I Hate Dialysis Message Board
Welcome, Guest. Please login or register.
November 25, 2024, 04:26:16 AM

Login with username, password and session length
Search:     Advanced search
532606 Posts in 33561 Topics by 12678 Members
Latest Member: astrobridge
* Home Help Search Login Register
+  I Hate Dialysis Message Board
|-+  Introduction
| |-+  Introduce Yourself
| | |-+  Hello, I'am Jay from St. Marys, Ontario
0 Members and 1 Guest are viewing this topic. « previous next »
Pages: [1] Go Down Print
Author Topic: Hello, I'am Jay from St. Marys, Ontario  (Read 3027 times)
Jay72
Jr. Member
**
Offline Offline

Gender: Male
Posts: 85


« on: February 27, 2008, 09:29:38 AM »

Hello everyone, My name is Jason and I am 35.  I have had two kidney transplants and have recently found out that I will have to go back on hemo within the next few months.  A quick history of my situation.  I was born with kidney disease and knew from a very young age that I would need a transplant at some point in time.  I have no siblings so my parents were both tested and turned out my Mom was a match.  So when I was 20 it was time for my transplant.  All went perfect with a few minor bout of rejection.  Then somehow I ended up with CMV which pretty much caused sever chronic rejection.  So after 3 years with my mom's kidney I was on dialysis.  (I never had dialysis before the transplant because we knew that it was needed and I was transplanted before dialysis had to be started)  I had a fistula done about a year before I started dialysis so when I stated  I had an access already, mind you not a very strong one.  After a short time on the main floor of hemo I went on to do "self care" at the same hospital, where I did pretty much everything myself, mind you I hated doing my own needles.  Well I stated dialysis in January of 96 and on February 9, 1999 I got the call that they had a kidney for me.  Had the transplant (cadaveric) and all went absolutly perfect, no rejection nothing.  But.... in 2002 I had an absess (sp?) whcih burst and I went septic.  Needless to say this damaged my transplant severly.  I went from a creatine of 120 to 680 then the doctors were able to get it back down to around 280, which was much better.   But they told me that the transplat took a lot of damage and that more than likly things would progressivly get worse over the next few years.  Well I now have a cr of 450 and have to go see a vascular surgeon on March 11, and find out about having another fistula tied in.  I had the old one tied off for my job. 

I still work full time in a factory as a welder, but I now find that I am very tired again and usually work and sleep, and try to spend time with my wife and 9 yr old tiwn boys.

I am also very interested in home hemo, as here in the London area (Canada) they seem to really try to promote home hemo, but I need to do more research on that and I hope to learn lots on this site.  I really look forward to your input and information and hope that I can help whereever possible as well, as I do have quite a bit of knowledge as well.

Thanks for taking the time to read this, so stay postive and all will work out.

Jay Hammond
Logged
Joe Paul
Elite Member
*****
Offline Offline

Gender: Male
Posts: 4841


« Reply #1 on: February 27, 2008, 09:40:54 AM »

Welcome Jay, good to have you aboard.
Logged

"The history of discovery is completed by those who don't follow rules"
Angels are with us, but don't take GOD for granted
Transplant Jan. 8, 2010
willieandwinnie
Elite Member
*****
Offline Offline

Gender: Female
Posts: 3957


« Reply #2 on: February 27, 2008, 09:52:16 AM »

 :welcomesign; Jason. You'll find lots of information here. Keep us updated.
Logged

"I know there's nothing to it, but I want to know what it is there's nothing to"
Sluff
Member for Life
******
Offline Offline

Gender: Male
Posts: 43869


« Reply #3 on: February 27, 2008, 10:07:37 AM »

You came to the right place Jay so welcome to ihatedialysis.com

Sorry to hear your going back on hemo, I guess you really know what your future holds. There are a few topics on home hemo and the difference it makes. You have been at this a long time so you should have an idea what your getting into which is more that some do. I wish you luck my friend and know that we are here for you. Don't be a stranger.

