NolaGail
Jr. Member
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Posts: 78
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« on: March 19, 2008, 02:12:22 PM » |
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Hello everybody! My name is NolaGail and I am so glad to have found this site! I have lived with CKD since 1983. I had some hemodialysis when diagnosed, but regained a lot of function. Over the years that has waned (like my neph thought it would). I am still predialysis, but have recently had my catheter put in for PD. Since then, a friend (my angel) has stepped forward to be my living donor. We are a match   ! We hope to finish her eval and have our surgeries early this summer. In His no-slip grip! NolaGail |
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In His no-slip grip!
Living donor has one more test to go (4-14-2008). Her left kidney could be mine in a few months. No surgery date yet.
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mysty
Full Member
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Gender: 
Posts: 289
I'm here.. for us.
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« Reply #1 on: March 19, 2008, 02:44:02 PM » |
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 That's wonderful news right off the bat!!...Glad you found the site.. the people here are amazing..
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Love does not come by finding the perfect person, but by learning to see an imperfect person perfectly.
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annabanana
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« Reply #2 on: March 19, 2008, 02:51:29 PM » |
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This is the BEST place to be!!!
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caregiver to Randy:
HepC and stage 4 ckd
1 kidney removed (cancer)Aug07
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Sluff
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« Reply #3 on: March 19, 2008, 03:09:39 PM » |
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Welcome to IHD NolaGail,
I hope everything works out for the best. Thanks for joining our site I believe you have a lot to offer us with your experiences.
In time I hope to see you post often. If you need anything just ask.
Sluff/Admin
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« Last Edit: May 24, 2008, 05:00:47 AM by Sluff »
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bolta72
Sr. Member
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Posts: 832
my best friend
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« Reply #4 on: March 19, 2008, 03:24:51 PM » |
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gotta do what I gotta do.. 2 yrs in ctr hemo
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willieandwinnie
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« Reply #5 on: March 19, 2008, 03:43:05 PM » |
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NolaGail. Glad you found us. Even after your transplant you will have plenty of questions and we are just a keyboard away.  |
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"I know there's nothing to it, but I want to know what it is there's nothing to"
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okarol
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« Reply #6 on: March 19, 2008, 03:50:37 PM » |
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 Hi NolaGail, I hope all works out for you and your donor. There's good info for living donors at www.livingdonorsonline.org in their message forum. Good luck! okarol/admin
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Laurie
Full Member
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Posts: 438
May 13, 2008
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« Reply #8 on: March 19, 2008, 06:02:39 PM » |
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March 7, 2001 - Complications after C-section caused kidney failure
March 2001 - December 2001 - Hemo Dialysis
December 2001 - Kidney function improved dialysis no longer necessary
October 2006 - Kidney function started to decline
May 9, 2007 - Listed at Baylor Dallas and Fort Worth
October 12, 2007 - Started PD
May 13, 2008 - Kidney Transplant from a deceased donor
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Ang
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« Reply #9 on: March 19, 2008, 06:33:47 PM » |
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hope this summer turns out to b everything you hope for.
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live life to the full and you won't die wondering
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kitkatz
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« Reply #10 on: March 19, 2008, 08:42:24 PM » |
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Good luck on the transplant evaluation and surgery. Welcome to the boards here at IHD.com. There is an entire section on transplants and several members have had transplants in the last year or so. It is interesting to read their adventures.
kitkatz,moderator
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 lifenotonthelist.com Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5 Remember your present situation is not your final destination. Take it one day, one hour, one minute, one second at a time. "If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1 |
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Psim
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« Reply #11 on: March 19, 2008, 09:03:18 PM » |
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NolaGail! Congrats on the match with your angel-friend! Hope all goes perfectly!
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mel75
Newbie
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Posts: 44
"I am what I am"
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« Reply #12 on: March 19, 2008, 09:15:43 PM » |
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Awsome News!!!! Good luck
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*~Mel~*
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Slywalker
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« Reply #13 on: March 20, 2008, 04:59:22 AM » |
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Welcome down south from up north!!! aboard. How exciting to have a friend be a match for a live donor for you. that is what happened for me and it was a very exciting adventure. I hope all the testing and pre-work for the transplant goes smoothly for you and your friend. Sandyb  |
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rookiegirl
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« Reply #14 on: March 20, 2008, 06:21:37 AM » |
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NolaGail to IHD family. |
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2000-Diagnosed IGA Nephropathy
2002-1st biopsy (complications)
2004-2nd biopsy
10/03/07-Tenckhoff Catheter Placement
10/22/07-Started Peritoneal Dialysis
03/2008-Transplant team meeting
04/2008-Transplant workup
05/2008-Active Transplant list
3/20/09-Cadaver Kidney Transplant
4/07/09-Tenckhoff Catheter removed
4/20/09-New kidney biopsy
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xtrememoosetrax
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« Reply #15 on: March 20, 2008, 06:28:39 AM » |
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NolaGail. Glad you're here. There's a ton of information and support here to help you get through everything you have to get through. As someone who is planning to be a living donor myself, I would echo what Okarol said above and say that if your friend/donor doesn't already know about it, she might want to check out livingdonorsonline.org; there's lots of great info and support there too. That and IHD have had (and continue to have) a HUGE impact on me as I go through the process of preparing to donate. Best of luck to both of you; please keep us posted!
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Ohio Buckeye
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« Reply #16 on: March 20, 2008, 11:34:58 AM » |
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NolaaGail to the IHD Family! Hope all goes well for the transplant. His no-slip grip - I like that.
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If I must do this to live, I must strive to live
while I am doing this.
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Romona
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« Reply #17 on: March 20, 2008, 05:03:26 PM » |
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rose1999
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« Reply #18 on: March 21, 2008, 12:42:20 AM » |
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Hello and from the  |
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Bajanne
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« Reply #19 on: May 23, 2008, 07:16:26 PM » |
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So sad that we have lost this member.
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"To be found in Him, not having a righteousness of my own ...but that which is based on faith" I LOVE my IHD family!  |
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okarol
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« Reply #20 on: May 23, 2008, 09:07:33 PM » |
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She sent me her contact info for our emergency list. She had said to wait 4 weeks before contacting her if she wasn't logging on. That would have been May 29th. It's so hard to believe how quickly she is gone. She was a member a pretty short time but I am glad she found IHD to be helpful. |
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paris
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« Reply #21 on: May 24, 2008, 09:47:50 AM » |
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So very sad. Whatever went wrong, seemed to have happened very fast. Prayers for her family |
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It's not what you gather, but what you scatter that tells what kind of life you have lived. |
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monrein
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« Reply #22 on: May 24, 2008, 09:49:39 AM » |
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This is such sad news.
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr. 2009
Second trx doing great so far...all lab values in normal ranges
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willieandwinnie
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« Reply #23 on: May 24, 2008, 10:06:29 AM » |
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So young, it breaks my heart. thoughts and prayers for her family and friends.  |
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"I know there's nothing to it, but I want to know what it is there's nothing to"
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mcjane
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« Reply #24 on: May 24, 2008, 08:23:16 PM » |
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How sad. She was expecting her transplant, from a friend, this Summer.
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