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Author Topic: Members locations  (Read 50730 times)
paris
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« Reply #150 on: August 07, 2008, 07:22:27 AM »

Flip, that would be a great idea!
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It's not what you gather, but what you scatter that tells what kind of life you have lived.
devon
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« Reply #151 on: August 07, 2008, 12:24:24 PM »

flip!

Excellent idea!  Go for it!

-Devon
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Chris
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WWW
« Reply #152 on: August 07, 2008, 06:40:05 PM »

The software/website is called BuddyMapping. You just don't want to add your full name address for security purposes. Anyone can look at it who comes to this site. Right now the sight is down.
www.buddymapping.com
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Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
kellyt
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« Reply #153 on: August 07, 2008, 07:00:44 PM »

www.buddymapping.com wouldn't open for me.  Is it my computer?
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1993 diagnosed with glomerulonephritis.
Oct 41, 2007 - Got fistula placed.
Feb 13, 2008 - Activated on "the list".
Nov 5, 2008 - Received living donor transplant from my sister-in-law, Etta.
Nov 5, 2011 - THREE YEARS POST TRANSPLANT!  :D
Chris
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« Reply #154 on: August 07, 2008, 07:02:30 PM »

Nope, think the site is down. Not sure why, didn't check in MySpace yet either
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Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
sickofbeingsick
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« Reply #155 on: August 08, 2008, 07:13:32 AM »

Originally from New Orleans, Louisiana--home of the Saints, Jazz Fest, Mardi Gras, and the best damn food ON THE PLANET...Our seasons are Almost Summer, Summer, Still Summer and Christmas.  :rofl; Am currently residing in Albuquerque, New Mexico thanx to Hurricane Katrina (that bitch).
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Lucinda
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Life is great!

« Reply #156 on: August 08, 2008, 07:28:38 PM »

Sydney, Australia but thinking of a move to Yorky's Knob near the Great Barrier Reef in Far-North Queensland.
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Bajanne
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Goofynina and Epoman - Gone But Not Forgotten

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« Reply #157 on: August 08, 2008, 08:38:07 PM »

Sydney, Australia but thinking of a move to Yorky's Knob near the Great Barrier Reef in Far-North Queensland.
Why does my mind immediately run to 'Finding Nemo' when I hear the words "Sydney", "Great Barrier Reef"?
it was a great movie!
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"To be found in Him, not having a righteousness of my own ...but that which is based on faith"



I LOVE  my IHD family! :grouphug;
frankenarm
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« Reply #158 on: August 08, 2008, 09:00:59 PM »

Des Moines, Washington (state)... yes.. in washington, not iowa. Its about 20 mins south of Seattle and 20 mins north of Tacoma... also known to some as midway, or the most congested part of I-5 at 5:30 in the evening or 8 in the morning. lol.
I love it here, the "city" is right on the water, and even though its mostly retirement communities its still beautiful and close to so much!
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"Laughter is higher than all pain..."

Chronic renal failure since birth (1986)
Grade 5 reflux for 17 years
Hemodialysis for 9 months in 2001-2002
Living-related kidney transplant 2002
Rejection of said transplant Sept. 2007
Restart Hemodialysis Feb. 2008
Current: In-Center Hemodialysis with upper left arm fistula, on some crappy machine that alarms to loud.
CW
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Yeah .............That's me!

« Reply #159 on: August 10, 2008, 11:44:24 PM »

Map Yourself !
http://www.frappr.com/ihd
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*Common Sense is an uncommon thing


20 years navigating ESRD
Had a transplant but it rejected

To all of my kidney brothers and sisters who have left too soon -
Where you used to be, there is a hole in the world, which I find myself constantly walking around in the daytime, and falling in at night.  I miss you like hell.  ~Edna St Vincent Millay
Joe Paul
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« Reply #160 on: August 11, 2008, 12:04:44 AM »

Thats cool CW, I added myself.
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"The history of discovery is completed by those who don't follow rules"
Angels are with us, but don't take GOD for granted
Transplant Jan. 8, 2010
Chris
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« Reply #161 on: August 11, 2008, 01:09:16 AM »

Map Yourself !
http://www.frappr.com/ihd

This exactly looks like BuddyMapping which still can not be brought up. We need to have the map show up here on one of the pages.
« Last Edit: August 13, 2008, 09:28:57 PM by Chris » Logged

Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
breezysummerday
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« Reply #162 on: August 11, 2008, 08:52:32 AM »

:snowman;   <----I can make those approximately 5 months out of the year
(added my location)
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caregiver to Ray
renal failure 6/08
listed 7/09
~thank you epoman~
CW
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Yeah .............That's me!

