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Author Topic: I Started Emergency Dialysis  (Read 8523 times)
angellady07
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« on: January 29, 2008, 05:53:03 PM »
Wow, I've been on a wild ride. It started out with a trip to the bank, and ended up in the hospital with emergency dialysis. I went to the bank on friday afternoon and had sort of a strange feeling. All of a sudden, I passed out. I ended up in an ambulance on my way  to the hospital. I was in total heart block. My potassium was 7.I had dialysis for the first time on friday.I've had 4 total. I was released from the hospital today. Tomorrow, I start in center. I don't know how all of you do it. I hope it gets easier. I feel like I've been through the spin cycle of the washing machine. Please send a few prayers my way. Thanks. :cuddle;
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kellyt
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« Reply #1 on: January 29, 2008, 05:56:43 PM »
That's horrible!   I'm glad you're better today.

Take a deep breath before you walk in the in-center door tomorrow and know I'm thinking about you!  What time do you go in?
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1993 diagnosed with glomerulonephritis.
Oct 41, 2007 - Got fistula placed.
Feb 13, 2008 - Activated on "the list".
Nov 5, 2008 - Received living donor transplant from my sister-in-law, Etta.
Nov 5, 2011 - THREE YEARS POST TRANSPLANT!  :D
angellady07
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« Reply #2 on: January 29, 2008, 05:58:21 PM »
3:00. I'm a little scared to say the least.
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okarol
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« Reply #3 on: January 29, 2008, 06:05:43 PM »
 :cuddle;
Awww angellady -- that's so hard to go through - I hope you begin to feel better over the next few treatments.
Sending you LOVE and {{{BIG HUGS!}}}
 :cuddle;
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
glitter
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« Reply #4 on: January 29, 2008, 06:17:13 PM »
how scarey that must have been- I hope you start to feel better really soon!!
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Jack A Adams July 2, 1957--Feb. 28, 2009
I will miss him- FOREVER

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RCC
nephrectomy april13,2006
dialysis april 14,2006
Joe Paul
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« Reply #5 on: January 29, 2008, 06:32:48 PM »
Sorry to hear this, hoping things turn out good for you  :thumbup;
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"The history of discovery is completed by those who don't follow rules"
Angels are with us, but don't take GOD for granted
Transplant Jan. 8, 2010
Bajanne
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« Reply #6 on: January 29, 2008, 06:36:22 PM »
WOW!  This was thrown on you!  But you are going to make it through!  You have all of us here going through it all with you.  All you have to do is keep us posted on how it is all going.  Have a look through the section with FAQ for things that you need to know before you go there.  You must go there as what my doctor calls "an informed patient" - that is what IHD is all about - empowerment!  Knowledge is power!
My caring thoughts are with you!  :cuddle;
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lola
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« Reply #7 on: January 29, 2008, 06:41:52 PM »
 :grouphug; :grouphug; :grouphug;
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bolta72
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« Reply #8 on: January 29, 2008, 07:00:13 PM »
Sorry, this isn't a great way to have to start dialysis, best of luck to you and I'm sure you will feel better after a few treatments.
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gotta do what I gotta do.. 2 yrs in ctr hemo
paris
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« Reply #9 on: January 29, 2008, 08:02:57 PM »
Angellady07, we will all be there beside you, so when you get scared picture our arms wrapped around you :grouphug;  I can't imagine how hard the past days have been for you.  Lots of prayers for you tomorrow. :cuddle;
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It's not what you gather, but what you scatter that tells what kind of life you have lived.
boxman55
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« Reply #10 on: January 29, 2008, 08:28:34 PM »
thoughts are with you hang in there...Boxman
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"Be the change you wished to be"
Started Hemodialysis 8/14/06
Lost lower right leg 5/16/08 due to Diabetes
Sister was denied donation to me for medical reasons 1/2008
Bill Peckham
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« Reply #11 on: January 29, 2008, 09:11:29 PM »
That is a hard way to be introduced to dialysis - connecting online to others on dialysis is a good first step to getting on top of the situation. I really like this resource http://www.kidneyschool.org  There are 18 modules that you can browse and go back to as needed.
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http://www.billpeckham.com  "Dialysis from the sharp end of the needle" tracking  industry news and trends - in advocacy, reimbursement, politics and the provision of dialysis
Incenter Hemodialysis: 1990 - 2001
Home Hemodialysis: 2001 - Present
NxStage System One Cycler 2007 - Present
        * 4 to 6 days a week 30 Liters (using PureFlow) @ ~250 Qb ~ 8 hour per treatment FF~28
Mimi
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« Reply #12 on: January 29, 2008, 09:18:53 PM »
Oh my goodness AngelLady, what a shock.  I know you do feel frazzled.  Bless your heart I do pray things
go well for you tomorrow at in center and hope you have someone to go with you.  Let us know how things
go and know that you are in my prayers.

