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Author Topic: YES!!! MARCH 27th transplant! CANCELLED!  (Read 11078 times)
willieandwinnie
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« Reply #50 on: February 25, 2008, 12:11:56 PM »
>:( donnia, Who paid for all the testing that has been done so far?  Don't insurance companies frost your butt.  :banghead; How could they let you get so far into testing and give you a date and then back out. I would be lived :boxing;. I'm so sorry and I hope things get back on track fast. Keep us posted.  :cuddle;
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"I know there's nothing to it, but I want to know what it is there's nothing to"
donnia
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me and my donor Joyce
« Reply #51 on: February 25, 2008, 03:20:23 PM »
Thanks everyone.  All the testing was covered by grants.  I don't know why they didn't figure out the insurance business out sooner.  I knew my insurance didn't cover it, but the lady at Covenant told me that Medicare would cover it (I'm new to all this Medicare stuff, it just started on December 1st).  So.... I thought Medicare would cover what my insurance wouldn't.  What a great surprise.  Oh well... I am going to just assume it is for the best.  My 2 best friends live in the Dallas/Ft. Worth area and they will be helping me out.  It is also closer for my donor. (3 hour drive -vs- 7 hour drive).  I have had surgery at Baylor, and I was very impressed with them.  I will keep yall updated. :grouphug;
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Born with one kidney 1972
Ureter re-constructured 1975 (reflux had already damaged the kidney)
Diagnosed and treated for high blood pressure 2000
Diagnosed ESRF October 2006
Started dialysis September 2007
Last dialysis June 4, 2008
Transplant from my hero, Joyce, June 5, 2008
Sluff
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« Reply #52 on: February 25, 2008, 03:28:05 PM »
I'm sorry to here about the cancellation. I sure hope this is only a temporary set back.  :grouphug;
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kidney4traci
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« Reply #53 on: February 25, 2008, 03:50:55 PM »
Sorry about your cancellation, hope it gets back on the schedule soon! 
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Married - three children.
Alports female, diagnosed ESRD 10/04
11/04  Hemo in clinic
6/07 hemo at HOME! 
2/3/09 - Transplant from an angel of a friend!!!
lola
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I can fly!!!
« Reply #54 on: February 25, 2008, 03:54:08 PM »
This Sucks. I hope they get it all sorted out or else :boxing;
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kellyt
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« Reply #55 on: February 25, 2008, 05:01:34 PM »
So now you just have to light a fire under Baylor's butt!  Just think, this will happen this year!  You will get your kidney and be done with dialysis hopefully for a long, long, long, long, long time.  I'm praying for you and your donor.

Check with the San Antonio hospitals.  You never know!!!!  I'll come visit you!!!!!!!!

 :cuddle;
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1993 diagnosed with glomerulonephritis.
Oct 41, 2007 - Got fistula placed.
Feb 13, 2008 - Activated on "the list".
Nov 5, 2008 - Received living donor transplant from my sister-in-law, Etta.
Nov 5, 2011 - THREE YEARS POST TRANSPLANT!  :D
okarol
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« Reply #56 on: February 25, 2008, 05:28:09 PM »
I am so sorry donnia - hopefully this is a minor set back and things will get rescheduled soon.
The whole insurance thing is confusing. Each hospital told us different things and they were just as confused as we were.
It's my understanding that your private policy is the primary insurance for 3 years (I THINK that's right) and Medicare is secondary. Then it switches, so your primary becomes secondary, and you can get your transplant wherever Medicare allows.
If that is incorrect, someone please let me know.
Hugs to you donnia  :cuddle;
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
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« Reply #57 on: February 25, 2008, 05:31:20 PM »
Quote from: okarol on February 25, 2008, 05:28:09 PM

It's my understanding that your private policy is the primary insurance for 3 years (I THINK that's right) and Medicare is secondary. Then it switches, so your primary becomes secondary, and you can get your transplant wherever Medicare allows.
If that is incorrect, someone please let me know.


That's the way it worked for us, too, okarol!
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kitkatz
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« Reply #58 on: February 25, 2008, 08:09:34 PM »
Well...rat poo!  That is not good news for you all.  I hope the hospital you are with can hurry up.
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lifenotonthelist.com

Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5

Remember your present situation is not your final destination.

Take it one day, one hour, one minute, one second at a time.

