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Author Topic: ^hand on back^ pat! pat! pat!  (Read 6878 times)
cherpep
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« on: March 14, 2008, 10:53:00 AM »
I am very excited, and had to share.

Today, I had my first monthly appointment after starting home dialysis.  My blood test report card had smiley faces all over it!!  I could not have hoped for better results.  My clearances are great, my levels are great, and I am feeling fantastic!!  After 18 years of blood pressure medicine, I have not had 1 BP pill within the last 3 weeks - and my pressures are great!  The nutritionist told me to eat even more high potassium foods.  Now, when I was diagnosed about a year ago, I have been very disciplined in following the Renal diet.  Oranges used to be my 3:00 snack - no more.  Bananas, tomatoes, and potatoes were entirely elminated from my daily diet.  Still, I was hospitalized a few months ago because my potassium was too high.  That was heart-wrenching and discouraging.  You try & try & try, but still it came back high.  A couple of weeks ago, before I went home from training, the nutritionist told me that I should start incorporating a little potassium in my diet.  So, I went home, stuck a candle in half a banana & celebrated!  I didn't go crazy, because I was still a bit afraid of those levels, and didn't want to be hospitalized again.  Well, this month's potassium was 3.6!!!  She told me that I could eat something high in potassium every day!  EVERY DAY?!  That sounds crazy to me, but I am buying oranges, potatoes, bananas, and tomatoes on my way home from work tonight.  I promise not to eat them all tonight, but I will savor them each day.  And, guess what!  She told me to start drinking more fluid!  THIS IS CRAZY!!  I'm almost normal...  (I'm sitting at my desk right now, but in my head, I'm dancing)
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kitkatz
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« Reply #1 on: March 14, 2008, 11:03:23 AM »
Hurray! I bet it is great to feel better!
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lifenotonthelist.com

Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5

Remember your present situation is not your final destination.

Take it one day, one hour, one minute, one second at a time.

"If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1
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« Reply #2 on: March 14, 2008, 11:05:54 AM »
 :clap; You sound good! Glad it's working for you!
Here's a dancing banana to help celebrate  :bandance;
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
KR Cincy
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« Reply #3 on: March 14, 2008, 11:10:57 AM »
YEP...those are all the great things about home hemo...they told me the same things...one high potassium food a day (that first baked potato was unbelievably good!)...fluid restrictions aren't as bad...and isn't is BIZARRE how good those smiley faces on the dietitian's report make you feel???

Good for you...glad you've found all the positives that I did...I'm a big proponent of home hemo and you see why!!
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Not giving up...thanks to Susan.
Sluff
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« Reply #4 on: March 14, 2008, 11:47:27 AM »
Good for you keep it up.  :yahoo;
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Psim
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« Reply #5 on: March 14, 2008, 11:49:01 AM »
 :bandance; :bandance; :bandance; Yay, way to go, cherp! Eat an orange for me!
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Mimi
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« Reply #6 on: March 14, 2008, 11:56:39 AM »
Congrats!!!!!  It is so good to hear someone feels 100%  You are really on the right track.
 :big hug:

Love, Mimi
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it is putting out the lamp because the dawn has come.
rose1999
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« Reply #7 on: March 14, 2008, 01:24:44 PM »
That's really good to hear  :yahoo;
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kellyt
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« Reply #8 on: March 14, 2008, 01:42:57 PM »
That's awesome!!!   :clap;
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1993 diagnosed with glomerulonephritis.
Oct 41, 2007 - Got fistula placed.
Feb 13, 2008 - Activated on "the list".
Nov 5, 2008 - Received living donor transplant from my sister-in-law, Etta.
Nov 5, 2011 - THREE YEARS POST TRANSPLANT!  :D
Sunny
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Sunny
« Reply #9 on: March 14, 2008, 03:14:03 PM »
That is good news. Now you can enjoy those yummy foods you've missed
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Sunny, 49 year old female
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petey
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« Reply #10 on: March 14, 2008, 06:11:37 PM »
This is the same experience Marvin had the month after he started home hemo.  For 12 1/2 years, he struggled with his labs every month.  That level was too high.  This one too low.  Increase the BP meds (until he was on FOUR different meds just for BP).  The month before we started home hemo, he was taking 16 pills a day.  His energy level was zero.  He watched and watched his fluids and still went in with 2-3 kilos on every treatment (3 x week).  Okay, fast forward to a month after home hemo --  ALL labs great.  No more BP meds.  Down to only four pills a day (and one is an iron tablet and one is Colace for stool softening).  He has lots more energy, and he can splurge -- just a little -- with more fluids.  Home hemo changed his life, and, here's the kicker...it gets even better the longer you're on it! 

