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Author Topic: Hi from oregon  (Read 3785 times)
Fierceheart
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« on: February 24, 2008, 06:13:47 PM »
:bandance;

Hi my name is Tabitha. I am from Oregon, I have been a dialysis patient since July of 2006. I did in center hemo up till November of 2007, I now am a home hemo patient and find its much better.  My kidney failure is from diabetes, runs both sides of the family.
      I have had my share of ups and downs. My biggest struggle is fluid and phrouserous. 

I  co-founded a non-profit organization Salem Dialysis Advocates for patients the first of this year. Were changing the Salem part to Oregon. We are incorporating these programs in, Transportation, Rent/Utilities  Medication, life enrichment, and were starting to look into putting food bank in to the centers.  What were trying to do is help patients with needs as well as being supportive. We want to educate the public and patients to. 
      Were hoping take this state wide and getting the other centers involved. I hope if anyone would like to know more feel free to contact me.


Thank you for taking the time to read this and getting to know me.
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Salem Dialysis Advocate for Patients
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Sluff
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« Reply #1 on: February 24, 2008, 06:34:50 PM »
Hello Fierceheart and welcome to ihatedialysis.com.
This organization you are involved with would be a huge help Nationwide. Is there a website to your organization? I hope we become a source of information to you. Hope to see you in the forums.

Sluff/ Admin
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kellyt
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« Reply #2 on: February 24, 2008, 07:01:54 PM »
 :waving;
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1993 diagnosed with glomerulonephritis.
Oct 41, 2007 - Got fistula placed.
Feb 13, 2008 - Activated on "the list".
Nov 5, 2008 - Received living donor transplant from my sister-in-law, Etta.
Nov 5, 2011 - THREE YEARS POST TRANSPLANT!  :D
CW
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Yeah .............That's me!
« Reply #3 on: February 24, 2008, 07:39:40 PM »
Hello and  :welcomesign;

IHD is a fantastic place to be and a great place to network with other patients, caregivers, family members and people in the industry. I have been interested in getting involved in patient advocacy and helping patients with everday issues. I never figured out a way to make it happen; but it seems you are doing something similar! Good luck with your venture and I hope to hear more about what you are doing through your posts.

Read, post and be merry

CW
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*Common Sense is an uncommon thing


20 years navigating ESRD
Had a transplant but it rejected

To all of my kidney brothers and sisters who have left too soon -
Where you used to be, there is a hole in the world, which I find myself constantly walking around in the daytime, and falling in at night.  I miss you like hell.  ~Edna St Vincent Millay
Joe Paul
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« Reply #4 on: February 25, 2008, 10:02:02 AM »
Welcome Fierceheart, good to have you aboard.
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"The history of discovery is completed by those who don't follow rules"
Angels are with us, but don't take GOD for granted
Transplant Jan. 8, 2010
willieandwinnie
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« Reply #5 on: February 25, 2008, 10:07:33 AM »
 :welcomesign;  Fierceheart  To IHD. We are a great group of people. Look forward to hearing more from you.
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Katonsdad
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« Reply #6 on: February 25, 2008, 10:07:57 AM »
Welcome

I once Diaylized in Salem as my brother lives in Keizer . Was a very nice center.


Katonsdad
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Diabetes 1976
Eye issues 1987
Kidney Failure 1997
CAPD 1997 , Stopped 1997 due to infections evey 28 days
Started In Center Hemo 1997
Received Kidney/Pancreas transplant 1999 at UCLA
Wife and I had son in 2001 , by donor for my part (Stopping the illness train)
Kidney failed 2011 , Back on Hemo . Looking to retransplant as the Kidney is still working



Soft kitty, warm kitty,
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World's Best Beach..Lanikai..Oahu, Hawaii
« Reply #7 on: February 25, 2008, 10:12:54 AM »
Hi Tabitha and welcome.   Is your mom's name Samantha by any chance?  Just kidding.  Your organization offers some really common sense and necessary assistance.  Tell us a little more about it.  How do you fund it?  How do you determine need?  Transportation for those unable to get to treatment is one of my pet peeves.  How would that be provided?  I look forward to hearing more about your organization.
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bolta72
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« Reply #8 on: February 25, 2008, 12:38:50 PM »
 :welcomesign;
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gotta do what I gotta do.. 2 yrs in ctr hemo
st789
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« Reply #9 on: February 25, 2008, 12:47:48 PM »
 :welcomesign;

 :2thumbsup; Good cause

Love to hear more about your organiztion structure in the future.
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MyssAnne
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« Reply #10 on: February 25, 2008, 12:49:44 PM »
Welcome, Fierceheart!!! your organization sounds just like something a lot of people need!! How do they use it? Do you have a website?