"If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1
Psim
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« Reply #59 on: February 26, 2008, 10:47:15 AM »
This stinks! I hope you get rescheduled very soon!
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KT0930
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« Reply #60 on: February 26, 2008, 05:35:21 PM »
Quote from: okarol on February 25, 2008, 05:28:09 PM
I am so sorry donnia - hopefully this is a minor set back and things will get rescheduled soon.
The whole insurance thing is confusing. Each hospital told us different things and they were just as confused as we were.
It's my understanding that your private policy is the primary insurance for 3 years (I THINK that's right) and Medicare is secondary. Then it switches, so your primary becomes secondary, and you can get your transplant wherever Medicare allows.
If that is incorrect, someone please let me know.
Hugs to you donnia  :cuddle;


I thought this about private insurance and Medicare as well. I thought that as soon as you got a transplant Medicare becomes primary. I was wrong, and did not find out the truth until after my transplant. There are about three criteria they check, and if any of them are met, then your private insurance continues to be primary for the full 30 month coordination period. Mine is because my husband's employer has over 300 employees. I'm sorry, I can't remember the other two reasons, but it's something to be aware of and know which side you're going to fall onto when the transplant happens.
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"Dialysis ain't for sissies" ~My wonderful husband
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I received a 6 out of 6 antigen match transplant on January 9, 2008. Third transplant, first time on The List.
kellyt
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« Reply #61 on: February 27, 2008, 07:39:49 AM »
Is there a way to find out the "three criteria"?    :thx;
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1993 diagnosed with glomerulonephritis.
Oct 41, 2007 - Got fistula placed.
Feb 13, 2008 - Activated on "the list".
Nov 5, 2008 - Received living donor transplant from my sister-in-law, Etta.
Nov 5, 2011 - THREE YEARS POST TRANSPLANT!  :D
donnia
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me and my donor Joyce
« Reply #62 on: February 27, 2008, 11:44:39 AM »
Medicare becomes primary and will pay after 30 months (2 1/2 years).   :thumbdown;
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Born with one kidney 1972
Ureter re-constructured 1975 (reflux had already damaged the kidney)
Diagnosed and treated for high blood pressure 2000
Diagnosed ESRF October 2006
Started dialysis September 2007
Last dialysis June 4, 2008
Transplant from my hero, Joyce, June 5, 2008
The Wife
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« Reply #63 on: February 28, 2008, 07:12:55 AM »
I'm sorry to hear this.  Let's hope this gets resolved soon and they call with another date.
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kellyt
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« Reply #64 on: February 28, 2008, 11:57:04 AM »
How are you doing, Donnia?   You're still in my thoughts...
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1993 diagnosed with glomerulonephritis.
Oct 41, 2007 - Got fistula placed.
Feb 13, 2008 - Activated on "the list".
Nov 5, 2008 - Received living donor transplant from my sister-in-law, Etta.
Nov 5, 2011 - THREE YEARS POST TRANSPLANT!  :D
Lori1851
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This is me Lori , Dustin's mom
« Reply #65 on: February 28, 2008, 01:45:19 PM »
 :yahoo;
Great news!!!!! I know you are so excited! I will be praying for you both!!!

Lori/Indiana :2thumbsup;
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donnia
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me and my donor Joyce
« Reply #66 on: February 28, 2008, 08:01:52 PM »
kelly, I am doing ok.  Baylor is going to accept Covenants tests, and do some more tests on my donor.  Hopefully they won't be too long since my donor had done so much at Covenant.
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Born with one kidney 1972
Ureter re-constructured 1975 (reflux had already damaged the kidney)
Diagnosed and treated for high blood pressure 2000
Diagnosed ESRF October 2006
Started dialysis September 2007
Last dialysis June 4, 2008
Transplant from my hero, Joyce, June 5, 2008
Lori1851
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This is me Lori , Dustin's mom
« Reply #67 on: February 29, 2008, 09:13:03 AM »
I am so sorry to hear it has been cancelled. I didnt know this before I posted yday. I will keep praying for you!!!

Lori/Indiana
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kellyt
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« Reply #68 on: February 29, 2008, 01:21:19 PM »
Quote from: donnia on February 28, 2008, 08:01:52 PM
kelly, I am doing ok.  Baylor is going to accept Covenants tests, and do some more tests on my donor.  Hopefully they won't be too long since my donor had done so much at Covenant.

I guess you saw my bad news?    Stupid of me to think I was going to cruise through this without any hiccups!   :banghead;

We're all in this together even though we're all so far apart!   :cuddle;
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1993 diagnosed with glomerulonephritis.
Oct 41, 2007 - Got fistula placed.
Feb 13, 2008 - Activated on "the list".
Nov 5, 2008 - Received living donor transplant from my sister-in-law, Etta.
Nov 5, 2011 - THREE YEARS POST TRANSPLANT!  :D
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