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Author Topic: CHICAGO: IHD first 2nd Annual Member Meeting  (Read 116546 times)
flip
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« Reply #200 on: July 02, 2008, 06:50:30 PM »

I think extrememoosetrax has dropped out
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That which does not kill me only makes me stronger - Neitzsche
okarol
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Photo is Jenna - after Disneyland - 1988

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« Reply #201 on: July 02, 2008, 06:54:37 PM »


Right you are.  :oops;
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
flip
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« Reply #202 on: July 02, 2008, 07:05:49 PM »

maybe I'll bring some of my cousins like in the old Patrick Swayze movie...I'll think of the name later, my CRS is acting up tonight.
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That which does not kill me only makes me stronger - Neitzsche
flip
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« Reply #203 on: July 02, 2008, 07:54:01 PM »

Next Of Kin (1989)
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Sluff
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« Reply #204 on: July 02, 2008, 07:56:16 PM »

Next Of Kin (1989)

I like the rattle snakes scene in the old school bus.
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paris
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« Reply #205 on: July 02, 2008, 08:12:40 PM »

Sluff and flip--you two are starting to worry me!    I am not sure how we will handle you both together live and in person! :rofl;
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It's not what you gather, but what you scatter that tells what kind of life you have lived.
Sluff
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« Reply #206 on: July 03, 2008, 04:15:20 AM »

Well it's better than the graveyard scene.. ;)
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lola
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I can fly!!!

« Reply #207 on: July 04, 2008, 07:23:10 AM »

With everything going on Otto and I may not be able to make it. BUT i'm not giving up hope till then, I want to go sooooo bad.
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okarol
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« Reply #208 on: July 04, 2008, 01:21:41 PM »


Anyone ever do this?


Chicago At Sunset - Boat Tour

Heading directly onto Lake Michigan, a brilliant array of lights will come to life along the skyline. After a stunning sunset and relaxing trip along the lakefront, the boat will enter Monroe Harbor for a front row seat for the Buckingham Fountain Water and Lights Show.

The Chicago at Sunset Tour offers the opportunity to enjoy one of Chicago's most romantic and unique settings.

Adults $25. Seniors (age 65 and over) $22. Children (age 11 and under) $12. Infants (under age 3) No charge

http://www.wendellaboats.com/sunset.htm

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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
Chris
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« Reply #209 on: July 04, 2008, 04:32:09 PM »

Boy, senior get a whopping $3.00 price break, yet kids get $13 price break. Seems to me seniors should get a little more. Then again, I didn't major in economics and business. ;D
« Last Edit: July 04, 2008, 05:09:46 PM by Chris » Logged

Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
paris
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« Reply #210 on: July 04, 2008, 04:59:06 PM »

That and the Navy Pier are two ideas for Saturday night.  Relaxing, good views--- doesn't take much energy.   Sounds good to me.

And you are right Chris, seniors should get a better break!
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It's not what you gather, but what you scatter that tells what kind of life you have lived.
Jess21
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« Reply #211 on: July 04, 2008, 07:32:54 PM »

Most likely the sun will have gone down by the time dinner is done Saturday...Tinley Park is a still a bit of a hike from Chicago...an hour on train.
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Hospitalized w/ renal failure- Nov. 2007
Diagnosed w/ ESRD w/ unknown cause- Jan 2008
Lower arm AV Fistula created- March 2008
On IL transplant list- Oct. 8th, 2008
On WI transplant list- June 25th, 2009
Pediatric 2 kidney transplant- July 6th, 2009 (3/6 antigen match)
Chris
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« Reply #212 on: July 04, 2008, 07:47:25 PM »

Yep, I hate those every stop trains. I love the expres trains, either there are 3 stops before mine or I'm the first stop. These days though, hard to get a seat with more people switching to commuter trains.
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Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
paris
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« Reply #213 on: July 04, 2008, 07:49:19 PM »

Sluff suggested an early dinner, since we wanted plenty of time to visit.  Last year in Vegas, we could have used more time at dinner, so our reservations are for 4!  We know that seems kind of early, but by the time we meet, greet, eat, laugh and cry--it will be 7!  

Chris and Jess, can you two advice us on the best way, times and expense in getting downtown?  Is is better for all to go by train?  Or by cars?  Remembering some are in wheelchairs,or just can't walk long distances.   Any way to find out the price of parking by Navy Pier?   Thanks guys!  It helps having you two "on site".  :2thumbsup;

Also, who will have cars with them or renting cars?  We will rent a car at the airport.  We may have enough vehicles to transport all of us.   4 weeks!! :yahoo;
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It's not what you gather, but what you scatter that tells what kind of life you have lived.
Chris
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« Reply #214 on: July 04, 2008, 07:56:51 PM »

Metra, our commuter train has wheelchair accessible trains. As far as the train from Tinley Park, I never have been to that train station in Chicago. I use a different Metra commuter line that takes me into Union Station where I am familiar to where the elevators are to get outside. The Metra line I take offers a $5 weekend pass which is cheap compared to the weekly fee such as $4.75 for a one way ticket. There are weekend passes at the train station for the CTA buses in Chicago, which I think are also $5.00. I took a picture on my cell phone and need to download it. I would say the train is the best option for cost and convenience (less headache and hassle to driving in a town you never been to before) not to mention fuel savings.
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Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
Jess21
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« Reply #215 on: July 04, 2008, 08:06:11 PM »

