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Author Topic: CHICAGO: IHD first 2nd Annual Member Meeting  (Read 118199 times)
okarol
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Photo is Jenna - after Disneyland - 1988

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« Reply #175 on: June 05, 2008, 10:10:21 PM »
Quote from: flip on June 05, 2008, 05:56:43 PM
I was just funnin' anyway. The only tour bus I ever rode in was the yellow one that took me to school evry day.

Was it the short bus or the long bus?  ;D
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
kitkatz
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« Reply #176 on: June 21, 2008, 06:29:24 PM »
My daughter Maria may be able to come from Milwaukee on Megabus to Chicago to the Reunion of IHD.com. She is a member of IHD.com and is my daughter. She may need a place to crash for the night on Friday.  So if anyone has a room or an idea let me or her know. Her name here is thepandaones for a PM.   I will let you all know.
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lifenotonthelist.com

Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5

Remember your present situation is not your final destination.

Take it one day, one hour, one minute, one second at a time.

"If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1
Sluff
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« Reply #177 on: June 22, 2008, 02:39:23 PM »
Quote from: kitkatz on June 21, 2008, 06:29:24 PM
My daughter Maria may be able to come from Milwaukee on Megabus to Chicago to the Reunion of IHD.com. She is a member of IHD.com and is my daughter. She may need a place to crash for the night on Friday.  So if anyone has a room or an idea let me or her know. Her name here is thepandaones for a PM.   I will let you all know.

She could bunk with us for a night Kitkatz.
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kitkatz
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« Reply #178 on: June 22, 2008, 03:38:16 PM »
I will let her know. She can take Megabus down and busses over to Tinley park really cheaply.  She is considering it.
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lifenotonthelist.com

Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5

Remember your present situation is not your final destination.

Take it one day, one hour, one minute, one second at a time.

"If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1
Sluff
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« Reply #179 on: June 22, 2008, 03:47:15 PM »
coolio :thumbup;
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Chris
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« Reply #180 on: June 24, 2008, 08:33:13 PM »
If we have a better idea of what is planned, I might be able to save some more money. Due to latest medical expenses (medications, trips to doctors in Chicago, and hospital stay), I have totally lost what I have saved. So I need a game plan to at least make it to one meeting. Gonna try to not drive as much, although that's out the door this month, a half a tank that needs to last till payday (ain't gonna happen). Gonna try to budget July, August on the other hand maybe harder with school starting.
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Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
Sluff
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« Reply #181 on: June 25, 2008, 04:27:57 AM »
Quote from: Chris on June 24, 2008, 08:33:13 PM
If we have a better idea of what is planned, I might be able to save some more money. Due to latest medical expenses (medications, trips to doctors in Chicago, and hospital stay), I have totally lost what I have saved. So I need a game plan to at least make it to one meeting. Gonna try to not drive as much, although that's out the door this month, a half a tank that needs to last till payday (ain't gonna happen). Gonna try to budget July, August on the other hand maybe harder with school starting.

Bring family or friends along to help with the gas bill. I don't have any money this year either becuse of other expenses as well but I don't think it will cost much. I may not join in the reindeer games but at least I will be there.
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Chris
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« Reply #182 on: June 25, 2008, 11:52:46 AM »
Just bringing myself, I'm a loaner  :rofl;
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Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
okarol
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Posts: 100933


Photo is Jenna - after Disneyland - 1988

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« Reply #183 on: June 25, 2008, 12:16:16 PM »
There are free events listed here http://www.chicagoparkdistrict.com/index.cfm/fuseaction/events.calendar/month/8/year/2008.cfm
and some summer insights http://www.summerinchicago.com/insiderProfiles/index.html
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
Jess21
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« Reply #184 on: June 25, 2008, 08:41:28 PM »
Well I just got off the phone with the hotel booking a room for me and my mom... my mom decided that we should get a room instead of having to drive back and forth an hour multiple times during the weekend. :)
Now who else is a comin? ;D
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Hospitalized w/ renal failure- Nov. 2007
Diagnosed w/ ESRD w/ unknown cause- Jan 2008
Lower arm AV Fistula created- March 2008
On IL transplant list- Oct. 8th, 2008
On WI transplant list- June 25th, 2009
Pediatric 2 kidney transplant- July 6th, 2009 (3/6 antigen match)
Chris
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« Reply #185 on: June 25, 2008, 08:44:27 PM »
Hopefully gas won't be $5.00 a gallon. :o
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Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
okarol
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Gender: Female
Posts: 100933


Photo is Jenna - after Disneyland - 1988

WWW
« Reply #186 on: June 25, 2008, 08:57:11 PM »
Quote from: Jess21 on June 25, 2008, 08:41:28 PM
Well I just got off the phone with the hotel booking a room for me and my mom... my mom decided that we should get a room instead of having to drive back and forth an hour multiple times during the weekend. :)
Now who else is a comin? ;D

Sluff
Rookiegirl
Paris
Okarol
xtrememoosetrax
Lola
MyssAnne
Boxman
aharris2
Chris
Keefer51
Mysty
Devlinswife
Bette
Flip
thepandaones (maybe)

I think that's everyone so far...
Logged

Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
flip
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« Reply #187 on: June 25, 2008, 09:57:54 PM »
I'll be easy to find. Not too many people in Chicago wearing overalls and a John Deere cap with a polystyrene spit cup.
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That which does not kill me only makes me stronger - Neitzsche
donnia
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me and my donor Joyce
« Reply #188 on: June 26, 2008, 10:11:17 AM »
Sounds like you all are going to have LOTS and LOTS of fun!  Please take pictures for those of us who cannot attend   :'(  Hubby and I would love to be there, but he has exhausted all his vacation time being with me in Lubbock after my transplant.... and I wouldn't be able to attend a big function like this just yet anyways.  I hope that next year we will be able to attend. 