Great news, cherpep!  Enjoy!
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cherpep
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« Reply #11 on: March 14, 2008, 07:09:22 PM »
Thanks, petey!  That is very encouraging.  I can't wait to tell my husband what you said about it getting even better.  it's hard to believe it can get better than this. :shy;
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Romona
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« Reply #12 on: March 14, 2008, 08:22:22 PM »
 :yahoo;
I'm happy for you!!
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angela515
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i am awesome.
« Reply #13 on: March 14, 2008, 08:36:04 PM »
 :clap;
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Live Donor Transplant From My Mom 12/14/1999
Perfect Match (6 of 6) Cadaver Transplant On 1/14/2007
jbeany
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« Reply #14 on: March 14, 2008, 10:56:27 PM »
Wonderful feeling, isn't it?  Welcome to the club of NxStage - this is why the members are sooooooo happy, even when there are problems!
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"Asbestos Gelos"  (As-bes-tos yay-lohs) Greek. Literally, "fireproof laughter".  A term used by Homer for invincible laughter in the face of death and mortality.
bolta72
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« Reply #15 on: March 15, 2008, 05:33:30 AM »
 :2thumbsup; :clap;
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gotta do what I gotta do.. 2 yrs in ctr hemo
KT0930
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« Reply #16 on: March 15, 2008, 08:42:43 AM »
GREAT news, cherpep! Keep up the great work!  :2thumbsup;
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"Dialysis ain't for sissies" ~My wonderful husband
~~~~~~~
I received a 6 out of 6 antigen match transplant on January 9, 2008. Third transplant, first time on The List.
cherpep
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« Reply #17 on: March 17, 2008, 01:40:15 PM »
Thanks everyone!

I have to laugh.  I sent my mother an email telling her the news of my great results.  She is always complaining to me that I don't share enough with her about my 'condition'. I invited her over for a banana/orange/potato/tomato salad.  Of course, I was kidding.  Her email reply started with (direct quote) "Yuck! I'd rather have a BLT, but eat what you want".  Then, her email continued on for a couple of paragraphs, just talking about diarhea.  I guess that was her way of sharing information.  TMI!!!
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MyssAnne
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« Reply #18 on: March 17, 2008, 01:45:31 PM »
YAY!!!!!!! That is so wonderful!!!!! It tastes sooo good to have what you couldn't have before, doesn't it????

 :beer1; :beer1;
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del
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« Reply #19 on: March 17, 2008, 06:08:13 PM »
 :clap; :clap;  That's home hemo!!!  Do you do short daily or nocturnal?  Hubby does nocturnal.  Can at and drink what he wants!!!
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Don't take your organs to heaven.  Heaven knows we need them here.
twirl
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« Reply #20 on: March 17, 2008, 06:13:04 PM »
please drink a nice, cold glass of tea with lemon for me   
then have a tomato with avocado on top
with fried bananas and ice cream for dessert :bow; :sir ken;   i just like the butt thing
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Adam_W
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« Reply #21 on: March 17, 2008, 06:33:39 PM »
 :bandance; :bandance; :bandance;
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-Diagnosed with ESRD (born with one kidney, hypertension killed it) Jan 21st, 2007
-Started dialysis four days later in hospital (Baxter 1550-I think, then Gambro Phoenix)
-Started in-centre dialysis Feb 6th 2007 (Fres. 2008H)
-Started home hemo June 5th 2007 (NxStage/Pureflow)
-PD catheter placed June 6th 2008 (Bye bye NxStage, at least for now)
-Started CAPD July 4th, 2008
-PD catheter removed Dec 2, 2008-PD just wouldn't work, so I'm back on NxStage
-Kidney function improved enough to go off dialysis, Feb. 2011!!!!!
-Back on dialysis (still NxStage) July 2011 :(
-In-centre self-care dialysis March 2012 (Fresenius 2008K)
-Not on transplant list yet.


"Don't live for dialysis, use dialysis to LIVE"
annabanana
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« Reply #22 on: March 20, 2008, 06:22:32 PM »
FANTASTIC news! I know you are loving it! (My husband is fighting the high potassium right now and HATES the diet...)
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caregiver to Randy:
HepC and stage 4 ckd
1 kidney removed (cancer)Aug07
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