher post but I took an ambien and the words are fuzzy so I apologize in advance for any misspellings) Just really wanted to thank you all for the warm greeting, for being here, for helping me..I so appreicate.. For those celebrating tomorrow...Happy Easter  |
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kitkatz
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« Reply #20 on: March 22, 2008, 10:56:27 PM » |
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No bans for questions are offered around here. The more questions we can answer the better for everyone! I am often amazed at the knowledge here on this forum. |
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lifenotonthelist.com Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5 Remember your present situation is not your final destination. Take it one day, one hour, one minute, one second at a time. "If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1 |
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tamara
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« Reply #21 on: March 23, 2008, 12:52:19 AM » |
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ABO Incompatible Transplant from my loving Partner 23/10/07
after over four years on the D Machine
Dialysis Sucks and Transplants Don't.................So Far Anyway !!!!!
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Mimi
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« Reply #22 on: March 23, 2008, 09:43:13 PM » |
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Welcome and good luck on your pd. Mimi |
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Death is not extinguishing the light;
it is putting out the lamp because the dawn has come.
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7piglets
Jr. Member
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Gender:
Posts: 89
Me and the boys
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« Reply #23 on: March 26, 2008, 11:25:55 AM » |
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Cath still not working CT states everything is where it shoudl be I am meeting with vascular surgeon next week and need to have surgery.
Cancer has mets to my lungs ..need to have a thoratic surgeon remove dont know prognosis until removed and checked
Bone infection in left foot or sharko(sp?) meeting with surgeon next plan to have bone removed from big toe
Well things happen in 3s!!
Can I say enough is enough already I need/ want a break!!
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AlohaBeth
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« Reply #24 on: March 27, 2008, 04:47:14 PM » |
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Welcome 7Piglets!
I don't think there is anything that people could say that doesn't sound trite or redundant, but my heart goes out to you. It seems though, through everything, you've kept a wonderful outlook on life...
Glad you are here! You sound like a wonderful person and your boys are just beautiful!
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Imagine a world that lived with the Aloha Spirit.
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