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Born with one kidney 1972
Ureter re-constructured 1975 (reflux had already damaged the kidney)
Diagnosed and treated for high blood pressure 2000
Diagnosed ESRF October 2006
Started dialysis September 2007
Last dialysis June 4, 2008
Transplant from my hero, Joyce, June 5, 2008
kitkatz
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« Reply #189 on: June 26, 2008, 04:44:23 PM »
Thepandaones is my daughter.  Give her hard time for me! She is goofy but great!
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lifenotonthelist.com

Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5

Remember your present situation is not your final destination.

Take it one day, one hour, one minute, one second at a time.

"If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1
xtrememoosetrax
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« Reply #190 on: June 27, 2008, 06:45:10 AM »
I'm afraid I'm going to have to bow out on this one, at least for now, as I am still waiting on a date for (supposedly) impending donation surgery, and with any luck, I'll be recovering at home around August 1st. I must say that I'm kind of tired of having my life on hold, but that's another story, and one that many of you are all too familiar with already. Anyway, now I'm setting my sights on Vegas in October! We'll see.
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Living donor to friend via 3-way paired exchange on July 30, 2008.

www.paireddonation.org
www.caringbridge.org/visit/marthahansen
Sluff
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« Reply #191 on: June 27, 2008, 01:25:12 PM »
I'm disappointed but I sure do understand. Will miss you.  :cuddle;
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flip
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« Reply #192 on: July 01, 2008, 08:02:19 PM »
I haven't seen any posts in a few days. I hope everyone isn't getting cold feet. I wanna see Sluff in a Cubs hat.
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That which does not kill me only makes me stronger - Neitzsche
Sluff
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« Reply #193 on: July 01, 2008, 10:32:16 PM »
No cubs hat for me....Brewers. :)
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paris
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« Reply #194 on: July 02, 2008, 10:53:28 AM »
Now that I am back from visiting AlohaBeth, I can focus on Chicago.  4 weeks!   The restaurant is booked for 30 (their minimum for using the banquet room) -- so now we need numbers. Deposit is paid and they seem very helpful in setting up and planning.      Who wants to do what?  I am kind of like Sluff---sitting and visiting will probably be what I do most.  But, there are lots of options for entertainment  and plenty of time after our dinner to do things. Navy Pier might be the best idea for Saturday night.     It could be helpful to have a list of "real" names, if anyone would like to pm me with there info.  It would also be nice to know approximately when people are arriving.   Anyone have more ideas?   My dining room is starting to look like IHD.com central!  I'm bringing some "things" with me to share!      Let's start generating some excitement!!     :yahoo; :bandance; :clap; :clap; :yahoo;
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It's not what you gather, but what you scatter that tells what kind of life you have lived.
flip
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« Reply #195 on: July 02, 2008, 01:14:09 PM »
I'm actually staying at a nearby motel. Since I'm skipping dialysis on Saturday, I need the sauna and exercise equipment to keep the fluids off. I'll be arriving on Friday.
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That which does not kill me only makes me stronger - Neitzsche
paris
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« Reply #196 on: July 02, 2008, 02:18:10 PM »
Great, flip!  I may be on a park bench, but I will be there!   Are you bringing the moonshine?   :beer1;
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It's not what you gather, but what you scatter that tells what kind of life you have lived.
flip
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« Reply #197 on: July 02, 2008, 02:51:49 PM »
Let me know if you run short of occupants for the block of rooms that are reserved and I will switch. I don't usually gain too much fluid anyway.

Hopefully, it will rain here soon. We've been in the middle of a drought and my cousin doesn't like to fire up his still when the woods are dry.
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That which does not kill me only makes me stronger - Neitzsche
Ohio Buckeye
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« Reply #198 on: July 02, 2008, 03:22:47 PM »
O'Karol, Jess21 is coming so should be added to the list.
See from just a few posts up.
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If I must do this to live, I must strive to live
while I am doing this.
okarol
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Photo is Jenna - after Disneyland - 1988

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« Reply #199 on: July 02, 2008, 06:27:23 PM »

Thanks OB, she asked who else was coming and I gave her the list.

I'll add her tho, thanks for the reminder.

Sluff
Rookiegirl
Paris
Okarol
xtrememoosetrax
Lola
MyssAnne
Boxman
aharris2
Chris
Keefer51
Mysty
Devlinswife
Bette
Flip
thepandaones (maybe)
Jess21
Logged

Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
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