Love, Mimi

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Death is not extinguishing the light;
it is putting out the lamp because the dawn has come.
Sluff
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« Reply #13 on: January 29, 2008, 10:20:01 PM »
I'm sorry you had to go through this the way you did. I hope things get easier soon.  :grouphug; We are here for you.
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cris
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« Reply #14 on: January 29, 2008, 10:24:01 PM »
My Dear, prayers sent your way. :cuddle; :grouphug;
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there is no greater love than this: "that a man lays down his life for his friend"
tamara
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WOO HOO NEW KIDNEY PEEING !!!(Transplant 23/10/07)
« Reply #15 on: January 30, 2008, 03:14:34 AM »
Hugs for you  :grouphug; and Plenty of Thoughts and Prayers

Tamara xxxx oooo
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ABO Incompatible Transplant from my loving Partner 23/10/07
after over four years on the D Machine 

                                                                                                                  
Dialysis Sucks and Transplants Don't.................So Far Anyway !!!!!
2_DallasCowboys
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« Reply #16 on: January 30, 2008, 03:28:18 AM »
I am praying for you.  That is the same way
my husband was introduced to dialysis.  We went
right from the Drs. office to the emergency room-
emergency dialysis, a week in the hospital, and then
on to the unit.  I know it is a rough way to start,
but you have great support here among all these
wonderful people.  Stay strong, and I know it is
easier to say than do-try not to be afraid!   :grouphug;

Anne
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kitkatz
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« Reply #17 on: January 30, 2008, 06:30:42 AM »
What a way to start everything!  I hope everything goes well when you start in center.  Remember to bring a warm blanket, a snack, a pair of headphones, and a book or magazine with you wen you go.
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lifenotonthelist.com

Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5

Remember your present situation is not your final destination.

Take it one day, one hour, one minute, one second at a time.

"If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1
MyssAnne
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« Reply #18 on: January 30, 2008, 06:54:26 AM »
What a shock!!! NOT the way you wanted to start dialysis, I am sure!

You've got all of us behind you, supporting you in anything you need!! You can do this, and it'll be easier, because you'll be
informed, and now you know what to expect!

 :cuddle;
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ODAT
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« Reply #19 on: January 30, 2008, 08:41:34 AM »
 :grouphug;
I pray things go more smoothly for you and you start to feel better. My mom is doing the waiting game right now and doesn't have her graft yet (trying for a fistula first). Her GFR is 13% (down 2% in three months). She has no ill effects other than being tired. From re-reading the boards, I called her and told her to take her Lycria at night. Maybe that's one reason she is so tired during the day.

Hope your graft holds up as well.
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As is your sort of mind, so is your sort of search: you will find what you desire.
KT0930
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« Reply #20 on: January 30, 2008, 10:12:51 AM »
Angel, I am so sorry this has happened. This is also the way I was introduced to dialysis two of the three times I've been on. It's extremely scary and overwhelming. Stick around IHD, ask questions, read the FAQ section, and know what to expect. It will get better!
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"Dialysis ain't for sissies" ~My wonderful husband
~~~~~~~
I received a 6 out of 6 antigen match transplant on January 9, 2008. Third transplant, first time on The List.
charee
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« Reply #21 on: January 30, 2008, 05:02:09 PM »
how scary, hope things are improving  :grouphug;
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Home Hemo  18 months
Live donor transplant 28th October 2008
from my beautiful sister
Royal Prince Alfred Sydney Australia

Live donors rock
angellady07
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« Reply #22 on: January 31, 2008, 08:11:37 AM »
Thanks, for all the well wishes. Kitkatz, thanks for the tips on the blanket and the headphones. It made my first day a lot more comfortable.I'm a little uneasy regarding the fact that there is no dietician at the center. I've been given no fluid or dietary guidelines whatsoever. Only, a renal friendly diet. The charge nurse did mention " you know you have to stay away from bananas". I'll continue to do my homework. I know that's my responsibility. I just wish I had been given a place to start. Again, thanks to everyone.  :cuddle;
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okarol
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« Reply #23 on: January 31, 2008, 08:59:22 AM »
 :cuddle;
There was a dietician who stopped by once a month at Jenna's center. She would hand out a list of do's and don't's - not really much help. There are some good threads on IHD - Zach included some in this thread http://ihatedialysis.com/forum/index.php?topic=1761.0 - good luck!
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
BigSteve
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« Reply #24 on: January 31, 2008, 09:44:01 AM »
This points up a pet peeve of mine. We discussed this at the last AAKP support group meeting.
Going on dialysis is a scary experience, but there is no sort of orientation from the dialysis unit.
I knew I would be going on dialysis for months, but the only introduction I got was to see
the unit and be told to ring the buzzer when I got there for my first time. What the beginning
patient needs is to be taken through the entire procedure before the actual time. Please let
the patient see what is to happen, what is "dry weight", where do the needles go, etc.
Nurses, techs, you are used to the unit, a frightened patient is not.
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"I yam what I yam what I yam." Popeye's immortal words.
"Getting and spending we lay waste our powers"
If it's too big to fail, it's too big to exist.
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