By the way, welcome, for yourself!!! :welcomesign; :welcomesign;
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rose1999
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« Reply #11 on: February 25, 2008, 01:02:24 PM »
Hi and  :welcomesign; from the  :ukflag;.  I have a cousin living in Salem, she works part time for a homeless project, can't remember the name but I'll let you know when I DO remember!  Please let us know more about your project.
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Deanne
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« Reply #12 on: February 25, 2008, 02:03:27 PM »
Hi and welcome from another Oregonian.
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Deanne

1972: Diagnosed with "chronic kidney disease" (no specific diagnosis)
1994: Diagnosed with FSGS
September 2011: On transplant list with 15 - 20% function
September 2013: ~7% function. Started PD dialysis
February 11, 2014: Transplant from deceased donor. Creatinine 0.57 on 2/13/2014
Romona
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« Reply #13 on: February 25, 2008, 04:30:13 PM »
Hi Tabitha! I admire what you are doing.  :welcomesign;
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ODAT
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« Reply #14 on: February 25, 2008, 05:37:21 PM »
 :welcomesign;

Hi Fierceheart - love the name. There is a wealth of information here that is very helpful and insightful. post often!
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As is your sort of mind, so is your sort of search: you will find what you desire.
rookiegirl
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« Reply #15 on: February 25, 2008, 08:01:37 PM »
 :welcomesign; to IHD.
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2000-Diagnosed IGA Nephropathy
2002-1st biopsy (complications)
2004-2nd biopsy
10/03/07-Tenckhoff Catheter Placement
10/22/07-Started Peritoneal Dialysis
03/2008-Transplant team meeting
04/2008-Transplant workup
05/2008-Active Transplant list
3/20/09-Cadaver Kidney Transplant
4/07/09-Tenckhoff Catheter removed
4/20/09-New kidney biopsy
Bajanne
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« Reply #16 on: February 26, 2008, 11:54:06 AM »
Quote from: ODAT on February 25, 2008, 05:37:21 PM
:welcomesign;

Hi Fierceheart - love the name.
I wanted to say that first!!!! :(
Anyway, welcome to our community!  I can see that Fierceheart is not only your name, it is the way you live.  wonderful the efforts you are making to make life more livable for others.  We are so glad to have you here, and we look forward to hearing much more from you, and about your advocacy. :grouphug;


Bajanne, Moderator
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I LOVE  my IHD family! :grouphug;
Ang
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« Reply #17 on: February 26, 2008, 03:09:50 PM »
 welcome aboard
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live  life  to  the  full  and you won't  die  wondering
angellady07
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« Reply #18 on: February 26, 2008, 04:43:41 PM »
Welcome Tabitha.  :waving;
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paris
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« Reply #19 on: February 26, 2008, 06:00:05 PM »
 :welcomesign;  Your project sounds great. I want to hear more about all that you are doing.  I'm so glad you found us. This is a wonderful source of information and support.
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It's not what you gather, but what you scatter that tells what kind of life you have lived.
kidney4traci
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« Reply #20 on: February 26, 2008, 06:40:38 PM »
Welcoem to IHD! Look forward to hearing more from you.  :welcomesign;
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Married - three children.
Alports female, diagnosed ESRD 10/04
11/04  Hemo in clinic
6/07 hemo at HOME! 
2/3/09 - Transplant from an angel of a friend!!!
kelliOR
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« Reply #21 on: February 26, 2008, 09:03:57 PM »
 :welcomesign; 

Hi from another Oregonian !

kelli, from Bend
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Shoot for the Moon.....Even if you miss, you'll end up among the Stars ........


Denied PKD for years (Boy, was I good at it!)
Dragged kicking and screaming to dialysis (in center hemo)
Transplant from a friend March 24, 2006 at OHSU
kitkatz
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« Reply #22 on: February 28, 2008, 08:05:39 PM »
It sounds like you have taken the ball and began to run with it with your organization. Many dialysis patients I have talked to need a little extra support in areas that Medicare does not cover. Sometimes transportation becomes a worry because due to little errors it gets cancelled or taken away or never was available.  I wish you lots of luck with it. Welcome to the boards!


kitkatz,moderator
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lifenotonthelist.com

Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5

Remember your present situation is not your final destination.

Take it one day, one hour, one minute, one second at a time.

"If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1
Fierceheart
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« Reply #23 on: February 28, 2008, 10:26:42 PM »
 :2thumbsup;



I have had so many responses and thrilled that people want to hear more about my newly founded organization, Salem Dialysis Advocates for Patients and I will post more about here by this weekend.

Makes me eel good to know so many are encouraging Thank you. I really want to spread the word about this organization.
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Salem Dialysis Advocate for Patients
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keefer51
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« Reply #24 on: February 29, 2008, 01:30:42 AM »
 :welcomesign;
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i am a 51 year old male on dialysis for 3 years now. This is my second time. My brother donated a kidney to me about 13 years ago. I found this site on another site. I had to laugh when i saw what it was called. I hope to meet people from all over to talk about dialysis.
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