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Author Topic: CHICAGO: IHD first 2nd Annual Member Meeting  (Read 116474 times)
Chris
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« Reply #300 on: July 29, 2008, 10:50:09 PM »
Closest thing I have to anything with purple is a white shirt with my schools logo. The school color is purple.
If there are people there on Friday, is there a plan to do something?
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Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
okarol
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« Reply #301 on: July 29, 2008, 11:15:39 PM »
Quote from: Chris on July 29, 2008, 10:50:09 PM
Closest thing I have to anything with purple is a white shirt with my schools logo. The school color is purple.
If there are people there on Friday, is there a plan to do something?

I will be there Thursday night, so will Rolando and Alene. Just hanging out together I think.
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
Sluff
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« Reply #302 on: July 30, 2008, 04:40:44 AM »
My plan was to be there Thursday, but it depends if my lawns are done today otherwise I may have to work thursday and come down fri or Late thursday.
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flip
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« Reply #303 on: July 30, 2008, 11:27:20 AM »
I'm going to a large book sale in Oak Park on Saturday morning. Is that a pretty good section of town? I'm sure Chris will know.

BTW, we'll be there sometime Friday afternoon.
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That which does not kill me only makes me stronger - Neitzsche
paris
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« Reply #304 on: July 30, 2008, 12:20:12 PM »
We'll be there sometime Friday afternoon.   A book sale?   My husband might like to hear about that.  He might go to a museum Saturday before the dinner.   He knows I can't keep up, and I don't want him to miss out on things he enjoys.  He loves all museums.   I will be sitting and visiting!    Anyone want to go see the "bean" Friday early evening?    I have been getting things ready to go and I am really looking forward to meeting everyone.   Also ready to :cuddle; Sluff and Okarol again.  :2thumbsup;
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It's not what you gather, but what you scatter that tells what kind of life you have lived.
flip
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« Reply #305 on: July 30, 2008, 12:55:12 PM »
The book sale makes this officially a business trip.
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okarol
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« Reply #306 on: July 30, 2008, 01:03:17 PM »
Annual Book Fair

Plenty of books for children are available. Books are sorted by subject or genre and are displayed with spines facing up. Take time to browse for your favorite authors. Bring someone to shop with you.
The Friends are happy to announce the 38th Annual Book Fair. 100,000 books in every conceivable category, from Children's books to Cooking, History, Romance novels, Travel and many more...

Join us in the air conditioned cafeteria of the
Oak Park River Forest High School
201 N. Scoville Avenue in Oak Park, Illinois.

Friday, August 1, 2008
6 p.m. to 10 p.m.
$5.00 admission
   
Saturday, August 2, 2008
9 a.m. to 5 p.m.
Free admission
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
flip
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« Reply #307 on: July 30, 2008, 01:05:55 PM »
That's the one. There are also three others in the Chicago area on Saturday, but this one is the biggest.
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That which does not kill me only makes me stronger - Neitzsche
Chris
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« Reply #308 on: July 30, 2008, 01:16:44 PM »
I went to Triton College in River Forest and the parts I've been to in Oak Park to seem safe. In college we use to go all around places for lunch in groups. We found one place that sold us beer and non of us where of age nor did they check our ID's. Although we all had Ford Motor Company jackets on  :rofl;

Not sure where the high school is though, I do know it's not by the horse racing track though  :rofl;
Logged
Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
flip
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« Reply #309 on: July 30, 2008, 01:43:07 PM »
I assume you're talking about the harness track. Looks like it's about 6 blocks or so away.
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That which does not kill me only makes me stronger - Neitzsche
Jess21
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« Reply #310 on: July 30, 2008, 04:28:53 PM »
My mom went to school in River Forest, and she says Oak Park is right next to it and is a good city.  She thinks the high school is just south of Concordia University.
They want me early (the latest 1pm) at dialysis, so we should be there by 6:30, and I know I'm going to be ready for dinner when I get there. :bandance; Anyone going out Friday?
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Hospitalized w/ renal failure- Nov. 2007
Diagnosed w/ ESRD w/ unknown cause- Jan 2008
Lower arm AV Fistula created- March 2008
On IL transplant list- Oct. 8th, 2008
On WI transplant list- June 25th, 2009
Pediatric 2 kidney transplant- July 6th, 2009 (3/6 antigen match)
Chris
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« Reply #311 on: July 30, 2008, 05:13:59 PM »
I think I get paid Friday, so if there is a group who wants to go out, I am up for it.

