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Author Topic: I decided to have a Surgeon look at me  (Read 25450 times)
KT0930
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« Reply #25 on: February 22, 2008, 09:09:52 AM »
Quote from: Joe Paul on February 20, 2008, 05:57:36 PM
Quote from: KT0930 on February 20, 2008, 05:42:39 PM
JP, that's awesome!!! And March 5th is my birthday...hopefully you'll get the gift, though! Can't wait to hear the good news!  :clap;
KT, you know you are the one who got me thinking (previous rant). Thankyou, and hopefully I will be able to do this. The PD nurse said to me, "you will probably go through this and get all set up, then be called for a transplant". Oh, that would be a gift, but , I would just like to be able to be in control of my own dialysis until the transplant happens.

So glad I could help, JP! Wouldn't it be wonderful if you got the call for the transplant as soon as you got trained? Anyway, anytime you have questions, you know where to come. Once you get trained on manuals, definately ask about the cycler (if they don't offer it) then you do most of it at night, and have your days completely free.
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"Dialysis ain't for sissies" ~My wonderful husband
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I received a 6 out of 6 antigen match transplant on January 9, 2008. Third transplant, first time on The List.
Slywalker
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« Reply #26 on: February 23, 2008, 08:43:04 AM »
Good Luck Joe Paul.  I felt way way better after being able to do PD.  And, I was lucky enough to be able to get the cycler so only the evenings and nights were taken up.  Gave back a little of my life. 

Keeping all fingers and toes crossed for you.

Sandyb
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kidney4traci
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« Reply #27 on: February 23, 2008, 12:58:43 PM »
Praying for ya
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Married - three children.
Alports female, diagnosed ESRD 10/04
11/04  Hemo in clinic
6/07 hemo at HOME! 
2/3/09 - Transplant from an angel of a friend!!!
Red from Canada
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« Reply #28 on: February 24, 2008, 07:39:22 AM »
Good Luck, Joe Paul.  PD and the cycler will give you much more freedom and it is so much better than being tied to a center.  Fingers crossed for you.
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Joe Paul
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« Reply #29 on: February 24, 2008, 03:28:48 PM »
Thanks again for all the replies. The way I understood the PD nurse, I would do 1 month of the manual exchanges, then after that, start on the cycler. Thats looking way ahead, still have to see what the surgeon has to say but I am hopeful it'll be OK, not long now only 10 days away  :thumbup;
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"The history of discovery is completed by those who don't follow rules"
Angels are with us, but don't take GOD for granted
Transplant Jan. 8, 2010
Joanniebop
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« Reply #30 on: February 25, 2008, 08:22:15 PM »
Thoughts and prayers for your consult with the surgeon, and hope that it goes your way.

Best of Luck!

Joannie
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big-h3838
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« Reply #31 on: February 29, 2008, 01:47:14 AM »
 "WISHING YOU THE VERY BEST"  J.P. "GOOD LUCK !!!! "

    big-h
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MyssAnne
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« Reply #32 on: February 29, 2008, 05:40:11 AM »
JP. It's now FIVE days!!!!!!   :2thumbsup; :2thumbsup; :2thumbsup;
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KT0930
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« Reply #33 on: February 29, 2008, 07:14:50 AM »
I really need to stop looking at this thread...people are counting down to my birthday. Ack!!!

