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| | |-+  What NOT to do or say at the Transplant Evaluation!
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Author Topic: What NOT to do or say at the Transplant Evaluation!  (Read 57102 times)
Rerun
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« on: June 22, 2006, 07:52:55 PM »

Do not say "I've got $50,000 if you move me to the top of the list". 

Do not say "I won't need anti-rejection drugs because I'm a positive thinker."

Do not mention that you might be moving to another state after you get listed!

Do not tell your transplant surgeon he looks too old to be doing this kind of surgery!

Feel free to add to this.
« Last Edit: September 23, 2009, 08:50:33 PM by Rerun » Logged

Epoman
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« Reply #1 on: June 22, 2006, 10:47:47 PM »

Do not say "Well I've been known to forget to take my phosphorus meds"

Do not say "Sucks to be those Kaiser patients in the news recently, huh?"

Do not say "Will the anti-rejection meds cause an interaction with my chronic" (Marijuana)
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Rerun
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Going through life tied to a chair!

« Reply #2 on: June 23, 2006, 02:16:42 AM »

Do not go on and on about your 7 cats that just LOVE to sleep with you!
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kitkatz
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« Reply #3 on: June 23, 2006, 11:03:18 AM »

Do not tell your doctor he looks like a younger version of Doogie Howser, even if he does.

Do not let them know your insurance lapsed in the last six months. Uh oh!




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Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5

Remember your present situation is not your final destination.

Take it one day, one hour, one minute, one second at a time.

"If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1
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« Reply #4 on: June 26, 2006, 01:16:32 AM »

Whatever you do, do not stand up and go screaming out of the room when they ask you the same questions 25 times.  Always answer calmly.

If they ask if you have a support system set up say yes, even in your family lives in Egypt and you are in the U.S.

Never, ever let them see you sweat!

Do not tell them about your trials and tribulations in your life.

Try not to tell them too loudly you HATE dialysis and will do anything to get a kidney.

Katherine


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lifenotonthelist.com

Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5

Remember your present situation is not your final destination.

Take it one day, one hour, one minute, one second at a time.

"If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1
Rerun
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« Reply #5 on: June 27, 2006, 09:21:31 PM »

Whatever you do, do not stand up and go screaming out of the room when they ask you the same questions 25 times.  Always answer calmly.

If they ask if you have a support system set up say yes, even in your family lives in Egypt and you are in the U.S.

Never, ever let them see you sweat!

Do not tell them about your trials and tribulations in your life.

Try not to tell them too loudly you HATE dialysis and will do anything to get a kidney.

Katherine

 ;D  So True!!!


Fixed quote error - Epoman  ::) ::)
« Last Edit: June 28, 2006, 03:14:26 PM by Epoman » Logged

meadowlandsnj
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« Reply #6 on: July 14, 2006, 05:01:10 PM »

Don't let the team know about the one ice cold beer you had three years ago at a summer barbecue--you'll be seen as having "alcohol issues".  Friend of mine went for an evaluation and he was completely honest telling them he smoked  weed twice as a teenager and had a beer once a year on his birthday. 

They gave him a really hard tme about it.  But do you tell them everything?  Is it really nececessary to be that truthful.  When I had mine I told them the truth, I drank as a younger person, tried weed once (didn't like it--I hate smoking).  It was never an issue for me. 
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angieskidney
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« Reply #7 on: July 15, 2006, 02:38:39 AM »

Don't let the team know about the one ice cold beer you had three years ago at a summer barbecue--you'll be seen as having "alcohol issues".  Friend of mine went for an evaluation and he was completely honest telling them he smoked  weed twice as a teenager and had a beer once a year on his birthday. 

They gave him a really hard tme about it.  But do you tell them everything?  Is it really nececessary to be that truthful.  When I had mine I told them the truth, I drank as a younger person, tried weed once (didn't like it--I hate smoking).  It was never an issue for me. 
I was really honest before too but I was only 16 and didn't have anything to hide :P :D
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« Reply #8 on: August 17, 2006, 08:50:28 PM »

Do I ask them at the transplant evaluation if I go without steroids? Or is this a bad idea?
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lifenotonthelist.com

Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5

Remember your present situation is not your final destination.

Take it one day, one hour, one minute, one second at a time.

