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Author Topic: hi from tx  (Read 4713 times)
staceyand joe92
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« on: February 20, 2008, 07:24:20 AM »
Hello. I was diagnosed with PKD at 17. I am now 39 with GFR 14.  My doctor assures me it is too early to be having symptoms or to begin treatment.
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PKD
in center dialysis 3/week 3 hours for 16 months
11/2008 transplant list (active)
6 living donors denied
12/2009 Kidney Transplant
MyssAnne
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« Reply #1 on: February 20, 2008, 07:31:20 AM »
Hi!

Welcome aboard, it's never too early to learn about dialysis, or transplantation for that matter!! 

Hopefully we can help you make the right decisions for YOU.

 :waving; :waving; :welcomesign;
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Sluff
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« Reply #2 on: February 20, 2008, 07:58:34 AM »
Nice picture there Stacyand Joe,

Welcome to ihatedialysis.com, GFR 14 could hang on awhile or could be overnight, you just never know. I hope you hang there for a long time.

Hope you enjoy IHD and I hope it will be a resource of knowledge for you.

Sluff/ Admin
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Joe Paul
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« Reply #3 on: February 20, 2008, 08:09:19 AM »
Welcome Stacyand Joe, good to have you aboard.
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"The history of discovery is completed by those who don't follow rules"
Angels are with us, but don't take GOD for granted
Transplant Jan. 8, 2010
Laurie
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May 13, 2008
« Reply #4 on: February 20, 2008, 08:39:04 AM »
 :welcomesign; from one Texan to another. Glad you found this site.
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March 7, 2001 - Complications after C-section caused kidney failure
March 2001 - December 2001 - Hemo Dialysis
December 2001 - Kidney function improved dialysis no longer necessary
October 2006 - Kidney function started to decline
May 9, 2007 - Listed at Baylor Dallas and Fort Worth
October 12, 2007 - Started PD
May 13, 2008 - Kidney Transplant from a deceased donor
Psim
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« Reply #5 on: February 20, 2008, 08:41:57 AM »
Hi StacyandJoe, welcome to IHD!
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Romona
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« Reply #6 on: February 20, 2008, 09:32:38 AM »
 :welcomesign;
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petey
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« Reply #7 on: February 20, 2008, 09:53:42 AM »
 :welcomesign; to IHD -- this is the GREATEST place in the world for kidney disease folks.  Glad you joined our family.
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KR Cincy
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Home hemodialysis since May 07
« Reply #8 on: February 20, 2008, 10:23:55 AM »
Welcome to IHD! I wish I would have found this place BEFORE starting dialysis so learn all you can...knowledge truly is power in this case!
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Not giving up...thanks to Susan.
rookiegirl
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« Reply #9 on: February 20, 2008, 05:04:17 PM »
 :welcomesign; to the family.
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2000-Diagnosed IGA Nephropathy
2002-1st biopsy (complications)
2004-2nd biopsy
10/03/07-Tenckhoff Catheter Placement
10/22/07-Started Peritoneal Dialysis
03/2008-Transplant team meeting
04/2008-Transplant workup
05/2008-Active Transplant list
3/20/09-Cadaver Kidney Transplant
4/07/09-Tenckhoff Catheter removed
4/20/09-New kidney biopsy
Ang
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« Reply #10 on: February 20, 2008, 08:19:58 PM »
 :welcomesign; aboard :thumbup;






EDITED: Fixed welcome icon error - Sluff/ Admin
« Last Edit: February 21, 2008, 05:57:50 AM by Sluff » Logged
live  life  to  the  full  and you won't  die  wondering
kellyt
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« Reply #11 on: February 21, 2008, 02:21:07 AM »
 :waving;    My nephrologist sent me for my fistula when my GFR hit 18.  Good thing, too.  By my next follow-up 3 months later I had dropped to 10.5.  I hope you hang-on to 14 as long as you can.  You'll learn A LOT here.  Check-in often!   ;D


Oh...and I'm in Texas, too - San Antonio.  Where are you?
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1993 diagnosed with glomerulonephritis.
Oct 41, 2007 - Got fistula placed.
Feb 13, 2008 - Activated on "the list".
Nov 5, 2008 - Received living donor transplant from my sister-in-law, Etta.
Nov 5, 2011 - THREE YEARS POST TRANSPLANT!  :D
bolta72
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my best friend
« Reply #12 on: February 21, 2008, 05:03:26 AM »
 :welcomesign;
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gotta do what I gotta do.. 2 yrs in ctr hemo
staceyand joe92
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« Reply #13 on: February 21, 2008, 05:51:26 AM »
I am currently living at Fort Hood, TX. My husband is in the Army and just returned from Iraq! We will be relocating to AZ next month. It's nice to know that where ever the Army send us I have access to great info on this site.
Thank you for the warm welcome.
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PKD
in center dialysis 3/week 3 hours for 16 months
11/2008 transplant list (active)
6 living donors denied
12/2009 Kidney Transplant
kellyt
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« Reply #14 on: February 21, 2008, 11:29:26 AM »
You sure do, Stacey!  Give your husband a big hug and kiss and tell him "Thank You" for all he does, from me!