Flip, yep that's the track I am talking about. Forgot the name of it though, Balmorial, but not sure. It's on the corner of 1st Avenue and North Avenue (64) if I remember correctly.
Logged
Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
monrein
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Might as well smile
« Reply #312 on: July 30, 2008, 05:54:27 PM »
I hope you guys all have a really great time together and I wish I could be there also to meet those members who are going.  Please eat some forbidden foods for me and I'll be thinking of you all starting tomorrow.
Logged
Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
paris
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« Reply #313 on: July 30, 2008, 07:44:42 PM »
Well, it is almost 11pm on Wednesday.  The info sheets aren't printed.  The name tags aren't made.  Everything else is in place---but no matter how well I plan, time always runs out!   I do have lots of purple things, though!!   We want to do something Friday night, too.  We will be up for anything.   :2thumbsup;   I am ready to be in Chicago!
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It's not what you gather, but what you scatter that tells what kind of life you have lived.
Chris
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« Reply #314 on: July 30, 2008, 07:47:43 PM »
Paris, send me the file and I will print the info sheets
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Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
flip
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« Reply #315 on: July 30, 2008, 07:53:22 PM »
I'm not sure what time we will be there on Friday but I'm always game for anything no matter how bad I feel or how late it is.
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That which does not kill me only makes me stronger - Neitzsche
pelagia
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« Reply #316 on: July 30, 2008, 07:54:49 PM »
Have a very, very great time!  I am going to the beach to stare at the horizon, but still I will be thinking about y'all.
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As for me, I'll borrow this thought: "Having never experienced kidney disease, I had no idea how crucial kidney function is to the rest of the body." - KD
flip
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« Reply #317 on: July 30, 2008, 08:05:18 PM »
I may bring some of my cousins along to help liven things up. My room has two double beds which will sleep 12 hillbillies.
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That which does not kill me only makes me stronger - Neitzsche
Sluff
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« Reply #318 on: July 30, 2008, 08:06:24 PM »
Quote from: flip on July 30, 2008, 08:05:18 PM
I may bring some of my cousins along to help liven things up. My room has two double beds which will sleep 12 hillbillies.

Sounds almost like Noah's Ark... :rofl;
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flip
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« Reply #319 on: July 30, 2008, 08:20:13 PM »
Actually more like Next Of Kin
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That which does not kill me only makes me stronger - Neitzsche
Chris
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« Reply #320 on: July 30, 2008, 08:38:55 PM »
Whoohoo, I get paid Friday, so I'll be able to gas my truck up and maybe have lunch (late) or dinner with a few on Friday. For sure on Saturday.
Logged
Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
flip
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Posts: 1742
« Reply #321 on: July 30, 2008, 08:42:04 PM »
I'll buy you a Nepro
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That which does not kill me only makes me stronger - Neitzsche
Chris
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« Reply #322 on: July 30, 2008, 08:45:50 PM »
Now is that going to be one of your special Nepro drinks there flip?  :rofl; :beer1;
Logged
Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
monrein
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Posts: 8323


Might as well smile
« Reply #323 on: July 31, 2008, 03:59:16 AM »
I'll be thinking of those of of you who are meeting in Chicago.  Hope you have a wonderful time together and I wish I could be there to meet you all as well. :grouphug;
Logged
Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
Sluff
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Posts: 43869
« Reply #324 on: July 31, 2008, 05:05:41 AM »
Me and my family will be leaving this morning around 9 or 10 am and should be there by 2 or 3pm.  Can't wait.
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