I take 4 trains a day...atleast my first train is a non stop!  Also, with this week being the forth of July, it's been fun avoiding (or the lack there of) all the Taste Of Chicago and Cross-town classic (Sox vs Cubs) people.  i feel like this.. :Kit n Stik; lol  Especially with walking from Union station to lasalle st station (goes into tinley park).
Navy pier is 23 bucks a day parking.  Train (Tinley park has free parking if I remember at the station) is 5 bucks (Metra has a weekend pass). Buses are a couple bucks.  Driving is 31.1 miles (41 minutes) from hotel to navy pier.
Chris- the Lasalle St station has a elevator right next to the escalators going up to the platforms it's maybe 1/5 the size of Union Station.
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Hospitalized w/ renal failure- Nov. 2007
Diagnosed w/ ESRD w/ unknown cause- Jan 2008
Lower arm AV Fistula created- March 2008
On IL transplant list- Oct. 8th, 2008
On WI transplant list- June 25th, 2009
Pediatric 2 kidney transplant- July 6th, 2009 (3/6 antigen match)
Chris
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« Reply #216 on: July 04, 2008, 08:17:24 PM »

Forgot about the parking fee in Chicago, wholly crap! $23 now, the last time I drove into Chicago it was $10 (1990 something when the autoshow was at Mc Cormick Place). I'll download the photo of the CTA pass when my phone is charged back up, I think it is more than a weekend pass and can be used at anytime. Hopefully the photo will tell. But if they don't have it at the LaSalle Station, no point then, just be sure to have exact change for bus and don't expect to get change back from bus either. A no change policy is in effect. So if you have a $20 and bus fare is $2.00 and you need to be on that bus, you loose $18.00 and don't expect sympathy from anyone on the bus or from the bus driver. Seen that a few times too, but  I usually take a taxi to where I need to go unless I am with someone who knows the bus route and which bus to get on to or transfer to. Not to mention those seats are uncomfortable! :rant;
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Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
Chris
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« Reply #217 on: July 04, 2008, 08:37:09 PM »

CTA Bus Pass cost (not the greatest picture, should have checked to use 2 mp mode). I'll take it again this Thursday, July 10.
« Last Edit: July 05, 2008, 10:40:25 AM by Chris » Logged

Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
paris
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« Reply #218 on: July 05, 2008, 10:31:08 AM »

Chris and Jess---Thank you!!      Ok--all of those going--give us some input re: transportation.  Maybe if we can talk about it now, we will have less time to worry about those details when we are in Chicago.  Input would be greatly appreciated.  Who wants to do what?  And go where?     Let's talk :2thumbsup; 
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It's not what you gather, but what you scatter that tells what kind of life you have lived.
rsood2004
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Me and my baby Kyle

« Reply #219 on: July 09, 2008, 06:14:15 AM »

Just wondering if too late to get in on this meeting? Also wondering if Paddlebear from Dayton found a way yet? My husband and I would love to come and will be checking on it today but we will drive from Toledo Ohio and if Paddlebear and honey want to meet us in Toledo we can carpool (u better be nice and fun) :bandance; Let me know! As soon as I figure out hotel avail and if hubby wants to go (he's at work) I will let you all know. Thanks
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Laurie
“I am not afraid…I was born to do this.”
“There is nothing wrong with being afraid---but there is nothing more wrong than allowing that to be your master.”
“What we do for ourselves dies with us. What we do for others and the world remains and is immortal.”-Joan of Arc
flip
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« Reply #220 on: July 09, 2008, 08:01:19 AM »

I really don't care much about the activities. I just want to meet and visit with everyone.
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Sluff
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« Reply #221 on: July 09, 2008, 05:17:08 PM »

and eat.     :rofl;
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paris
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« Reply #222 on: July 09, 2008, 05:49:36 PM »

Laurie, PLEASE come!  Tell your sweet RN husband that we really want you both to be there.  Meeting Sluff will make it worth you time!!  And I can't wait to meet Flip!  I do hope you can make the trip.  I look forward to meeting you in person. :clap;
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It's not what you gather, but what you scatter that tells what kind of life you have lived.
rsood2004
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Me and my baby Kyle

« Reply #223 on: July 10, 2008, 04:28:05 AM »

Thanks Paris! I can't wait to meet all of you also! Everyone seems like sooooooooo much fun! Is there any other meeting time/place other than dinner on Sat? Is there actually a meeting? Or just use as excuse to get together? Ha ha tee hee (fine with me if so) I could use the break from reality! Couldn't we all? Talk to you soon. :bandance;
« Last Edit: July 10, 2008, 04:30:51 AM by rsood2004 » Logged

Laurie
“I am not afraid…I was born to do this.”
“There is nothing wrong with being afraid---but there is nothing more wrong than allowing that to be your master.”
“What we do for ourselves dies with us. What we do for others and the world remains and is immortal.”-Joan of Arc
paris
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« Reply #224 on: July 10, 2008, 07:05:09 AM »

Hi Laurie, many of us are coming on Friday.  Saturday at 4 is the "official IHD dinner".  Most of us just want to be together and visit.  But there is a lot to do in Chicago for those who want to go sightseeing.  We will have some information available at the hotel.   I can not say enough how important it was for me to go to the meet in Vegas last year.  I came away with unbelievable friendships and partners in crime.   :rofl; It will be much fun to see the person that goes with the name.   And our two Administrators will be there; Sluff and Okarol.   Have you found the info on the dinner?   Let us know if you have more questions.   PLEASE come.   :2thumbsup;
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It's not what you gather, but what you scatter that tells what kind of life you have lived.
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