Sluff/ Admin
Logged
Psim
Full Member
***
Offline Offline

Gender: Female
Posts: 380


« Reply #4 on: February 27, 2008, 10:10:09 AM »

Hello from across  :canadaflag; Twins! That must keep you on your toes. Welcome to IHD!
Logged
kidney4traci
Elite Member
*****
Offline Offline

Gender: Female
Posts: 1046


« Reply #5 on: February 27, 2008, 10:13:35 AM »

Ji Jay!  Twin boys?? OMG, I have an 8 year old boy - can't imaginge how much fun it must be to have two of 'em!   :welcomesign;
Logged

Married - three children.
Alports female, diagnosed ESRD 10/04
11/04  Hemo in clinic
6/07 hemo at HOME! 
2/3/09 - Transplant from an angel of a friend!!!
kellyt
Elite Member
*****
Offline Offline

Gender: Female
Posts: 3840


« Reply #6 on: February 27, 2008, 10:14:17 AM »

 :waving;  Amazing story.  Glad you found IHD!!!!!
Logged

1993 diagnosed with glomerulonephritis.
Oct 41, 2007 - Got fistula placed.
Feb 13, 2008 - Activated on "the list".
Nov 5, 2008 - Received living donor transplant from my sister-in-law, Etta.
Nov 5, 2011 - THREE YEARS POST TRANSPLANT!  :D
rose1999
Elite Member
*****
Offline Offline

Gender: Female
Posts: 1893


« Reply #7 on: February 27, 2008, 10:29:25 AM »

Hi Jay and  :welcomesign; from  :ukflag;, good to have you on board.
Logged
paris
Member for Life
******
Offline Offline

Gender: Female
Posts: 8859


« Reply #8 on: February 27, 2008, 10:36:01 AM »

 :welcomesign; Jay, thanks for sharing your story.  You have a lot to share with us.  Glad you found us.   :thumbup;
Logged



It's not what you gather, but what you scatter that tells what kind of life you have lived.
livecam
Elite Member
*****
Offline Offline

Gender: Male
Posts: 1182


World's Best Beach..Lanikai..Oahu, Hawaii

« Reply #9 on: February 27, 2008, 10:37:45 AM »

Welcome to the site Jason.  Check with Brenda (username) about home hemo.  She is in Canada and is an old hand at home hemo.  She could probably be of some help to you.  Welcome aboard!
Logged
Romona
Elite Member
*****
Offline Offline

Gender: Female
Posts: 3777

« Reply #10 on: February 27, 2008, 01:47:31 PM »

 :welcomesign;
Logged
xtrememoosetrax
Sr. Member
****
Offline Offline

Gender: Female
Posts: 519


« Reply #11 on: February 27, 2008, 03:41:43 PM »

Wow, you've been through a lot, and you've been going through it for a long time!  Welcome to IHD.  There's a ton of information and support available here, so keep coming back!  We will be looking forward to getting to know you better.
Logged

Living donor to friend via 3-way paired exchange on July 30, 2008.

www.paireddonation.org
www.caringbridge.org/visit/marthahansen
Ang
Elite Member
*****
Offline Offline

Gender: Male
Posts: 3314


« Reply #12 on: February 27, 2008, 08:09:43 PM »

 :welcomesign;   aboard  jay
Logged

live  life  to  the  full  and you won't  die  wondering
brenda
Full Member
***
Offline Offline

Gender: Female
Posts: 398


« Reply #13 on: February 27, 2008, 09:20:02 PM »

Welcome to another fellow Canadian.  :canadaflag; I would be more than happy to help answer any questions or relieve any fears you may have with home hemo. As livecam said I have been doing home hemo for a very long time.

Jeff did you just call me old?  :-\
Logged

Life is what happens while your making other plans.
Bajanne
Member for Life
******
Offline Offline

Gender: Female
Posts: 5337


Goofynina and Epoman - Gone But Not Forgotten

WWW
« Reply #14 on: February 28, 2008, 11:53:08 AM »

welcome to our community!  this is from a fellow member of the Commonwealth!  Happy to have you with us.  This is just the place to be when faced by this renal challenge.  This is a place for information and empowerment, venting and raging, fun and laughter, just plain nonsense sometimes, sadness and farewells, and lots of love and support.   :grouphug; this is the IHD family.  Keep reading and keep posting - we want to know how you are doing.