Talk to you soon.
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1993 diagnosed with glomerulonephritis.
Oct 41, 2007 - Got fistula placed.
Feb 13, 2008 - Activated on "the list".
Nov 5, 2008 - Received living donor transplant from my sister-in-law, Etta.
Nov 5, 2011 - THREE YEARS POST TRANSPLANT!  :D
Ohio Buckeye
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« Reply #15 on: February 21, 2008, 11:32:42 AM »
Welcome to the IHD Family.
You will find lots of hellpful info here and support.
I love the picture of the dog.  Looks like he is smiling for the camera.
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If I must do this to live, I must strive to live
while I am doing this.
Sunny
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Sunny
« Reply #16 on: February 21, 2008, 11:45:11 AM »
As a military wife it will be nice for you to have this site since it can follow you everywhere. Welcome.
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Sunny, 49 year old female
 pre-dialysis with GoodPastures
paris
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« Reply #17 on: February 21, 2008, 08:28:06 PM »
 :welcomesign;  Glad you found us.  And tell your husband "Thank You!" :usaflag; :usaflag;
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It's not what you gather, but what you scatter that tells what kind of life you have lived.
donnia
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me and my donor Joyce
« Reply #18 on: February 23, 2008, 06:44:13 PM »
Hi back from San Angelo, Texas.  Welcome to the club.  Tell your husband Thank you for protecting our freedom  :cuddle;
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Born with one kidney 1972
Ureter re-constructured 1975 (reflux had already damaged the kidney)
Diagnosed and treated for high blood pressure 2000
Diagnosed ESRF October 2006
Started dialysis September 2007
Last dialysis June 4, 2008
Transplant from my hero, Joyce, June 5, 2008
CW
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Yeah .............That's me!
« Reply #19 on: February 24, 2008, 01:58:21 AM »
 :welcomesign;

Cute Dog!!
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*Common Sense is an uncommon thing


20 years navigating ESRD
Had a transplant but it rejected

To all of my kidney brothers and sisters who have left too soon -
Where you used to be, there is a hole in the world, which I find myself constantly walking around in the daytime, and falling in at night.  I miss you like hell.  ~Edna St Vincent Millay
willieandwinnie
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« Reply #20 on: February 24, 2008, 04:17:04 AM »
 :welcomesign; StacyandJoe.
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"I know there's nothing to it, but I want to know what it is there's nothing to"
Katonsdad
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« Reply #21 on: February 25, 2008, 10:16:38 AM »
 :bandance;   Hope you find everything you need to know here.
I sure am

Katonsdad
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Diabetes 1976
Eye issues 1987
Kidney Failure 1997
CAPD 1997 , Stopped 1997 due to infections evey 28 days
Started In Center Hemo 1997
Received Kidney/Pancreas transplant 1999 at UCLA
Wife and I had son in 2001 , by donor for my part (Stopping the illness train)
Kidney failed 2011 , Back on Hemo . Looking to retransplant as the Kidney is still working



Soft kitty, warm kitty,
 little ball of fur,
happy kitty,sleepy kitty,
 purr purr purr ::
Sheldon and Penny on The Big Bng Theory
Bajanne
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Goofynina and Epoman - Gone But Not Forgotten

WWW
« Reply #22 on: February 26, 2008, 11:49:55 AM »
Welcome to our community!  This is just the place for you to be as you prepare yourself for the eventualities.  I was thrilled when I cam upon this website just before i went on dialysis.  it really calmed some of my fears and prepared me and made me what my vascular surgeon recently called 'an informed patient'.  So take advantage of all this site has to offer.  Read, read, read, and post, post, post.  We have become a family here so we need to know what is going on with you.  Not nosy, just family.  :grouphug;


Bajanne, Moderator
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"To be found in Him, not having a righteousness of my own ...but that which is based on faith"



I LOVE  my IHD family! :grouphug;
angellady07
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« Reply #23 on: February 26, 2008, 04:45:34 PM »
Hello and  :welcomesign;.
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kitkatz
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« Reply #24 on: February 28, 2008, 08:02:20 PM »
Welcome to the boards.  If you take care of yourself and follow doctors orders and do what you need to do, you can be well for a while yet.  I hope you do it.


kitkatz,moderator
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lifenotonthelist.com

Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5

Remember your present situation is not your final destination.

Take it one day, one hour, one minute, one second at a time.

"If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1
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