"If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1
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« Reply #9 on: August 17, 2006, 09:11:02 PM »

Do I ask them at the transplant evaluation if I go without steroids? Or is this a bad idea?


Drug protocol is set by the transplant center.  Even before evaluation your doc should be able to tell you what protocols are used at what transplant centers.
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kevno
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« Reply #10 on: August 18, 2006, 01:32:25 AM »

What Transplant Evaluation :-\
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But this little saying keeps me going!!

"RENAL PATIENTS NEVER GIVE UP!!!!!!"
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« Reply #11 on: August 18, 2006, 01:39:28 AM »

I am going to Loma Linda for transplant evaluation soon. Kaiser okayed me to go!
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lifenotonthelist.com

Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5

Remember your present situation is not your final destination.

Take it one day, one hour, one minute, one second at a time.

"If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1
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« Reply #12 on: August 31, 2006, 08:01:05 AM »

The social worker at my eval asked me about drug use.  I told him I smoked pot twice in high school (20 plus years ago).  He called me a user. :D
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« Reply #13 on: September 02, 2006, 11:37:37 PM »

I will be going to UCSF for my eval in 20 more days. But my doctor told me I do not quailify for a transplant because I had a heart attack well 3 of them this year! Has anybody heard what the quailifing factors are?
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« Reply #14 on: September 06, 2006, 04:51:36 AM »

I do not know what all the qualifying factors, but I do know you should be healthy enough to survive the surgery.  They might feel your heart won't take well to all the drugs they put you on during the procedure.

Never tell your doctor you'd rather sit in front of the TV with your 3 cats while eating buttered popcorn and milk then go for a jog with your 4 dogs.
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« Reply #15 on: September 28, 2006, 12:43:02 AM »

As for asking about the steroids, OSU is now doing transplants without steroids-----YEAH :clap;
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« Reply #16 on: September 28, 2006, 05:10:53 AM »

As for asking about the steroids, OSU is now doing transplants without steroids-----YEAH :clap;

Oh why are we so behind!!!  >:(
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BigSky
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« Reply #17 on: October 13, 2006, 08:32:05 AM »

Oh why are we so behind!!!  >:(

Still not alot of centers are doing this.  Even then those that do use it do not let all patients on that protocol.  Only those that have low antibodies.
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« Reply #18 on: October 13, 2006, 08:36:18 PM »

Just had this discussion with my transplant surgeon last week. UNC does a four day protocol, but only with low antibodies. In my case, if I do get a transplant, he says the steroids would be more like a year.  The anitbodies rule everything!
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« Reply #19 on: October 23, 2006, 03:54:35 PM »


Do not say "Yes... my living donor is .... uh... my cousin! That's it... cousin Farhan Noor Udeen!"

Do not say "Pills? Yeah, I guess I am a little flaky sometimes when it comes to taking pills."

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Rerun
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« Reply #20 on: October 23, 2006, 05:39:31 PM »


Do not say "Yes... my living donor is .... uh... my cousin! That's it... cousin Farhan Noor Udeen!"

Do not say "Pills? Yeah, I guess I am a little flaky sometimes when it comes to taking pills."

 :clap;  Pretty Good!!
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« Reply #21 on: October 26, 2006, 06:26:22 PM »

Don't say- "not only am I on board with this transplant thing, ALL my personalities are on board!"


Don't say- "Of course I want a transplant, do you know what this low phosporous diet has done to my beer binges?"  :beer1;
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Rerun
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Going through life tied to a chair!

« Reply #22 on: October 27, 2006, 08:08:54 PM »

If you are an IV drug user just tell them the marks are from dialysis.  They won't know......
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« Reply #23 on: October 29, 2006, 09:08:35 AM »

I would not go in singing "100 Bottles of Beer on the Wall".
Don't tell them "Tequila Make my Clothes Fall off" either.
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lifenotonthelist.com

Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5

Remember your present situation is not your final destination.

Take it one day, one hour, one minute, one second at a time.

"If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1
Rerun
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Going through life tied to a chair!

« Reply #24 on: December 01, 2006, 07:19:55 PM »

Don't tell them you'd rather BUY a frick'en kidney if it were legal! 

         :beer1;

Do not ask the Transplant Coordinator what blood type she is.
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