« Reply #163 on: August 13, 2008, 08:25:48 PM »

Map Yourself !
http://www.frappr.com/ihd

:bump;

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*Common Sense is an uncommon thing


20 years navigating ESRD
Had a transplant but it rejected

To all of my kidney brothers and sisters who have left too soon -
Where you used to be, there is a hole in the world, which I find myself constantly walking around in the daytime, and falling in at night.  I miss you like hell.  ~Edna St Vincent Millay
flip
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« Reply #164 on: August 13, 2008, 08:48:14 PM »

Thanks, CW....now we have a map
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That which does not kill me only makes me stronger - Neitzsche
Ang
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« Reply #165 on: August 14, 2008, 12:47:01 AM »

mines addaed  2 i  think
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live  life  to  the  full  and you won't  die  wondering
Chris
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« Reply #166 on: August 14, 2008, 11:54:24 AM »

mines addaed  2 i  think
To make sure, just go back to the site and hover your mouse pointer over the area your located. There will be a bold red dot for each location of a member.
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Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
funnygarcia
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« Reply #167 on: August 15, 2008, 08:42:02 PM »

Done!
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okarol
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Photo is Jenna - after Disneyland - 1988

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« Reply #168 on: August 16, 2008, 12:43:39 AM »

Map Yourself !
http://www.frappr.com/ihd

:bump;



Thanks CW - I added myself too  :flower;
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
Wallyz
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« Reply #169 on: August 18, 2008, 08:34:05 PM »

Marysville Washington, 30 miles north of Seattle........

Lake Stevens, WA.  You still around?
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Jay72
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« Reply #170 on: August 18, 2008, 09:47:57 PM »

Thanks for showing me this map thingy,, pretty neat!!!  I am on there now too.
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Wayne
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Martin (the snorer) & Mack (cat w/renal failure)

« Reply #171 on: August 20, 2008, 04:22:41 PM »

Another one representing Texas....I live in Waxahachie.  I know there are a few of few who know where that is, but for those who don't, it is about 30 miles south of downtown Dallas.
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Happily Married for 11 Wonderful Years!!! :-)
3/01 diagnosed with fsgs
7/07 listed
4/08 fistula surgery
10/08 pd catheter placed
12/08 started pd
2/09 started hemo
flip
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« Reply #172 on: August 20, 2008, 04:30:59 PM »

Can we put a link to the map on the web page?
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That which does not kill me only makes me stronger - Neitzsche
xtrememoosetrax
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« Reply #173 on: August 22, 2008, 04:48:13 PM »

Tried to add myself, but can't seem to do it.  ???
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Living donor to friend via 3-way paired exchange on July 30, 2008.

www.paireddonation.org
www.caringbridge.org/visit/marthahansen
mikey07840
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Her royal highness Queen Ruth on her throne, RIP

« Reply #174 on: August 29, 2008, 05:37:56 PM »

I'm added too
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06/85 Diagnosed with type 1 Diabetes
10/04 Radical Nephrectomy (Kidney Cancer or renal cell carcinoma)
02/08 Started Hemodialysis
04/08 Started Peritoneal Dialysis (CAPD)
05/08 Started CCPD (my cycler: The little box of alarms)
07/09 AV Fistula and Permacath added, PD catheter removed. PD discontinued and Hemodialysis resumed
08/09 AV Fistula redone higher up on arm, first one did not work
07/11 Mass found on remaining kidney
08/11 Radical Nephrectomy, confirmed that mass was renal cell carcinoma
12/12 Whipple, mass on pancreas confirmed as renal cell carcinoma

• Don't Knock on Death's door; Ring the bell and run away. Death hates that.

• I'm not a complete Idiot -- some parts are missing.
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