Bajanne, Moderator
Logged

"To be found in Him, not having a righteousness of my own ...but that which is based on faith"



I LOVE  my IHD family! :grouphug;
kitkatz
Member for Life
******
Offline Offline

Gender: Female
Posts: 17042


« Reply #15 on: February 28, 2008, 08:17:29 PM »

Wow! You have stories to tell, I bet.  Welcome to the site.  I hope all goes well for you as you begin dialysis again.


Kitkatz,moderator
Logged



lifenotonthelist.com

Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5

Remember your present situation is not your final destination.

Take it one day, one hour, one minute, one second at a time.

"If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1
keefer51
Sr. Member
****
Offline Offline

Gender: Male
Posts: 667


« Reply #16 on: February 29, 2008, 01:36:06 AM »

 :welcomesign;
Logged

i am a 51 year old male on dialysis for 3 years now. This is my second time. My brother donated a kidney to me about 13 years ago. I found this site on another site. I had to laugh when i saw what it was called. I hope to meet people from all over to talk about dialysis.
Clancy1600
Newbie
*
Offline Offline

Gender: Female
Posts: 24


« Reply #17 on: March 02, 2008, 07:42:24 PM »

It looks like you and I became members of IHD on the same day.  Welcome to you!
Logged
CW
Full Member
***
Offline Offline

Gender: Male
Posts: 307


Yeah .............That's me!

« Reply #18 on: March 03, 2008, 07:52:53 AM »

Well Jay first I would like to say  :welcomesign; to the forum

You came to the right place to learn about home hemo - there are a lot of threads on that issue, explore and I am sure you will find every aspect of home dialysis discussed here. Sorry your TX failed but rest assured we can make it either way!

Good luck  :thumbup;

CW
Logged

*Common Sense is an uncommon thing


20 years navigating ESRD
Had a transplant but it rejected

To all of my kidney brothers and sisters who have left too soon -
Where you used to be, there is a hole in the world, which I find myself constantly walking around in the daytime, and falling in at night.  I miss you like hell.  ~Edna St Vincent Millay
Jay72
Jr. Member
**
Offline Offline

Gender: Male
Posts: 85


« Reply #19 on: March 25, 2008, 07:20:24 AM »

Thanks to everyone, for the welcome.  Since I first posted with my situation, I have met with the home hemo unit and the surgeon.  I have a fistula done tomorrow and so far it seems like our house will be fine for the hemo to be done here.  i will keep udated.
Logged
boxman55
Elite Member
*****
Offline Offline

Gender: Male
Posts: 3635


« Reply #20 on: March 25, 2008, 12:22:49 PM »

Wlcome Jay 72 you can bring a ton of knowledge to this site and we are glad to have you as a member

Boxman,Moderator
Logged


"Be the change you wished to be"
Started Hemodialysis 8/14/06
Lost lower right leg 5/16/08 due to Diabetes
Sister was denied donation to me for medical reasons 1/2008
lola
Elite Member
*****
Offline Offline

Gender: Female
Posts: 2167


I can fly!!!

« Reply #21 on: March 25, 2008, 12:33:42 PM »

 :welcomesign;
Logged

monrein
Member for Life
******
Offline Offline

Gender: Female
Posts: 8323


Might as well smile

« Reply #22 on: April 07, 2008, 05:21:39 PM »

Hi Jay
I'm new here and I'm from Toronto.  I did home dialysis from 1980-1985 (with some months in hospital thrown in there) and I'm about to go back on dialysis probably around June so that sounds a lot like what you're facing.  I'm having a new access created on Apr. 15th, which is fast approaching so maybe we can keep our fingers crossed for each other.  I much preferred home hemo to in center and also much prefer needling myself.  Doesn't hurt nearly as much in my opinion but of course everyone's different.  I love your small town and have been there often. I used to see about 7 or 8 plays a year in Stratford but mostly stayed in St. Marys.  This is a great site and I look forward to hearing more from you.
Gail
Logged

Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
Pages: [1] Go Up Print 
« previous next »
 

Powered by MySQL Powered by PHP SMF 2.0.17 | SMF © 2019, Simple Machines | Terms and Policies Valid XHTML 1.0! Valid CSS!