Anyway, best of luck to you, JP. Let us know what the surgeon says. Though it's my understanding that it's the neph who decides whether you're a good candidate or not for PD...that may not be able to be determined in your case until you start doing it and see how your numbers are the first month. Hope it's all good news for you!  :2thumbsup;
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"Dialysis ain't for sissies" ~My wonderful husband
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I received a 6 out of 6 antigen match transplant on January 9, 2008. Third transplant, first time on The List.
Sluff
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« Reply #34 on: February 29, 2008, 09:23:42 AM »
March 5th hopefully some good news.  :grouphug;
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KT0930
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« Reply #35 on: March 04, 2008, 10:35:37 AM »
I know it's not until tomorrow, but I've been thinking about this a lot this morning, JP. Lots of good thoughts going your way!
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"Dialysis ain't for sissies" ~My wonderful husband
~~~~~~~
I received a 6 out of 6 antigen match transplant on January 9, 2008. Third transplant, first time on The List.
rose1999
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« Reply #36 on: March 04, 2008, 10:57:09 AM »
I'm never sure of the time difference (are you ahead of or behind us? ???) so just to say GOOD LUCK Joe Paul, hope all goes well tomorrow (or today depending on that damn time difference). :thumbup;
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okarol
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« Reply #37 on: March 04, 2008, 11:58:19 AM »
Quote from: rose1999 on March 04, 2008, 10:57:09 AM
I'm never sure of the time difference (are you ahead of or behind us? ???) so just to say GOOD LUCK Joe Paul, hope all goes well tomorrow (or today depending on that damn time difference). :thumbup;

You are about 6 hours ahead of JP (I think.)
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
Sluff
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« Reply #38 on: March 04, 2008, 12:04:24 PM »
Quote from: okarol on March 04, 2008, 11:58:19 AM
Quote from: rose1999 on March 04, 2008, 10:57:09 AM
I'm never sure of the time difference (are you ahead of or behind us? ???) so just to say GOOD LUCK Joe Paul, hope all goes well tomorrow (or today depending on that damn time difference). :thumbup;

You are about 6 hours ahead of JP (I think.)

Then Rose should know the results 6 hrs before JP does on the 5th.
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rose1999
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« Reply #39 on: March 04, 2008, 12:14:42 PM »
Quote from: Sluff on March 04, 2008, 12:04:24 PM
Quote from: okarol on March 04, 2008, 11:58:19 AM
Quote from: rose1999 on March 04, 2008, 10:57:09 AM
I'm never sure of the time difference (are you ahead of or behind us? ???) so just to say GOOD LUCK Joe Paul, hope all goes well tomorrow (or today depending on that damn time difference). :thumbup;

You are about 6 hours ahead of JP (I think.)

Then Rose should know the results 6 hrs before JP does on the 5th.

Thanks Karol.  I can always rely on Sluff to make me smile  :2thumbsup;
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Joe Paul
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« Reply #40 on: March 04, 2008, 02:17:54 PM »
Thanks everyone  :thumbup;
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"The history of discovery is completed by those who don't follow rules"
Angels are with us, but don't take GOD for granted
Transplant Jan. 8, 2010
KT0930
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« Reply #41 on: March 04, 2008, 05:06:02 PM »
Quote from: rose1999 on March 04, 2008, 12:14:42 PM
Quote from: Sluff on March 04, 2008, 12:04:24 PM
Quote from: okarol on March 04, 2008, 11:58:19 AM
Quote from: rose1999 on March 04, 2008, 10:57:09 AM
I'm never sure of the time difference (are you ahead of or behind us? ???) so just to say GOOD LUCK Joe Paul, hope all goes well tomorrow (or today depending on that damn time difference). :thumbup;

You are about 6 hours ahead of JP (I think.)

Then Rose should know the results 6 hrs before JP does on the 5th.

Thanks Karol.  I can always rely on Sluff to make me smile  :2thumbsup;

So Rose, I expect to know the answer when I log in first thing tomorrow morning!
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"Dialysis ain't for sissies" ~My wonderful husband
~~~~~~~
I received a 6 out of 6 antigen match transplant on January 9, 2008. Third transplant, first time on The List.
Joe Paul
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« Reply #42 on: March 05, 2008, 01:42:25 PM »
Well its a go, I will have the Cath. put in on the 27th of this month - then 2 weeks after that the surgeon said I will see him again to have the stitches removed. A week after that, he said, a nurse will come by my house to do a fill and drain, and if its all good I will be starting training. KT, I know its a ways off yet, but I too hope the numbers are good enough, I really need a break from in center Hemo. Thanks again for all the well wishes  :thumbup;
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"The history of discovery is completed by those who don't follow rules"
Angels are with us, but don't take GOD for granted
Transplant Jan. 8, 2010
KT0930
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« Reply #43 on: March 05, 2008, 01:46:53 PM »
 :yahoo; Joe Paul, I'm so happy to hear this! I've been thinking about you all day.  :yahoo;

As for the surgery, they use gas to inflate your belly so they can see, and the worst pain I had afterward was when that gas rose into my shoulder. It took about ten days for me to be able move comfotably, and probably close to a month to be able to wear jeans, but all that is SO worth it!
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"Dialysis ain't for sissies" ~My wonderful husband
~~~~~~~
I received a 6 out of 6 antigen match transplant on January 9, 2008. Third transplant, first time on The List.
Wattle
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« Reply #44 on: March 05, 2008, 02:28:40 PM »

 :2thumbsup;  Great news JP. I am sure you will do well on PD. Having a tube hanging out of your body does take a little while to get use to  ::)
But you will have more control over your treatment, and less diet restrictions!! woohoo   :bandance;
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PKD
June 2005 Commenced PD Dialysis
July 13th 2009 Cadaveric 5/6 Antigen Match Transplant from my Special Angel
okarol
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« Reply #45 on: March 05, 2008, 03:30:40 PM »
 :2thumbsup; That's great JP - I hope it all goes well!
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
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« Reply #46 on: March 05, 2008, 05:39:15 PM »
That is outstanding news JP!  :bandance;
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Romona
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« Reply #47 on: March 05, 2008, 05:54:53 PM »
 :yahoo;
Good for you!!!
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rose1999
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« Reply #48 on: March 05, 2008, 10:32:50 PM »
Great news, hope all goes well  :2thumbsup;
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MyssAnne
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« Reply #49 on: March 06, 2008, 08:50:31 AM »
Oh YAY!!!!!!!! :yahoo; :yahoo;

JP that is WONDERFUL!!!!!! You're gonna love love love it!!!!!!

As everyone has warned, the healing process IS painful, but it is worth it!!!!!!!
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